TOPIC:

Yes, its time to get back to living, or. as Mark Twain said:
"Practice everything in moderation, including moderation..."
My kind of guy!
M

Thanks for the lurve friends,

My eyes this morning are pretty blurry

I must say the best thing is I realised......for ever and ever, as long as I have a memory I have been having tiny 'blackouts' when I go surfing...they have definitely gone. (I didn't know this until now..lightbulb moment)

LG I was playing keys the other day and my clarity is improved too there and that is my wobbly third leg workwise... so that is a good sign too.

Thankyou all for the props it helps me immensely feeling the collective spirit. Thankyou for the advice and recounting of dealing with these medicos and staff who are less than charitable.... I didn't say this earlier on, but my Public Hosp. specialist made me switch from Mesochem to Indian...

Blue Book has been purchased...well it is aqua. And large.

I just am so pleased to be getting better...well I guess I am haha! Bloods at week four. Day 20 today so tomorrow is my 21st Birthday...YAY let's eat cake

Fantastic Ariel !!

However, you torture me with photos of beautiful sunny beaches

Love that you have a BIG BLUE BOOK !!

and now your brain has returned, you can use it well

BIG to you

LG I see it is a toasty 7 Celsius in London! ARGGGHHHH!

Yes Blue Book LOVE IT

Positively roasting today - Grey, raining and a whopping 13 % !
Still warmer than most winters we've ever had! I don't believe winter has yet come ...
Unfortunately.

Wow, Ariel this is fantastic! You really sound like you're improving and feeling good
I wish I felt the same. I noticed you mentioned the 'blurry vision', I have this too (I wear glasses, can't remember script), it's been worse on Tx though. Is this a sx? I must look through the site to see if it's mentioned.

So, happy for you getting back on track with life

Thankyou so much Chejai x
My vision is blurry more than usual yes and sore eyes I think that sun has done this
I read other people's posts about sun sensitivity
I have never had dark urine. Has a bit.
Wondering if that's to be expected too can anyone help share some experience please
Thanks all
Splashes,
Ariel

Hi Ariel, May be worth popping dow to GP to see if you have a urine infection? When are your bloods due? Maybe check your kidney function just in case? Drink plenty of water to help disperse all those toxins . Are you getting hot at night? I have bad dreams when too hot and get dehydrated

Thanks heaps LG
Couldn't be a bladder infection no, I can't feel anything like that niggle, and my kidney function was okay the week prior to beginning tx

I'm drinking so much water I swear I could have filled a small pond by now Day 22
Maybe this darker colour plus the migraine back is dehydration?
I have had a kidney lithotripsy last year so I know it's not stones that really hurts. I do have two small cysts one 4cm on one kidney and one 1.5 cm in the other since peg/inf just like the stones.

Probably just a messy few days

Ariel

Hi Ariel,

Looking around other forums, it seems blurry vision is a fairly common side that seems to resolve after treatment. I've noticed in myself that vision including sore eyes is also effected by a number of other things related to general health including stress and dehydration so it could be that too.

You mention the night terrors so I'm wondering if you are dehydrating overnight which could also explain the dark urine so drink plenty of water but if it doesn't clear quickly then LG's suggestion to pop down to the GP sounds like good advice. I doubt it is the Tx but maybe something else that you can nip in the bud?

Usual disclaimers about my non medical advice.

I see you posted while I was browsing the net before posting. If dehydration I would expect urine to clear within a few hours to overnight of copious water. I define sufficient water as being just this side of really annoying in the frequency you have to pee.

Thabks Gaj
Yep up the water defs
Gosh my next sx will be growing a hump.
But seriously I just googled and read on a different forum a few had slightly darker urine too at times
I'm almost ready for the 4 week bloods.
If no improvement tomorrow or if it worsens I will pop in to see my GP or even urologist.
All loving non medical and medical assistance greatly appreciated
Splashes
Ariel

Seems better today

Hi Ariel,

Glad you are doing so well on tx, have had a quick catch up of your thread.
Thanks for your lovely post on mine!
Good to hear you are so positive in yourself and your skin is feeling better and your hair is feeling softer I love your beach pictures by the way - what a lovely area to live in
I am also near the beach, love it, but being the north of England let's just say it is a bit more "brrrrracing"at the minute!
All the best for your 4 week bloods
Lots of love,
Debs xxxx


Ps. I was surprised to randomly have dark urine this morning, but have drank lots of water and it seems o.k. now.