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Day 1... here we go 6 years 8 months ago #25193
Fantastic news Edge. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Day 1... here we go 6 years 8 months ago #25194
I was thinking about this thread during the night as I lay awake yet again from about 2am to 4am. I had forgotten we were discussing insomnia! For the past few weeks I've been racking my brain about why I'm not sleeping. Hopefully it wears off soon! I'm about 16 weeks post EOT now. Genotype 1B SVR 24 (10/17/17): VL UND / ALT 25 / AST 17 SVR 12 (7/25/17): VL UND / ALT 21 / AST 14 SVR 4 (5/31/17): VL UND / ALT 21 / AST 19 EOT (5/1/17): VL UND / ALT 32 / AST 22 T+19w (3/27/17): VL UND / ALT 23 / AST 20 T+4w (12/12/16): VL UND / ALT 31 / AST 24 T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28 Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016. The following user(s) said Thank You: Gaj | |
Day 1... here we go 6 years 8 months ago #25195
| Hi Edge, Delighted to hear your news. All the best, RSF G3a. Probably infected 40 years ago. Diagnosed July 2015 7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa. Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16 VL UND @ 4 wks, 12 wks EOT 6/7/16 SVR 12 SVR 24 PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc |
Day 1... here we go 6 years 8 months ago #25200
Hi Edge great reading your posts. Sounds like you are nearly there, just a short step away. That insomnia stick has a long reach doesn't it? !!! love Nadia Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! | |
Day 1... here we go 6 years 8 months ago #25201
Hi Edge, Hoping your insomnia resolves soon, mine has improved considerably since I completed treatment. I linked this before but here is Dr Freeman's blog again about it which you and others may find helpful. gp2u.blogspot.com.au/2015/02/how-do-i-fix-my-insomnia.html G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Day 1... here we go 6 years 8 months ago #25206
Hi everyone I Want to thank you for this forum as it really helped me when I was diagnosed in April. I was in total shock as I didnt know what hep c was. I was ready to join redemption trials but thankfully in Ireland they had just opened up DAA for everyone. They stopped new people getting approved in August as the budget was used up so I was very lucky I was diagnosed when I was. this forum kept me sane and helped me take a positive outlook on the situation. I am starting week 8 of my 12 weeks and all is going well. Main side effect has been fatigue but thankfully no insomnia or stomach problems. Good luck to all who are starting treatment the time goes by very quickly. Diagnosed 1a April 17 Started viekirax exvirra &Ribavarin July 17 VL 2m ALT 180 fibroscan 4.75 2 weeks VL 48 ALT 30 | |
Day 1... here we go 6 years 8 months ago #25213
Hi Edge, Congratulations - that's fantastic news. Our old friend insomnia and why is it always 2am to 4am?!! I had it for years on and off which was probably due to the virus. Then it ramped up quite a lot with the Ribavirin but I have to say that sleeping is much easier for me post treatment. Hoping it will ease for you too soon. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
Day 1... here we go 6 years 8 months ago #25216
Hi Kate, Good to see you are at Week 8 - not long to go now. Hang on a little longer and that fatigue will disappear G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
Day 1... here we go 6 years 8 months ago #25219
Hi Kate - good luck with your treatment. You are nearly there! Genotype 1B SVR 24 (10/17/17): VL UND / ALT 25 / AST 17 SVR 12 (7/25/17): VL UND / ALT 21 / AST 14 SVR 4 (5/31/17): VL UND / ALT 21 / AST 19 EOT (5/1/17): VL UND / ALT 32 / AST 22 T+19w (3/27/17): VL UND / ALT 23 / AST 20 T+4w (12/12/16): VL UND / ALT 31 / AST 24 T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28 Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016. | |
Day 1... here we go 6 years 8 months ago #25220
| Congratulations Edge on SVR 12! Next stop is SVR 24! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Day 1... here we go 6 years 8 months ago #25223
Can't come soon enough, Greedfighter!!! Genotype 1B SVR 24 (10/17/17): VL UND / ALT 25 / AST 17 SVR 12 (7/25/17): VL UND / ALT 21 / AST 14 SVR 4 (5/31/17): VL UND / ALT 21 / AST 19 EOT (5/1/17): VL UND / ALT 32 / AST 22 T+19w (3/27/17): VL UND / ALT 23 / AST 20 T+4w (12/12/16): VL UND / ALT 31 / AST 24 T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28 Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016. The following user(s) said Thank You: coral, Greedfighter | |
Day 1... here we go 6 years 5 months ago #25383
SVR 24!! To all on the forum, and especially Dr Freeman and Dr Devsam, thank you for your support and for making this possible. My only question now is what happens next?? Do I take it that achieving SVR24 is a cure? Do I need to get tested again regularly? Just so relieved that this seems to be over. Genotype 1B SVR 24 (10/17/17): VL UND / ALT 25 / AST 17 SVR 12 (7/25/17): VL UND / ALT 21 / AST 14 SVR 4 (5/31/17): VL UND / ALT 21 / AST 19 EOT (5/1/17): VL UND / ALT 32 / AST 22 T+19w (3/27/17): VL UND / ALT 23 / AST 20 T+4w (12/12/16): VL UND / ALT 31 / AST 24 T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28 Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016. | |
Day 1... here we go 6 years 5 months ago #25384
Hi Edge, wonderful news! You are officially cured. If the virus was still present it has had 24 weeks to grow back and during 23 or so of those weeks you have had no useful levels of medication in your system so there has been nothing to stop it. It has not come back because it is gone... for good. You can still catch it again, but short of that it is officially over. Well done and thanks for your faith in us! YMMV | |
Day 1... here we go 6 years 5 months ago #25385
| Congratulations Edge on SVR 24! Cured baby! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
Day 1... here we go 6 years 5 months ago #25386
Awesome to you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James | |
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