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TOPIC: Hello Community

Hello Community 3 years 6 months ago #27245

coral
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I can see that our community forum is quiet and contemplative at the moment. Just sending out a big hello and hugs to everyone on this beautiful Sunday morning.

A big hello to you who are linking into the forum for the first time and thinking about treatment for Hep C.....come on board.....I promise you that it is the best decision you will ever make.

Hello to you who are in the middle of treatment.......hang in there and keep taking those tablets......they are working really hard for you and will get the job done.

Hello to those who, like me, have been cured through the efforts of Dr James and the FixHepC community....how fortunate are we?

Have a wonderful day.

Coral

G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...

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Hello Community 3 years 6 months ago #27246

Hazel
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Great post Coral,

I was thinking that it is a holiday weekend here, which means exam study again for me (for the last time), and it must be exactly 3 years since I was waiting for my meds to arrive.
Pretty sure I would be fertiliser by now, I was out of time, if I hadn't found FixhepC, and taken the leap- now I am well, the world is my oyster. We have seen some great stories- yours is one of them Coral!

But as far as treatment goes in NZ, some things change, some things stay the same. (nb- it says I founded a buyers club- I didn't- I found one- this!!!. They always get something wrong)
www.odt.co.nz/news/dunedin/further-hepat...V7Y7YF8P5c-maF5Vf4iY

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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Hello Community 3 years 6 months ago #27249

coral
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You are such a consistent voice for HepC in NZ media (and therefore elsewhere) Hazel.

Good luck for your exams - you must be ready to celebrate the end of that marathon (and your liver won't mind!).

G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...

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The following user(s) said Thank You: DrJames, Hazel, hanknassi, Mar

Hello Community 3 years 6 months ago #27253

Hazel
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Cheers.
An update on that NZ story, and I think it shows how important media pressure is.
I know that many people, senior doctors and organisations have asked Pharmac for more info, and a rough timeline of when Maviret will be available, having really raised expectations about Oct 1. Prof Gane told a conference recently he expected by Christmas. No answer from the govt.... but a couple of days after calling them cruel in a headline got their legal/comms dept busy and they came up with another response to the whole sector- not until next year, no idea when.
This ..... does not meet with my approval, to put it politely.
www.odt.co.nz/news/national/hep-c-drug-d...n3n811AqcrHVkY1HxoLo

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

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Hello Community 3 years 6 months ago #27254

Mar Offline Administrator Posts: 287 Thank you received: 765 Karma: 11	Nice job Hazel, keep piling up the pressure
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Hello Community 3 years 6 months ago #27255

Greedfighter
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Great post Coral!

You're right, we are all extremely fortunate to have been cured by Dr. James.

Keep up the pressure Hazel!

You're doing an incredible job. Great advice telling people that can afford it, to get generics. I would think virtually everyone that's able to work can afford it at this point.

Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20

Last Edit: 3 years 6 months ago by Greedfighter.

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The following user(s) said Thank You: DrJames, coral, Hazel, hanknassi, Mar