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TOPIC: London Girl's NHS Experiences

Dan's Twinvir story 3 years 5 months ago #5628

  • LondonGirl
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I don't eat meat :lol: - but are they any good?
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Dan's Twinvir story 3 years 5 months ago #5630

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Alsdad wrote: I'm not sure how to distinguish "mild flu-like symptoms" I have every day from the "mild flu-like symptoms" of side effects.

Also, I recommend StartPage as a great search engine. No logging or data mining.
M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
Last Edit: 3 years 5 months ago by sonix.
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The following user(s) said Thank You: LondonGirl, Gaj

Dan's Twinvir story 3 years 5 months ago #5647

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LondonGirl wrote:
Whereas I agree, some side effect reporting may make some patients a little nervous even if they are nothing like the old meds sides, I also think it is good to share how people are feeling on tx, so others can be prepared. I mean, if no-one ever had any side effects at all because they didn't want to mention them and then a person new to treatment got some, they may be really scared because they think they are the only one to get some, does this make sense? When people just tell me 'oh it's just like a mild flu for a bit' I have to say, I do wonder what a 'mild' flu is like, you know? ;) Having said that, I haven't had flu for so long, I can't remember what it's like! but I have definitely had other very horrible symptoms since I've had this virus. Joint pain so bad I couldn't walk for example. Really don't want those to get worse.

I never suggested not to speak of your experience of sides while on treatment of course its important to talk
about how you're doing on treatment positive or negative.

What I did say was Id be mindful of not worrying about sides before you've started treatment.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
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Dan's Twinvir story 3 years 5 months ago #5650

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I use startpage sonix
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Dan's Twinvir story 3 years 5 months ago #5655

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What I did say was Id be mindful of not worrying about sides before you've started treatment.

Sure, just voicing an opinion, as I know in the past on other forums, this has been an issue .

Edit : ie There is/was some pressure to pretend treatment with Interferon was 'not that bad' and 'just like mild flu'
This is why I think I balk at that particular expression !
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 3 years 5 months ago by LondonGirl.
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