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Countdown begins for the Magpie 8 years 3 months ago #9554
amazing news. get well. HCV 35 yrs G1a F3 Tx naive started Lesovir-C 15/12/2015 pre tx: VL 5,250,000 ALT 374 AST 208 FIBROSCORE 10.4 4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18 The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9556
YAYY!! For Magpie too! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9707
Day 3 Where are the joint pains, headaches, nausea, fatigue that I prepared for? Just wondering if I got the real meds.....just a small doubt here...... I hope I'm just lucky! After reading everyone else's experiences there is a range of sx and these drugs are so much better tolerated so I'll know in 26 days when I get a blood test if they were the real deal. The waiting..... EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a The following user(s) said Thank You: splitdog | |
Countdown begins for the Magpie 8 years 3 months ago #9721
Much the same thoughts I had at the start Magpie, though my GP ran week 2 LFTs that gave me confidence that something was happening. This are nothing like the bad old days, you will find the Riba takes a couple of weeks to kick in but if you tolerated it okay previously then it shouldn't be too bad. I can see my haemo, etc. results dropping and notice the 'drag' but am nowhere near anaemic and still have far more energy than pretreatment. So kick back, relax and be grateful you seem to have minimum sides. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #9850
Thanks Gaj Day 5 today, fatigued, sore joints and headache.....I think those viruses are dying! EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #9860
Ahh....okay. Keep up the fluids, helps flush out all those slaughtered viruses. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #10100
I read that the first week was the worst for sides but I wasn't prepared for the incredible difference between day 6 and 7. I almost feel good! just a little headache that waves in and out. Today is day 8 and Ive been to the gym, done some gardening and now about to do some physical work. Just waiting for reply from registra on the result of my pretreatment viral load. EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #10127
Great news! I hope it keeps up. I felt great for the first month or so and now in week 8, I am feeling kind of knocked out from (i hope) the meds. Today is starting off good however and whatever I have now is nowhere near as bad as what I felt b4 I started tx... HCV 35 yrs G1a F3 Tx naive started Lesovir-C 15/12/2015 pre tx: VL 5,250,000 ALT 374 AST 208 FIBROSCORE 10.4 4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18 The following user(s) said Thank You: magpie | |
Countdown begins for the Magpie 8 years 3 months ago #10142
thankyou kenbasman be kind to yourself today, your body have been through a lot And your on the home stretch now! EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #10143
Can anyone tell me if itchy skin is a side effect of these drugs? and 2 days ago I was working in the garden and have a few itchy red lumps- ?bites I'm thinking just bites but wanted to ask the brains trust. many thanks EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a The following user(s) said Thank You: Ariel | |
Countdown begins for the Magpie 8 years 3 months ago #10148
I did riba with peg/inf in 2012 and yes I got a significant rash I don't know how riba combined with DAAs manifests in sx However the "riba rash" was a very common sx on that old protocol I suspect the itchy spots may be riba Ask a doctor for this to be confirmed it progressed as tx went on with me and I used various things to soothe it However I don't want to worry you so ask a doc xxxxxx Hoping you get relief Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Countdown begins for the Magpie 8 years 3 months ago #10157
Yes, itchy skin can be a side effect, with or without a rash. For people taking riba, sun exposure is not a good idea. I got nightmare full body riba rash with the old interferon tx. With the DAAs it was not bad at all, just an odd spot here and there. The rash can look like bites, for example on your arms. That kind looks like pinprick red spots, especially after sun exposure. Other places it can look like your skin got scalded, or sometimes like the veins just under your skin turned angry pink. Actually, the "rash from hell" was my worst fear when I started this round of the DAA's + riba but I am happy to say that without interferon it did not come to anything that had me worried. dt | |
Countdown begins for the Magpie 8 years 3 months ago #10174
Riba does cause skin issues, itchy, dry, rashes and lumps, etc. and insect bites also seem to be worse on it too. If it is just a few lumps and not causing problems I would monitor for now and see how they go but if you are concerned or a serious rash develops or spreads then seek medical advice. Unscented/coloured, pH balanced moisturisers (I use plain sorbolene) seem to help a bit. BTW my ears are dry and flaky this week. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: Ariel | |
Countdown begins for the Magpie 8 years 3 months ago #10176
Sorry to hear about your flaky ears Gaj Thanks for the response- I was thinking I should start using some moisturiser like sorbolene. EOT UNDETECTED Week 8 all bloods within normal limits Week 4 Undetected 2016 - 28 January started Harvoni & Riba treatment VL pretreatment 639,000 alt- 77 2015 fibroscan - 6.6 2 x non responder peg interferon & riba geno 1a | |
Countdown begins for the Magpie 8 years 3 months ago #10188
Hi Magpie Just chirping in with this topic again Re washes and moisturiser I used Dermaveen for riba rash pH 5.5 wash Shower and Bath oil after They come in a pump pack and helped me Basically the doc had to lower my riba dose it was too angry like weeping sores (peg/inf) but these were the most gentle and soothing products Moo Goo is a range worth trying too I used their cream Hope this helps Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
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