|
Welcome,
Guest
|
TOPIC:
Ariel takes the Plunge 6 years 11 months ago #17023
|
Beautiful results Ariel. Mermaids rule............
  G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
|
Ariel takes the Plunge 6 years 11 months ago #17042
|
Who dat be splashin' her "Awesome Aussie" ALT < 9 self all over us ??
Keep it up A, we're lovin' it  
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Ariel takes the Plunge 6 years 11 months ago #17291
I love this pic, especially made for you Ariel, thanks for pumping up the great vides over and over again... Congrats on all the great news! Keep on singing your songs! Love from life |
|
Ariel takes the Plunge 6 years 11 months ago #17292
|
Thankyou all for your awesome kindness to me
Being part of the FixHepC family is a privilege It's more than SVR8 and my forthcoming SVR12 (flippers crossed); here, there are people who have been there since my crappy peginf riba, during my re-emerging from surgeries and illness from that disasters legacy and who led me to this safe place, there are new friends with similar stories, new friends who are tx naive and full of loving kindness to me and to all peginf relapsers and really let me know how much they're backing me this time. There are friends who make me laugh, friends I have now met for coffees, who have enriched my life with their own story of surviving and fighting. There are other mums who relate to the worrying about our grown up children after what's been in our lives, there are dads trying to hold it together during tx, there are friends who even knew some of the same crowd from younger times. There's a voice on the end of the phone "hello you have rung FixHepC...." Into ten weeks since EOT and I am very thankful indeed for this and all the support in research here in discussion on sx etc and all these excellent resources for lobbying and personal help and for my GP too. Have a great day Ariel  Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
|
Ariel takes the Plunge 6 years 11 months ago #17293
|
Hey A, you've touched us in all the same ways you just listed. Thank YOU!
splashitty- splash!Matt GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! |
Ariel takes the Plunge 6 years 11 months ago #17299
|
Just caught up with this ! Hooray !!!!!
  GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Ariel takes the Plunge 6 years 11 months ago #17304
|
Hi Ariel
That was a nice summary of what this forum is for … support for HCV sufferers going through HCV treatment. I don’t know how the TGA bureaucrats can honestly justify their actions with their conscience. Would they do the same thing if they, or a member of their immediate family, were suffering from HCV and couldn’t get timely treatment? Probably. They are not trained to think outside the square … they think in black and white … there’s no shades of grey … and they are being directed by others above … they’ve got a mortgage to pay. The buck stops with Susan Ley, the Minister for Health. Would things be different if there were a change in government on 2 July 2016. Only one way to find out! 
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve) 10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India 09/05/16: ALT 34, VL: NOT Detected , FBG 11.9  17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72 (Accu-Chek Mobile & Omron Auto BP Monitor) |
|
Ariel takes the Plunge 6 years 11 months ago #17307
|
Hi Ariel
Reading your post brought tears to my eyes, I'm crying!  Everything you say is so true. We are part of a family. Living with HCV is something that is so difficult to describe in words. It seems that we all experience different symptoms and also different Sx. HepC is insidious in its potency and so this is a very personal journey shared with those who really care. Yes we are all mums, dads and friends together and I can only applaud James' work and include the fixhepc team with my heartfelt thanks to you all. gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc |
|
Ariel takes the Plunge 6 years 11 months ago #17379
|
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
|
Ariel takes the Plunge 6 years 11 months ago #17380
Mike did you tell him that no, I do not want Andrews cell phone number?????  Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
|
Ariel takes the Plunge 6 years 11 months ago #17506
|
GP consult this morning was fab again I have such an awesome doc we checked the thrush and blood sugars etc
However we also wrote my path request for forthcoming SVR12 yay! I thought I would post a screenshot of my SVR8 so any new friends can see how exciting it looks when you get it in print Happy times Splashing Beaches today especially because its her EOT YEW!!! Here's my results from last bloods: 
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
|
Ariel takes the Plunge 6 years 11 months ago #17507
|
Well done, Ariel!
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! |
|
Time to create page: 0.699 seconds
