English
Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Main Forum
Patient Stories
New to Forum
No longer furtively reading posts here, joined Redemption trials
  • Page:
  • 1
  • 2

TOPIC: No longer furtively reading posts here, joined Redemption trials

no longer furtively reading posts here, joined Redemption trials 2 years 3 months ago #24398

  • mgalbrai
  • mgalbrai's Avatar
  • Offline
  • Moderator
  • Posts: 1327
  • Thank you received: 2703
  • Karma: 26
Congratulations M!
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The administrator has disabled public write access.

no longer furtively reading posts here, joined Redemption trials 2 years 3 months ago #24415

  • Mnem
  • Mnem's Avatar
  • Offline
  • Premium Member
  • Too many lives go into the making of just one. - Montale
  • Posts: 104
  • Thank you received: 223
  • Karma: 2
Today at my workplace I got a bad paper cut and bled over a shared desk :ohmy: In the past I would have felt deep anxiety at seeing my infected blood spilled in a public place. But today it felt different, for the first time since my diagnosis almost 40 years ago, I did not feel panic. I calmly cleaned up, wearing a small inner smile
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, Gaj, Iain

no longer furtively reading posts here, joined Redemption trials 2 years 3 months ago #24417

  • Paul-Jarman-facebook
  • Paul-Jarman-facebook's Avatar
  • Offline
  • Moderator
  • The gypsy woman told my mother Before I was born
  • Posts: 383
  • Thank you received: 660
  • Karma: 9
I have had similar situation Mnem and like you didn't flip out last time I had to clean a small amount of blood up.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, Iain, Mnem

no longer furtively reading posts here, joined Redemption trials 1 year 8 months ago #25535

  • Mnem
  • Mnem's Avatar
  • Offline
  • Premium Member
  • Too many lives go into the making of just one. - Montale
  • Posts: 104
  • Thank you received: 223
  • Karma: 2
A year ago I landed at my family doctor's rooms complaining of feeling seedy. "What could it be?" asked the friendly locum doc who was filling in. "My untreated HCV?" I wondered aloud. He wrote a referral letter to a local hepatologist and exhorted me to get treated. And so I did. Cured now, I am. SVR 24

It turned out the lethargy was just low blood pressure so I upped my salt intake and sorted it out that way. But the side effect of meeting that doctor was that I took the steps to get the cure for the HCV. Win-win. Thank you FixHepC
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
Last Edit: 1 year 8 months ago by Mnem. Reason: undoing auto-correction
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, Gaj

no longer furtively reading posts here, joined Redemption trials 1 year 8 months ago #25537

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Posts: 573
  • Thank you received: 1689
  • Karma: 31
Great news Mnem. There are so many different stories that have led us all here. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, Gaj, Mnem

no longer furtively reading posts here, joined Redemption trials 1 year 8 months ago #25538

  • Hazel
  • Hazel's Avatar
  • Offline
  • Platinum Member
  • Posts: 389
  • Thank you received: 1577
  • Karma: 27
Kia kaha Mnem. Kiwis e tu!
nga mihi
#magic
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, Gaj, rightsaidfred, Mnem

no longer furtively reading posts here, joined Redemption trials 1 year 8 months ago #25546

  • rightsaidfred
  • rightsaidfred's Avatar
  • Offline
  • Premium Member
  • G3a infected 40 years ago
  • Posts: 94
  • Thank you received: 326
  • Karma: 8
Make Mnem Strong. Kiwis!
thank you

Is how google translate rendered that into English, and if it got it right it's a delightful thing to say.

All power to Mnem and the kiwis!

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, Gaj, Hazel, Mnem

no longer furtively reading posts here, joined Redemption trials 1 year 8 months ago #25556

  • Hazel
  • Hazel's Avatar
  • Offline
  • Platinum Member
  • Posts: 389
  • Thank you received: 1577
  • Karma: 27
Pretty close RSF, I think of it as translating- strength/power to Mnem, and Kiwis stand up strong!
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The administrator has disabled public write access.
The following user(s) said Thank You: Mnem
  • Page:
  • 1
  • 2
Forum
Main Forum
Patient Stories
New to Forum
No longer furtively reading posts here, joined Redemption trials
Time to create page: 0.132 seconds

Copyright © 2015-2019 FixHepC

Delivery Guarantee Privacy Terms of service
Back to Top