I've been wanting to start a thread called this for years! Coral, you are so kind, so on point, always just the right note, it means so much. You have something grounding and hopeful for everyone whether worried or scared or happy and celebrating. # #
here is something lovely I saw today
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.
Aw shucks Hazel! Thanks so much for your kind words (and beautiful flower and butterfly). Thanks to Vororo and Dr James too. I like the sound of Queen Coral!
When I visited Tasmania early this year I caught up with Dr James for lunch. He also invited Greg Jefferys so there I was, trying not to behave like a fan girl, with two of my all time heroes.
Like many my Hep C story was at times a scary, secretive and lonely one. This forum not only provided me with advice and support, particularly during my relapse, but helped me to accept what was and to shed the shame. At that lunch I decided that my way of paying it forward was to continue to support people through this site.
My other more personal reason is Gaj. His impact on me and my Hep C journey is hard to explain. I like to think that I am honouring him and helping in a small way to carry on some of this genuine support of others.
You continue to inspire me Hazel with your fearless work for the cause. Your words mean a lot to me.
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24