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Fitz starts REDEMPTION 3 Trial 6 years 6 months ago #19892

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Thanks RoH, Meg, Sven.

Edit: I had actually written something else here, but it was really just repeating information that had already been posted, and plowing ground that had already plowed.

Over dinner the totality of what this disease has done to my life hit me like a ton of bricks. Posting the photos and looking at them in context put it all in perspective. This is a brutal disease.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: LondonGirl, coral, mgalbrai, Ariel, Gaj, beaches, Greedfighter, Fara, Matt-Kenney-google, Meg, Sven

Fitz starts REDEMPTION 3 Trial 6 years 6 months ago #19904

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Yes it is. It is not until we get "the cure" that we realize how brutal it is. I had no idea that I was brain fogged, drawn down, no mental capacity to speak of....until I started this medicine. Yes my life now Is so much clearer and I can now see again where I was just planning my death. Leaving all my worldly goods to those I love. But no more, I can now see what my life can be. Even though everyone is home I must travel forward.
Yes Fitz, this is a brutal disease but we now have a choice until told otherwise by the GI which I don't anticipate.
In good health my friend
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: mgalbrai, Ariel, beaches, Greedfighter, Matt-Kenney-google, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 6 months ago #19908

Hey fitz! First of all way to go on the "good report" I'm really jazzed for you ... tx is working so far. Next thanks for the photos... I think :lol: Truly, you've experienced some of the worst of what this disease is capable of producing.
However, I see the fight in you ... what you and others have faced, what it's taken and what you've wrenched back out of its clutches ... makes me feel at once humble and at the same time proud to be a part of the "human equation" in this battle we wage against the inhumanity and insensitivity of the greed machine that is Big Pharma. In that sense, I do indeed thank you for the posts showing us the wounds you and others have, and may still suffer before this war ends. Keep on till victory is achieved my brother

:+1: #love Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: mgalbrai, beaches, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 6 months ago #20096

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Hey Fitz how's is going? I know you are still feeling excellent minus the nose issue,but that s most likely healing very well as the surgeon did an incredible job closing it with tight stitching. How are other issues coming along ? My other issues seem to be righting themselves and I took my 14 day bloods yesterday, I have a good feeling they could be good as most of my symptoms previously have gone...just like you said!
I really appreciate your encouragement to me and all who ask of it, thank you my brother.
In good health to you.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: fitz

Fitz starts REDEMPTION 3 Trial 6 years 6 months ago #20097

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Hey Sven! Its going really well in fact. Energy is great, and side effects are less and less. I've been easing back into a more regular work schedule, and for the first time in recent memory find that I actually have the energy to stay with it as long as I want to. Just a few weeks ago, my time was split between short periods of productive time, with long spells of rest (reclining actually) to gather enough energy to get through the day.

Glad to hear you are feeling so well. It gets even better, brother ;)

Matt - thank you too for your well wishes. You are an awesome guy, and so positive. I appreciate you, as I know all of our fellow travelers here do. I never cease to be amazed by the strength and depth of my friends here. This is such a unique place, with such incredible people. We're all so blessed.

8 week labs coming up in less than a week now. Will have 8 week Viral Load checked as well.

6 week results posted below:


Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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The following user(s) said Thank You: Ariel, beaches, Hieupham, Hazel, Greedfighter, Fara, Meg

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20296

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Hey Fitz - just checking in, how's it going? Are you still feeling good? I hope so and I hope the nose is doing well, the Doctor did a fantastic job of stitching it up. Anyway keep in touch brother.
Talk soon.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: mgalbrai, Hazel, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20306

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Hi Sven! Thank you for checking up on me. :)

So here's the update. Nose is doing fine. Doc says they got all the BCC with the surgery, and scar tissue has replaced the sort of scary looking incisions. It is actually looking like my own nose again, with a couple of minor 'battle' scars from the Mohs surgery. The scarring improves and blends in with time.

Just started my last bottle (28 tabs) of medication, which means I have finished 8 weeks of treatment, and now have just 4 weeks to go. Will go in for labs (bloods) tomorrow morning, which means I will have results on most of the tests by the next day (Thursday), and will receive 8 week Viral Load results early next week. Will post the viral load results when they become available.

Brain fog is completely gone at this point, and the best way I can describe what I am experiencing in terms of mental acuity would be a comparison to someone who's vision had gradually worsened considerably over time, and suddenly has a brand new pair of glasses, with 20/20 (and sometimes even 20/15) vision. The initial side effects seem to be gone, aside from retaining fluid, which is a minor thing.

So that's it, Sven. The progress you are making is amazing. I'm very excited about your progress and look forward to seeing your 4 week results when they become available!
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: LondonGirl, coral, mgalbrai, Gaj, beaches, Meg, Sven

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20307

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That's extremely good to see, Fitz.
Those DAAs are doing their job.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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The following user(s) said Thank You: mgalbrai, Ariel, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20308

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That's awesome brother.. As I read your vision example I can hear the clear mind set in your written post!
(I then used that to check my brain fog.I will say that it is at 80-85% gone with a bitstill remaining but nothing can take away from the success this far, incredible).
I get motivated by your posts I'm not alone! Keep them coming..
In good health my friend.


Note: I have a small side effect, my stomach seems to want my Gaviscon (over the counter stomach acid reducer) but I will not take it. It usually subsides when I drink my water and Gatorade, if I slack on the fluids it comes back, it is a nuisance pain. I'll write gp2u to give them that info. Other that that it is going very good I couldn't be happier.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: Hazel, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20309

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Hello Sven,

Ledipasvir absorption is helped by acid but with Gaviscon it would be ok to have it 4 hours after taking medication (medication will all be in by then) and before bed (Gaviscon will be gone by morning dose).

Unlike proton pump inhibitors and H2 blockers, Gaviscon comes on fast and wears off fast.

You should get a test for Helicobacter pylori which may be the cause and can easily be treated.
YMMV
The following user(s) said Thank You: Gaj, Meg, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20318

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Fitz I wish you the very best outcome from that last bottle you're hopping into. Looking forward to your blood results and gosh I hope that the unquantifiable comes back UND. What with a surgery in the middle of it all, you have done a great job. Hopefully you will be able to finish this course and that's that..
All the best for your forthcoming results, A #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: DrJames, LondonGirl, Gaj, beaches, Hazel, Meg, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20324

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Great to hear that things are going so well Fitz. The nose is healing, fog is lifting and the meds are hard at work in the background. Good luck with those next blood results. :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Ariel, Hazel, Fara, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20346

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Wanted to say thank you to Beaches, Sven, Dr James, Ariel, and Coral for the tremendous support and well wishes. Without FixHepC and my friends here this would be a very different and much more difficult journey.

The impact of real peer support can't be quantified in terms of of dollars and cents, but every one of us knows its true and irreplaceable value.

Haven't been around much the past few days. The thousand things I have wanted and needed to do, but that I had previously put off because I 'just wasn't feeling it', are now receiving more of my attention.

Even when I'm not posting, I am looking in on my friends and reading posts. Love you all #love

Fitz
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: LondonGirl, coral, mgalbrai, Ariel, Gaj, beaches, Hazel, Fara, Meg, Sven

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20355

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That's very true. It's the friendliness and good vibes that keep me here #love #duck #flower
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Ariel, Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 5 months ago #20565

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Just got a call with the 8 week viral load results (blood drawn 5 days ago). UNDETECTED!

YESSSS!!!

Will post lab results when I get the hard copy.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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