emo Who here has meds/access and isn't treating?

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6 years 6 months ago #3822

I'm no doctor, but Dr. Freeman IS...and he knows and the others who have gone out and obtained these generic meds and become svr free know...this stuff WORKS! Now....I've only been on it for 4 weeks, and i'm going to go get my tests this next week (hopefully) and I'll let you all know how they come out, but I can tell you, for what its worth, I FEEL better, I have NO SIDE EFFECTS from the meds (other than some weird dreams and insomnia) My meds were generic daclatasvir and sofosbuvir, and if there's anybody out there on the fence about this, damnit, i say please quit screwing around with your LIFE and FIX yourself NOW, if you can buy the meds at these relatively affordable prices.

I was denied by my " first world" USA insurance company that told me to go away get some cirrhosis and then come back so they could reconsider and maybe possibly allow me to be treated,if they felt I was worthy, despite the fact that I already PAY those mofos thousands a year for my "insurance". Nobody knows how this disease progresses or at what rate the thousands or millions of hepc bugs inside you chew up your innards. You could wake up with some godawful condition from it tomorrow that "nobody could have predicted".

Dont' wait for some schlub in a bureaucracy to decide your fate, if you can get cured now, get well and have a Merry Christmas or whatever other significant holiday you share with your family. Just DO IT!! NOW!!!

Best wishes to all..
yours, 2B


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

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  • Life
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  • Geno 3, started TX 15th october 2015. Mesochem
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6 years 6 months ago #3828

Way to go 2b, :woohoo: :woohoo: :woohoo: :woohoo: :woohoo: :woohoo: :woohoo: :woohoo:2b wrote:

I'm no doctor, but Dr. Freeman IS...and he knows and the others who have gone out and obtained these generic meds and become svr free know...this stuff WORKS! Now....I've only been on it for 4 weeks, and i'm going to go get my tests this next week (hopefully) and I'll let you all know how they come out, but I can tell you, for what its worth, I FEEL better, I have NO SIDE EFFECTS from the meds (other than some weird dreams and insomnia) My meds were generic daclatasvir and sofosbuvir, and if there's anybody out there on the fence about this, damnit, i say please quit screwing around with your LIFE and FIX yourself NOW, if you can buy the meds at these relatively affordable prices.

I was denied by my " first world" USA insurance company that told me to go away get some cirrhosis and then come back so they could reconsider and maybe possibly allow me to be treated,if they felt I was worthy, despite the fact that I already PAY those mofos thousands a year for my "insurance". Nobody knows how this disease progresses or at what rate the thousands or millions of hepc bugs inside you chew up your innards. You could wake up with some godawful condition from it tomorrow that "nobody could have predicted".

Dont' wait for some schlub in a bureaucracy to decide your fate, if you can get cured now, get well and have a Merry Christmas or whatever other significant holiday you share with your family. Just DO IT!! NOW!!!

Best wishes to all..
yours, 2B

Last Edit: 6 years 6 months ago by Life.

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6 years 6 months ago #3854

"Dont' wait for some schlub in a bureaucracy to decide your fate"

He he - Nicely put :cheer:


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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6 years 6 months ago #3859

Just say want you mean and quit beating around the bush!!!
I love the enthusiasm!
You are definitely "on the mend"!

If anyone is reading this from the U.S. and needs help falling on the "right" side of the fence, give me a shout.
Mike


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 6 years 6 months ago by mgalbrai. Reason: Tupo

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6 years 6 months ago #3860

Well said 2b. I am nearly 3 weeks in with Sofusbuvir and Ledispasvir and have had the same side effects as you - very minimal. One of the best things for me is having control over this rather than it continuing to control me. I know a couple of people who I am trying to encourage across the line knowing that it is such a personal decision. Some still think it's too good to be true and I tell them that is true and it is definately very very good.

Coral


G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...

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6 years 6 months ago #3870

Well said 2b. Given my current run-around with those 'schlubs' :angry:
Glad you're doing great :)


QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H

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6 years 6 months ago #3874

Glad I read your post, my dreams have been pretty crazy. I'm 1 week in sof/led and have minimal side effects. The second day my ears were ringing for about a minute, not too bad. I have been feeling fatigued and I have slept a little more than usual. I have still been working out for 30 minutes a day on the elliptical so that is helping with the fatigue. Good luck!

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6 years 6 months ago #3876

Guess I just had to get that rant out! I do get riled up at the "schlubs" screwing with people's lives, I decided to look up that word and found this, look at the next to last line, it seems I could have used an even better synonym for schlub that it says the Australians use: "RATBAG??" wow, I like that one better, "don't wait for some RATBAG to determine your fate".

