Welcome, Guest |
TOPIC:
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15731
It sure is! Feels like the FixHepC bandwagon is on a roll to health and new beginnings The following user(s) said Thank You: Ariel, Matt-Kenney-google | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15744
Thank you Beaches for your post. It is so great to read that people get so much better after few days on tx. I am about to order the meds once I get my lab work results and a medical prescription for Generic Harvoni. Where did you get your meds from? Australia or India? And what brand? For some reason I like the name HepcvirL Blood transfusion in 1992 - Diagnosed in 2007 Tx naive -G1b - F1 VL 2.270.000 ALT 40 Start tx June 4th/2016 with DAAs - Sof/Led from India Bloods on two weeks of tx (June 18th) AST 17 - ALT 10 - GGT 19 Virus UND Bloods on six weeks of tx (July 16th) AST 17 - ALT 8 - GGT 12 Virus UND EOT on August 8th (did 9 weeks and 3 days) SVR 4 Virus UND (September 7th) AST 13 - ALT 5 SVR 14 Virus UND (November 12th) | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15745
Hi Meg, Thanks for your comment and good wishes I am on the Greediad branded (i.e. not generic) Harvoni. I was all set to go down the generic path but when I told the doc at RPA in Sydney they said don't do that we will put you on the branded stuff as soon as it comes onto the PBS (Pharmaceutical Benefits Scheme in case you are not in Australia) I don't know the GP2U process but I'd guess if you got your meds through them you would be guided by their recommendations. Go for it you will never look back Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15746
Hi Meg, There are a lot of good options. Sometimes the country in which you live makes the choice easier. Sometimes the price, but not so much difference in that regard all things considered. A prescription and someone to monitor your tx is also a factor. You are in the right place! Good luck! m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15748
Times flown Beaches! I inboxed you so check its been sitting there waiting to let you know when I am heading up your way. I'm catching up with another generics friend in Sydney too and would love to meet if you have time. It's refreshing to read your posts about the pioneering work that Dr James, Greg Jeffreys and many activists have done which yes I agree put pressure on the Aust Govt. I find it interesting to read your PBS story too, I haven't seen much PBS action at my huge Liver Clinic yet and my GP is interested in generics for private patients of his, it's very sloooooow down here getting the PBS! I have finished tx as you know however I wanted to say my generic is Gileads own branding. I also have another course of tx from Mesochem here which was rejected by my liver clinic (because they lacked education) so that's going free from me to a deserving Vietnam Vet when we can sort it, again with the assistance of the team here. It's a great feeling being able to donate! All the same drug just the result of paranoia at my clinic I had to buy twice haha! Yeah my generic was Gilead! Isn't it nuts that they just pump the price up despite owning the Indian labs All the FixHepC meds are the bomb! Tested, monitored etc. For Meg, if you read this and cannot get PBS meds contact the team at FHC yes and do what I did buy them because they work Beaches enjoy the week ahead and good luck as you swim toward EOT and check your pms please missy mermaid xxx you're going super well on tx xxx Love from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15749
Hey Beaches Thanks for your update. I loved reading that you are going well, extremely well actually. gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: Ariel | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15751
Sorry Ariel, I didn't notice a PM will have a look Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby The following user(s) said Thank You: Ariel | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15753
Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15803
Just got my week 4 VL results. They must have forgotten to send them to me. <15. Sitting on the bus reading the results, threw back my head and Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15804
Oh Beaches!! HAPPY for you Love Cindi x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: beaches | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15810
Wooohooo way to go Beaches already unquantifiable yew! Next stop UND. Perfect behavior A+++ Go girl! Stoked at the news It's working it's magic Splashing freezing Vicco water at you Love from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: beaches | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15811
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: beaches | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15813
Thanks Ariel and Gaj Splashing tepid Sydney 20 degree ocean water back at you Feeling rather stoked just now Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby The following user(s) said Thank You: Ariel | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15828
Maybe I've already said it but HAPPY FOR YOU!! Life is a beach! m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 The following user(s) said Thank You: beaches | |
Beaches Treatment - Harvoni (Aus PBS) 7 years 11 months ago #15831
| Keep on ridin' that wave sis! You're well on to rockin' in the Hep C free world girl! GT1a; Got it some time in the 70's; Diagnosed @1976 Tx naive METAVIR: A2-F2 SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000 3 weeks after SOT: AST 27 ALT 31 VL 138 Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24 Hep C RNA "NOT DETECTED" AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24! The following user(s) said Thank You: beaches |
Time to create page: 0.440 seconds