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TOPIC: Liver Clinics and Generic Rebels

Liver Clinics and Generic Rebels 3 years 6 months ago #3220

  • emilio
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Hi Sarah and welcome. Not sure where you are from genotype etc but others on here will be able to determine which meds would be suitable for you. But of course your GP/specialist should determine this. We look forward to hearing about your progress and tx journey. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Liver Clinics and Generic Rebels 3 years 6 months ago #3235

  • flyingfox66
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I am a 1a genotype, and I've had pretty good liver function for the last ten years or so, though some lowered functions and scarring before that. I sometimes suspect that although my liver function tests have been good for that time I am still not fully healthy...dental problems and digestive problems galore, plus psoriasis make me think my liver is really not running all that well. My GP doesn't credit it, but then for all his good intentions he really doesn't know much about it. Seems dental problems are a big factor with Hep C from what I've been reading lately.
Last test two years ago was 1.4 million virus though so its obviously under control to some degree. I have been extremely careful health wise for a long time now though. New tests coming next week so we'll see.
Anyway at least I was able to avoid the Interferon era, and now I am keen to say goodbye to this virus. I can handle rude specialists as long as they give me what I want but i'd love to find a really sympathetic one. It's great to know there's so much expertise and support online though. :)
F49HepC25ysGT1a
"mild"
Harvoni 12 wks
Brisbane, Australia
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Liver Clinics and Generic Rebels 3 years 3 months ago #10245

  • Emma
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Hi all
I'm interested to know if anyone else has had this experience.
My specialist doctor refused to give his authority for the viral load test at 4 weeks or even 8 weeks or 12 wks if willing to pay for?
But instead wanted me to wait for the 12 week post treatment test ONLY.
Had no compassion for my need to know if Harvoni working for me & a heap of side effects to deal with.
Prior to treatment I had no current VL test results. or even a fiberscan which were recommended..
My Viral load was 300,000 in 07 prior to treatment so no idea.
My fantastic GP spent hours getting tests for me to alleviate my anxiety & distress.
So Far so good & many of my symptoms & side effects fading now with 10 days left.
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Liver Clinics and Generic Rebels 3 years 3 months ago #10257

  • Gaj
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Hi Emma & welcome,

While not refused testing some of us have experienced increased anxiety, etc. around the type of testing initially provided. In the below link (post #9920) I comment about what you experienced but as a concept for the future rather than current best practice which which I would have thought should also take patient concerns into account, particularly when the patient is prepared to bear the costs.

fixhepc.com/forum/patient-stories/444-ja...a.html?start=60#9920

Edit: did he provide a reason for refusing?
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 3 months ago by Gaj.
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