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TOPIC: Ariel takes the Plunge
Ariel takes the Plunge 1 year 7 months ago #6586
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Well the day is almost here my meds arrive shortly thank you to those who have affirmed this choice to take my own life into my own hands and with the fantastic work by James and his team here, the vibe, the understanding of the anxiety of a relapser, I feel like I have landed in the right place..not much support out here in the wilds so I will defs blog my tx story, I hope to inspire others to take this important decision. I am Gen 1a, have a low viral load, F0 so a good little liver still in the ol bod, had a rotten time on intfn/ribva, like many so let's not go there done and dusted and all....I am starting this today seeing it is New year. Already feeling the love here. Love without boundaries is my phrase for the New Year. I hope to achieve my SVR and to be free as a result. Love ya all! cannot wait to post my first update into tx and thanks again to the FixHepC peeps for this all of it.
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Gen 1a
Peg/inf/riba 2012(!?!) stopped at Week 43 due to potassium level ext. low plus other issues (relapse at week 4 post tx, VL120,000) many secondary niggles eg. adenomas. pre sof/led VL 240,000 Fibrosc F0 Day 25 VL <30 Day 32 UND Week 10 UND EOT UND ALT 11 AST 17 GGT 19 SVR4 UND ALT 10 AST 16 GGT 13 SVR8 UND ALT <9 AST 16 GGT 15 SVR12 UND ALT 14 AST 19 GGT 12 Bili 5 EOT +18 ALT13 AST 20 GGT 9 Bili 5 EOT +21 ALT 11 AST 15 Cured at SVR12 Dysplasia Adenoma removed Aug '16 SVR24 UND ALT 11 AST16 |
Ariel takes the Plunge 1 year 7 months ago #6588
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There is no such thing as failure.
There is only low aim.  Props for being your own messiah and saving yourself. Wishing you all the best, Ariel. |
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Huon Valley, Tasmania
Hep C+ since 1980s Genotype 1b F3/4 VL 480,000 Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015 UND at 4 weeks Finished treatment 19 November 2015 12 February 2016 UND SVR12 |
Ariel takes the Plunge 1 year 7 months ago #6589
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Great stuff, Ariel...congrats on making the decision to get proactive and take your treatment into your own hands.
Looks like we will be tag-teaming on this huh. I am GT1a as well and like you (both fortunately and amazingly enough), have managed to stay at F0 over the years...and despite the new good news re the PBS I think those in relative good health like us will be down the public queue. All the more reason to act to shoot for SVR before our status worsens, IMO! Strangely enough I also have PTSD, will be interesting to see if the hep had any influence on that as tx progresses. Look forward to following your progress  |
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GT1a since 1988, diagnosed 1990
F0, tx naive VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9 Started Mesochem sof/dac 12 weeks 01/01/2016 11/02/2016 - 6 weeks UNDETECTED AST 26 ALT 26 |
Ariel takes the Plunge 1 year 7 months ago #6590
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Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! |
Ariel takes the Plunge 1 year 7 months ago #6599
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J the young dragon slayer is:
HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! |
Ariel takes the Plunge 1 year 7 months ago #6601
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Two time relapser.
SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV |
Ariel takes the Plunge 1 year 7 months ago #6621
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One blessing regarding this horrible situation we find ourselves in, is the wonderful people we meet along the path
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GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Ariel takes the Plunge 1 year 7 months ago #6630
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Hi Ariel the mermaid
 and welcome,Wish you good luck and let us know your journey! With these new medicines it will be an easy one.  |
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HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. |
Ariel takes the Plunge 1 year 7 months ago #6632
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Hi London Girl, You are almost there, beginnig of the treatment.
I am sure it will be an easy one for you too. The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat!  |
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HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive, started 12 wks Twinvir on 06.12.2015. Feeling great and grateful virus not detected 06.02.2016 & SVR24 This email address is being protected from spambots. You need JavaScript enabled to view it. |
Ariel takes the Plunge 1 year 7 months ago #6640
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hi Ariel, just wanted to wish you all the best & symptoms-free tx,
What a fantastic way to start New Year, the year to get out of hcv prison & be free for so many here. I too was a relapser on the old tx, please don't forget that it was the old toxic tx that has failed us, not the other way round, we did not fail, we fought the battle as advised. The new DAA tx is just not comparable with the old tx & with hardly any fibrosis at all, you'll be fine, Congratulations of taking charge of your own health & life, |
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Geno 3, Fibro 8.7 pKA, tx experinced in 2005 - Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac. 5 weeks result all normal, ALT 18 - down from ALT 73 at the start of tx. 5 weeks HCV PCR RNA - UND. - down from 2 ML 9 weeks HCV PCR RNA - UND. |
Ariel takes the Plunge 1 year 7 months ago #6642
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This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 |
Ariel takes the Plunge 1 year 7 months ago #6643
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Ariel - Good Luck!
Lots of support here! Debs X |
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Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16 Starting VL 490,000 At 16 days in <15 4 week results: UND 8 week results: UND 5 weeks EOT alt 25 SVR 15 - Not Detected 6 months EOT - Not Detected |
Ariel takes the Plunge 1 year 7 months ago #6668
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isaing4 wrote:
Hi London Girl, You are almost there, beginnig of the treatment. I am sure it will be an easy one for you too. The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat! Well I can't wait to add a few kgs to this carcas That said I do have other pals who are battling a weight gain whilst beating Hep so I hear you Somehow I lost half my reply because I was writing from my iphone not my laptop, isaing4, but you have made me feel really happy with your posts about sx on the new drugs xo |
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Gen 1a
Peg/inf/riba 2012(!?!) stopped at Week 43 due to potassium level ext. low plus other issues (relapse at week 4 post tx, VL120,000) many secondary niggles eg. adenomas. pre sof/led VL 240,000 Fibrosc F0 Day 25 VL <30 Day 32 UND Week 10 UND EOT UND ALT 11 AST 17 GGT 19 SVR4 UND ALT 10 AST 16 GGT 13 SVR8 UND ALT <9 AST 16 GGT 15 SVR12 UND ALT 14 AST 19 GGT 12 Bili 5 EOT +18 ALT13 AST 20 GGT 9 Bili 5 EOT +21 ALT 11 AST 15 Cured at SVR12 Dysplasia Adenoma removed Aug '16 SVR24 UND ALT 11 AST16 |
Ariel takes the Plunge 1 year 7 months ago #7575
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Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Ariel takes the Plunge 1 year 7 months ago #7592
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Good Luck on your journey Ariel
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QLD Australia ☀️
G3a HCV 35 yrs Tx naive Started Sof/Dac 13/01/16 Dec '15 AST 70 ALT 89 GGT 124 Fibroscore 8.5 F1-F2 13 Feb'16 VL UND  AST 24 ALT 26 GGT 50H |