Do you Aussie mates really use that term? I'm going to start using it in the US with reference to some of these "chowderheads, dorks, chuckleheads, meatheads, sapheads, clodpolls" and the rest of the RATBAGS!


Related to SCHLUB
Synonyms
airhead, birdbrain, blockhead, bonehead, bubblehead, chowderhead, chucklehead, clodpoll (or clodpole), clot [British], cluck, clunk, cretin, cuddy (or cuddie) [British dialect], deadhead, dim bulb [slang], dimwit, dip, dodo, dolt, donkey, doofus [slang], dope, dork [slang], dullard, dumbbell, dumbhead, dum-dum, dummkopf, dummy, dunce, dunderhead, fathead, gander, golem, goof, goon, half-wit, hammerhead, hardhead, ignoramus, imbecile, jackass, know-nothing, knucklehead, lamebrain, loggerhead [chiefly dialect], loon, lump, lunkhead, meathead, mome [archaic], moron, mug [chiefly British], mutt, natural, nimrod [slang], nincompoop, ninny, ninnyhammer, nit [chiefly British], nitwit, noddy, noodle, numskull (or numbskull), oaf, pinhead, prat [British) ratbag [chiefly Australian], saphead, idiot (also shlub) [slang], schnook [slang], simpleton, stock, stupe, stupid, thickhead, turkey, woodenhead, yahoo, yo-yo


GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
Last Edit: 6 years 6 months ago by 2b. Reason: typo
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6 years 6 months ago #3879

As it happens, one of our US comrades who is currently here for treatment has asked me to teach her some of the local lingo when we go on a jaunt up the coast next week. So........

It makes me want to spit the dummy when these dipsticks, drongos, drop kicks, galahs and mongrels come the raw prawn with us.

They're as useful as tits on a bull.

Bunch of wowsers the lot of them.

The drugs will be available any day now? Pig's arse!

If they tell you to wait, tell 'em they're dreamin'.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: Chejai

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6 years 6 months ago #3880

Hi 2b,

We do indeed use the term, the problem is that it's meaning (like so much Aussie slang) can depend on tone and context.

Examples:

"What a ratbag!" - Referring to someone who is using their petty authority to stop you from doing something.

"You old ratbag!" - Term of endearment for someone who has just sidestepped, usually with great style, an attempt to apply petty authority.

Yes.......in your case you have used it in the correct manner in your sentence.

:lol:

G


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

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6 years 6 months ago #3884

Yep, nuance is everything in our peculiar dialect, as GAJ says. For instance there are probably at least 200 different ways to say "mate" which can have widely varying inferences depending on the inflection :) Lol


GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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6 years 6 months ago #3885

But especially useful when you can't remember someone's name. Or, in my case, usually their face either.

"G'day mate. Yeah good to see you too mate. Okay, catch ya later mate."

(Walk off thinking to myself "who the hell was that?")

Mate. The brain foggers friend.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: Gaj, zhuk

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  • SShady43
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  • GT 2a /F2. Tx with Sof/Riba in 2015. Und at 4wks. Relapsed .
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6 years 6 months ago #3888

Hi 2b,
I have my meds Sof/Dac (24 weeks worth) from Mesochem. Waiting for my funnel from Torpac which should be here shortly. Am anxious/excited, and ready to build pills and start treatment. Just got snubbed by my "new" Gastro doc, who chuckled and made a snide comment about poison dog food from China when I asked him to supervise my labs during treatment. So I have made an appt with another heptologist, and also an appt with a GP in December. Have
also written a letter to another doc who told me last year that she lost her husband to this disease. I have jumped off the fence, have meds in hand, and can't find a damn doctor one who will take me seriously and monitor my labs during treatment. I want to do this, but am fairly scared to do this on my own. I'm not as worried about testing the meds; I'm fairly confident they are the real deal, just based on what I've read on this site about Mesochem and testing done by Dr Freeman. Hoping I can find a progressive thinking doctor very soon!!


2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.

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  • SShady43
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  • GT 2a /F2. Tx with Sof/Riba in 2015. Und at 4wks. Relapsed .
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6 years 6 months ago #3890

So sorry; this was supposed to be tagged onto 2b's post on the first page.


2A/F2. 12 weeks Sof & Riba in 2015. Undetected at 4 wks. Relapsed. Treated w/24 weeks Sof/Riba/Dac 2016.
June 2017/ 24 weeks UND.

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6 years 6 months ago #3924

Hey SS,
Your old buddy here!
Have you tried to set up an appointment using GP2U with Dr. Freeman. The lab result monitoring is really all that is usually needed with these new meds. All you would need to do is get your GP to order them done. My PCP is doing that and I am sending my lab results to my GI several hundred miles away.
Call those Torpac people tell them get their ass moving or are starting to like the taste??

Happy for You!

Mike


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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: SShady43

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