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Hi There, gt2 and new here 4 years 4 months ago #25611

  • vedruss
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Hi all,
Glad to be here. I feel like I've found my tribe!
I have had this now for 25 odd years or so.I'm 55 and I always new that something wasn't right but it wasn't picked up till my doctor looked a bit deeper in 2002. I turned down the interferon etc and we have been eating healthy and looking after ourselves since.

Lucky for me I was led to this site. Certainly seems to be none to soon as I'm starting to get ground down now. Brain fog, lower energy levels,poor digestion,weight falling off, getting overwhelmed by jobs that I used to accomplish easily. You know how it rolls..
I have always been very active and adventurous but now even moderate exercise leaves me tired and not invigorated .. I am looking forward to gaining my health back and getting on to enjoying this great life. FREEDOMMMMMM.

PS I have a few excellent things I picked up along the trail to share as well.
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Hi There, gt2 and new here 4 years 4 months ago #25612

  • DrJames
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Welcome vedruss,

You have come to the right place. Plenty of support and of course access to the new meds. The new treatments are like chalk and cheese compared to the old ones.

If you can get your local doctor to prescribe that's great, if not, you can see me online and we can make sure you get the right tablets for the right quantity of time. Just register at gp2u.com.au/ and book an appointment with me if needs be.
YMMV
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Hi There, gt2 and new here 4 years 4 months ago #25614

  • Mnem
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Hello and welcome Vedruss, it is good you found your way here. I too had HVC but thanks to folk at FixHepC through whom I obtained the meds, the GT2 that was in my blood for decades has now gone baby gone. Now I will looking forward to hearing more from you as you step through your treatment. Best wishes, Mnem
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
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Hi There, gt2 and new here 4 years 4 months ago #25622

  • vedruss
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Thanks Doc. Sof and Dac are on the way. I will keep you informed of how things progress. You have a wealth of information here. I am slowly searching the site for the dietary restrictions . I'm not on any meds but have a fruit and vege garden . I'm sure It has kept me healthy thus far since getting the Virus. hopefully theirs not too many things off the menu. I see grapes,grapefruit and raspberries are so far. Any word on strawberries and cranberries?
Its a great thing You and Greg have done.
cheers
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Hi There, gt2 and new here 4 years 4 months ago #25624

  • DrJames
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Hello vedruss,

The fruits known to interfere with Daclatasvir metabolism include grapefruit, pomegranate, starfruit and pawpaw. These all inhibit the enzyme CYP3A4 which is involved in the metabolism of Daclatasvir. Because they inhibit the garbage collection we see higher blood levels and side effects.

CYP3A4 inhibitors DO NOT impact on treatment efficacy. The higher levels probably work slightly better but at the price of more side effects. To get problems you really need to consume them daily, so although not recommended the occasional fruit in this class will not hurt.

www.ganfyd.org/index.php?title=Inhibitors_of_CYP3A4

Of more concern are CYP3A4 inducers - these increase the garbage collector levels and thus lower the blood levels. Lower levels may result in treatment failure.

St John's Wort and Taurine (Red Bull and friends) are potentially common problems.

There are, of course drugs that act as inducers and inhibitors as well. Here is a more global overview:

en.wikipedia.org/wiki/CYP3A4
YMMV
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Hi There, gt2 and new here 4 years 4 months ago #25626

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Thanks for the warm welcome Mnem
It makes it easier when theirs people like you who have paved the way. I have tried many things to clear myself of this but as there was no set time frame or regimen for the things I tried .I dont really know how far I should've ,could've pushed through to get the result . At least now this is straight forward.
cheers
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
The administrator has disabled public write access.
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Hi There, gt2 and new here 4 years 4 months ago #25627

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Hey thanks for the good words.
Brain fog and poor eyesight LOL. Should know to slow down when reading by now ...
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, Ariel, Gaj

Hi There, gt2 and new here 4 years 4 months ago #25628

  • coral
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Hi Vedrus and Welcome,

I'm a tribe member (different genotype) who has been cured by the medication organised throught GP2U and FixhepC.
You are absolutely right that it is really straight forward. Take the medication and be cured.
Sometimes there are a few side effects but nothing we can't handle.
Good luck - i look froward to hearing about your results.
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Hi There, gt2 and new here 4 years 4 months ago #25633

Hi Vedrus I had the same genotype as you. Took my course of meds and have been cured. Only side effect was insomnia but other than that I breezed through the treatment, as I'm sure you will. I look forward to seeing your progress.

Cheers
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Hi There, gt2 and new here 4 years 4 months ago #25634

  • vedruss
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Coral and Lynne-Francis , Hi to you both,
Thanks for the warm welcome! I'm new to the online chatting thing and navigating my way around here slowly. Its certainly good to know your not alone . I will document my progress to be sure.
cheers
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
The administrator has disabled public write access.
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Hi There, gt2 and new here 4 years 4 months ago #25635

  • Gaj
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Hi vedruss, :)

If you scroll back to the top of this page, there are a line of blue tabs that are shortcuts to various parts of the forum.

‘Index’ is view of forum topics by category, ‘Recent Topics’ is posts by date order. ‘New Topic’ is to start your own new topic. Etc.

Hope that helps.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Hi There, gt2 and new here 4 years 4 months ago #25659

  • Ariel
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Welcome to the start of hope and healing in every way we know and have lived, interferon or not, HCV is no fun. I wish you the very best outcome from your tx this place you have found yes it’s a community built on integrity faith hard work commitment and trust, networking, basically swimming against a tide with rapids by one chap Dr Freeman.

Today two years ago a parcel arrived in my rural mailbox. Two years ago my life began again. Oh it wasn’t a Bed of roses but it was exactly what I needed to now be able to confidently tell you as others will, because of FixHepC I am HCV free.

The emotions I feel on this happy anniversary completely outweigh the hell of interferon, the loss of people along the way who shunned me or any other manifestation that wasn’t pleasant and associated with HCV.
I will always have a thanks that words just don’t do justice to for the kindness and advice on this forum and from FHC.

I’m sure you too will be already looking forward to ticking off each milestone along your path to what you deserve, your life without HCV

Splashes of happiness to you for your future from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Hi There, gt2 and new here 4 years 4 months ago #25664

  • coral
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Hello and Happy Anniversary Ariel...it's hard to believe that it is two years ago that so many of us began the beginning of the next part of our lives without Hep C.

I totally agree it was not always easy going but my goodness isn't life good without that virus? My sense of time wasted in a brain fog spurs me on to try to live life to the fullest.

Happy to hear your happiness Ariel. xx
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Hi There, gt2 and new here 4 years 4 months ago #25665

  • Greedfighter
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Happy Anniversary Ariel on 2 years cured!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
Last Edit: 4 years 4 months ago by Greedfighter.
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Hi There, gt2 and new here 4 years 4 months ago #25671

  • vedruss
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Happy anniversary Ariel,
Thanks for the kind words. I have stopped fighting it and am contemplating the future. I now have one..LOL
I look forward to the day I can say the monkey is off My back.... Hopefully not to long now.slight hiccup with NZ customs,but the wheels are turning. The bastards need more lube.enough of that though.
I'm going to head down to the beach and let the worries wash away.
Will post again when I begin the course. Bye for now
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
The administrator has disabled public write access.
The following user(s) said Thank You: DrJames, coral, Ariel
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