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Countdown begins for the Magpie 6 years 10 months ago #9554

amazing news. get well.
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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Countdown begins for the Magpie 6 years 10 months ago #9556

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YAYY!! For Magpie too! :+1: :+1: :+1:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 9 months ago #9707

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Day 3
Where are the joint pains, headaches, nausea, fatigue that I prepared for?
Just wondering if I got the real meds.....just a small doubt here......
I hope I'm just lucky!
After reading everyone else's experiences there is a range of sx and these drugs are so much better tolerated so I'll know in 26 days when I get a blood test if they were the real deal.
The waiting.....
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 9 months ago #9721

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Much the same thoughts I had at the start Magpie, though my GP ran week 2 LFTs that gave me confidence that something was happening. This are nothing like the bad old days, you will find the Riba takes a couple of weeks to kick in but if you tolerated it okay previously then it shouldn't be too bad. I can see my haemo, etc. results dropping and notice the 'drag' but am nowhere near anaemic and still have far more energy than pretreatment.

So kick back, relax and be grateful you seem to have minimum sides. :cheer:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 9 months ago #9850

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Thanks Gaj
Day 5 today, fatigued, sore joints and headache.....I think those viruses are dying!
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 9 months ago #9860

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Ahh....okay. :S

Keep up the fluids, helps flush out all those slaughtered viruses. :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 9 months ago #10100

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I read that the first week was the worst for sides but I wasn't prepared for the incredible difference between day 6 and 7. I almost feel good! just a little headache that waves in and out.

Today is day 8 and Ive been to the gym, done some gardening and now about to do some physical work. :+1: Maybe they are all dead!

Just waiting for reply from registra on the result of my pretreatment viral load.
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 9 months ago #10127

Great news! I hope it keeps up. I felt great for the first month or so and now in week 8, I am feeling kind of knocked out from (i hope) the meds. Today is starting off good however and whatever I have now is nowhere near as bad as what I felt b4 I started tx...
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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Countdown begins for the Magpie 6 years 9 months ago #10142

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thankyou kenbasman
be kind to yourself today, your body have been through a lot

And your on the home stretch now!
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 9 months ago #10143

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Can anyone tell me if itchy skin is a side effect of these drugs?
and 2 days ago
I was working in the garden and have a few itchy red lumps- ?bites
I'm thinking just bites but wanted to ask the brains trust.
many thanks
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 9 months ago #10148

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I did riba with peg/inf in 2012 and yes I got a significant rash
I don't know how riba combined with DAAs manifests in sx
However the "riba rash" was a very common sx on that old protocol
I suspect the itchy spots may be riba
Ask a doctor for this to be confirmed it progressed as tx went on with me and I used various things to soothe it
However I don't want to worry you so ask a doc xxxxxx
Hoping you get relief
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

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Countdown begins for the Magpie 6 years 9 months ago #10157

Yes, itchy skin can be a side effect, with or without a rash.
For people taking riba, sun exposure is not a good idea.

I got nightmare full body riba rash with the old interferon tx. With the DAAs it was not bad at all, just an odd spot here and there.
The rash can look like bites, for example on your arms. That kind looks like pinprick red spots, especially after sun exposure. Other places it can look like your skin got scalded, or sometimes like the veins just under your skin turned angry pink.

Actually, the "rash from hell" was my worst fear when I started this round of the DAA's + riba but I am happy to say that without interferon it did not come to anything that had me worried.

dt
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Last edit: by dointime.

Countdown begins for the Magpie 6 years 9 months ago #10174

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Riba does cause skin issues, itchy, dry, rashes and lumps, etc. and insect bites also seem to be worse on it too. If it is just a few lumps and not causing problems I would monitor for now and see how they go but if you are concerned or a serious rash develops or spreads then seek medical advice. Unscented/coloured, pH balanced moisturisers (I use plain sorbolene) seem to help a bit.

BTW my ears are dry and flaky this week. :unsure:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 9 months ago #10176

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Sorry to hear about your flaky ears Gaj :(
Thanks for the response- I was thinking I should start using some moisturiser like sorbolene.
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 9 months ago #10188

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Hi Magpie
Just chirping in with this topic again
Re washes and moisturiser
I used Dermaveen for riba rash
pH 5.5 wash
Shower and Bath oil after
They come in a pump pack and helped me
Basically the doc had to lower my riba dose it was too angry like weeping sores (peg/inf) but these were the most gentle and soothing products
Moo Goo is a range worth trying too I used their cream
Hope this helps
Ariel #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

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