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cured 7 years 10 months ago #17979
Chalk up another win for Mesochem ! After 24 weeks of their well known and highly regarded sofosbuvir and ledipasvir, followed by 12 weeks of stressful waiting, my GP finally gave me a request for a VL test. The results are now to hand, and it says 'NOT DETECTED'. That is SVR12. And that is officially cured! And just as well. After the opposition and white-anting I got from my friendly local liver clinic about generics, I didn't bother to mention to them that I was treating myself with 'Chinese rat poison'. So I'm still on the waiting list for PBS treatment. I don't know what this "PBS roll out" is all about, but it certainly hasn't yet rolled as far as Adelaide. The closest I've got to PBS treatment was last March, when the liver clinic called me in for an interview and the great big specialist told me that when I got to the head of the queue he was going to treat me with 12 weeks of Harvoni and ribavirin. "But don't worry about the ribavirin" he said "It doesn't have any side effects. You only felt sick last time because of the interferon". Yeah, right. Thank dog I never have to deal with that bunch of quacks again. GT 1a cirrhosis (or not, take your pick) 2015 - failed treatment with simeprevir+inteferon+ribavirin 23 Sep 2015 started 24 weeks treatment with Mesochem's sofosbuvir+ledipasvir The following user(s) said Thank You: DrJames, Joy, LondonGirl, coral, poodle, pat1, mgalbrai, Ariel, Lynne-Francis-facebook, Tina-Hill-facebook, beaches, Hieupham, Hazel, Matt-Kenney-google, Juen, Meg, GT2, fitz, Sven | |
cured 7 years 10 months ago #17980
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! The following user(s) said Thank You: Matt-Kenney-google, Meg | |
cured 7 years 10 months ago #17982
Yay great news!! Congratulations to you! And hey too funny about not telling the health "authorities" you were going to try the Chinese rat poison! lol Ha It worked just wonderfully! wish I knew how to post a super dancing star, but here goes a happy Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) The following user(s) said Thank You: Matt-Kenney-google, fitz | |
cured 7 years 10 months ago #17983
Congratulations big time! I agree about the last line..." don't worry the ribiviron it won't make you sick"! Ya your right about staying away from those quacks! Congratulations !! Contracted HCV 1980's Geno Type 1a F3 ( doc says once treated I'll be F2 maybe F1) Meds shipped 6/17/2016 arrived early 7/2016 Viral count - 3,471,080 4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected) 8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected) 11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected December 19th 2016: Cured! Viral count: zero!!! 2018 viral count: still zero! Cured! The following user(s) said Thank You: Matt-Kenney-google, fitz | |
cured 7 years 10 months ago #17984
Congrats!!! This email address is being protected from spambots. You need JavaScript enabled to view it. Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James The following user(s) said Thank You: Matt-Kenney-google, fitz | |
cured 7 years 10 months ago #17988
Fantastic news PKQ! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: fitz | |
cured 7 years 10 months ago #17989
Freakin AWESOME!! Congratulations and yew! You are the first person I have heard speaking from Adelaide I have friends over there who are still waiting on PBS! Treat now yes! Congrats again fabulous news from SA BIG happies from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: Matt-Kenney-google, fitz | |
cured 7 years 10 months ago #17991
Unreal Great News Lets hope for many more First diagnosed Nov 2012 with Hep C 1a End Liver disease Failed peg and Sof/dac Given 18 mths to live Aug 2014 Failed sof/dac July 2015 Sep 2015 given till March 2016 to live as nothing they can do Sourced a supply of sof/dac from India told I was a fool by staff at SCGH Been in a coma twice 2016 6 stays in Hospital Last 4 weeks have been unreal back into life again Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton Barry Ashton The following user(s) said Thank You: Gaj | |
cured 7 years 10 months ago #17994
| It's ALL news to me here in the USA, I don't know Adelaide from Brisbane Shall we dance??? Thats an invitation to ALL GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
cured 7 years 10 months ago #18000
Hi PKQ Congratulations. A much deserved self- treating win against HCV with that cheap and nasty “Chinese Rat Poison” stuff. I’ve been referred to a liver clinic and they’ve told me they will schedule an appointment when they get around to it. Who knows when? So, it’s not just Adelaide with a long queue for PBS HCV DAA treatment. In the words of another forum member, Beaches, they can all go to the far queue. "Don’t worry about the Ribavirin … it doesn’t have any side effects" … is straight out medical negligence. They have a duty of care to fully inform patients of all known side effects. Ribavirin’s list of side effects is longer than Chopper Reads rap sheet. Cheers GT2 1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2 22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected 17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 | |
cured 7 years 10 months ago #18008
Happy dance for you!! This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
cured 7 years 10 months ago #18014
| Yabba Dabba DOO! SVR 24 The following user(s) said Thank You: Matt-Kenney-google |
cured 7 years 10 months ago #18016
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Fantastic - Congratulations GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
cured 7 years 10 months ago #18019
Loved your post PKQ. Massive congratulations to you. I had a very uninformed registrar trying to peddle interferon to me at a liver clinic a few months before I started taking generics. I know which one is the rat poison...... G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
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