×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

A very good thing 7 years 9 months ago #17436

Hi all

i've been a member of this forum for about 10 days and started treatment through Dr Freeman/FixHepC 3 days ago so I thought it was time to say hello. My details are in my signature.

There must be hundreds of thousands of doctors around the world but only a handful have had the balls to do something about the morally bankrupt prices big pharma are charging for DAAs. Dr Freeman and has his colleagues have the drive, knowledge, capabilities and cojones to have brought this thing into being. A pretty special combination of qualities!

Most doctors go about their jobs in a very subscribed way, afraid to put their head above the parapet for fear of being slapped down by their regulatory bodies or line manager or, worse, a lack of true passion for their cause. There are many people for whom a job just a job but I strongly believe that if one chooses a career in healthcare then one must do it because they want to help people and not just for the social status and/or financial renumeration the job entails; the latter two of which I suspect are the main driving factors for most people going into medicine (if they are completely honest with themselves).

I don't say this to dis doctors in general. I suspect that if I was one I'd probably be in the lethargy camp. I do it moreover to praise all involved with FixHepC. If I was in charge of things I'd award them the Nobel prize for science.

Patrick
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.

A very good thing 7 years 9 months ago #17437

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Welcome Patrick
I'm also a peginf riba relapser who found this awesome place and am stoked to tell you that I am now already ten weeks past tx and still UND!!! ...... this stuff works and if it stuffs up the retreating is easy too I understand from pals who have experienced that too. Most people here have fantastic empathy for we peginferriba peeps and you will get great support. This is super easy by comparison it was like "gosh where did those 12 weeks go" for me
The first few weeks I had migraine and night sweats but came up UND by day 30ish so I guess those small sx were just the drug working, after that there wasn't anything much a bp issue that was easily resolved.
I wish you well for the ride and a great result we nearly all seem to be clearing with these meds even if some extend tx or whatever it's all good.
Keep us updated and there's so much great info on here, watch out for mgalbrais blogs of latest news etc most informative
Cheers and welcome again from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1, beaches, Fara, GT2, fitz

A very good thing 7 years 9 months ago #17441

Many thanks Ariel. Agreed: compared to I/R DAAs are a walk in the park!
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.
The following user(s) said Thank You: pat1, Ariel, Fara, GT2, fitz

A very good thing 7 years 9 months ago #17446

  • pat1
  • pat1's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 340
  • Karma: 15
  • Thank you received: 977
Welcome Patrick :+1:
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
The following user(s) said Thank You: Ariel, Meg, GT2, fitz

A very good thing 7 years 9 months ago #17447

  • fitz
  • fitz's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured with generic DAAs. Hep C kills. Treat now!
  • Posts: 501
  • Karma: 23
  • Thank you received: 1816
Looks like, you, Meg and I are all starting tx around the same time. Congratulations on taking the plunge Patrick! May you always ride with the sun at your back.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: Ariel, Meg, GT2

A very good thing 7 years 9 months ago #17459

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Three musketeers! I'm seeing the three amigos And HCV is el guapo

Fitz Meg and Patrick go get em!

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: fitz

A very good thing 7 years 9 months ago #17465

  • beaches
  • beaches's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • The life you save will be your own. START TREATMENT
  • Posts: 760
  • Karma: 25
  • Thank you received: 2254
You got this. Looking forward to sharing your celebrations
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel, fitz

A very good thing 7 years 9 months ago #17487

  • fitz
  • fitz's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured with generic DAAs. Hep C kills. Treat now!
  • Posts: 501
  • Karma: 23
  • Thank you received: 1816
Thanks Beaches, and Ariel! No time like the present!!!

Para todos los amigos y amigas aquí!

Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: Ariel

A very good thing 7 years 9 months ago #17493

Thanks all for the good wishes. Let's do this.
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.
The following user(s) said Thank You: Ariel, fitz
  • Page:
  • 1
Time to create page: 0.076 seconds

Copyright © 2015-2020 FixHepC

Back to Top