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Countdown begins for the Magpie 8 years 3 months ago #9322
Today there was a parcel in my letterbox, it was the ribavirin! I was surprised that I didn't get notified that it was coming. Won't be long to wait now for the others I guess. Can anyone tell me if dose instructions are included in the Sofosbuvir and Ledipasvir package when it arrives? EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9325
| I take one capsule of each a night (Led/Sof)......(I'm not on Riba) good luck with your treatment.... Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: magpie |
Countdown begins for the Magpie 8 years 3 months ago #9329
Hi Magpie, The dosing should be on the containers similar to any other pharmacy supplied medication. The Sof and Led are one each per day, with or without food, whenever best suits at approx. the same time each day. The Ribavirin is per Dr James post but take those with food, preferably with some fat content.
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9344
| Hi Magpie - Here are the Sofo/Led 'instructions' : www.gilead.com/~/media/Files/pdfs/medici...rvoni/harvoni_pi.pdf Hope your meds arrive soon? Which make are you taking? Best wishes for an easy and successful treatment GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: magpie |
Countdown begins for the Magpie 8 years 3 months ago #9345
Good luck Magpie with your tx Wishing you a good outcome Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9365
Londongirl, not sure what make it is...does that mean where the meds come from? EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9367
| Do you know the name of the medicine you are getting Magpie? Or yes, maybe where it came from? I have looked in my Hepcivir-L (made by Cipla) box and yes, there is a folded sheet of instructions in each box with the bottle . The link above is the official Gilead info. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Ariel |
Countdown begins for the Magpie 8 years 3 months ago #9370
It's called Harvoni and I think it comes from China. Thanks for the link too Londongirl EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9371
Hi Magpie, I suspect from your other posts that you have authorised the Buyers Club to source the meds on your behalf? If so then you are most likely getting generic APIs sourced from China, tested and encapsulated in Australia. So you will receive the two active ingredients used in commercial Harvoni but as two separate capsules rather than in a single premanufactured pill. Assuming the above is the case then they work just as well as branded Harvoni and the instructions that LondonGirl supplied are still valid. So very much a case of "same difference". G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Countdown begins for the Magpie 8 years 3 months ago #9476
And YAYYY!!! My second twelve weeks of treatment just showed up at the front door. Huge thanks to Dr James and all the rest of the team at FixHepC and the Buyers Club who make this all possible. Gaj G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Countdown begins for the Magpie 8 years 3 months ago #9488
Hi Gai Glad to hear the system is going smoothly for you. Yes I agree, thanks to all at the Buyers Club! Did you get a tracking number before the meds arrived? EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9502
Hi Magpie, I did, but on this occasion it arrived about 10 mins after the meds. Either public holiday or clunky Internet connection? G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9509
I just read a post about stigma and it reminded me of the last occasion I was asked if I knew how I got the virus by the gp that was writing my script for Harvoni. I replied how does my answer effect you writing my script? it didn't. I guess it's just human curiosity/noseyness. so glad when the meds come and the virus is gone.... EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9550
I love surprises! Guess what was sitting in my mailbox this morning!!!!!!!!!!!!!!! Omg so happy! Thankyou buyers club EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a The following user(s) said Thank You: Ariel | |
Countdown begins for the Magpie 8 years 3 months ago #9552
| Hooray GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: magpie |
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