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Emilio's Place 7 years 1 month ago #1105

Did u went on a diet, exercise and healthy change of lifestyle?

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Last edit: by tweakmax.

Emilio's Place 7 years 1 month ago #1111

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Not really tweak, I'm mean I don't party much these days and I eat well and get a little exercise but nothing serious like ie. walking the dogs, chasing grandchildren, camping and fishing. I'd be interested to hear from others pre tx VLs compared to post tx relapse VLs. A bit out there I know but its not the fist time I've heard of response and wonder is there a common the catalyst. Maybe it's multiple and or random but would interested to know more. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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Emilio's Place 7 years 1 month ago #1120

Hi Emilio I have decided I don't want to know my VL until the end of treatment - 24 weeks. But about 6 months ago it was roughly 2.5 million. From what I have read there is no point really because it takes months for the medicine to fully penetrate cirrhotics. kindly

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Emilio's Place 7 years 1 month ago #1125

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I would suggest a VL at 4 weeks into treatment. It will probably be zero (nice to know) and proves you're not taking sugar tablets (nice to know).
YMMV

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Emilio's Place 7 years 1 month ago #1130

Hi Dr J I am pretty sure I have the same batch as Chester from India and compassionate Daclatasvir so going on her responding
and the previous despair experienced from failed treatments, is the reason for this decision. I probably will do it sometime, curiosity always wins out. 28 days into tx. kindly

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Emilio's Place 7 years 1 month ago #1133

Berri I've emailed you.
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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Emilio's Place 7 years 1 month ago #1141

VL can fluctuate i heard. Doesnt reflect on amount of liver damage.

Hope I am able to treat it asap.

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Last edit: by tweakmax.

Emilio's Place 7 years 1 month ago #1165

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My viral load 3 years ago was 5 157 834
My GGT was 47 - this is odd as in 2004 during inter/rib treatment it was 27 (My AST and ALT at the time were very elevated)

I ordered my Sof/Dac yesterday morning - I've ordered 12w but know I will need 24w
Dr Freeman has given me a script for new tests which i will be doing late next week
I'll be monitoring things closely and posting the results in a separate thread rather than hijacking others

I'm quite excited and very grateful but nervous as well
My liver biopsy results were dismal 12 years ago and I'm mostly nervous that my fibroscan will show Cirrhosis
Apparently you can have it without necessarily showing symptoms - I will know in a couple/ few weeks
But i will leave the negativity there and think only positive thoughts from now on
i'm preparing myself for battle against this virus and will do everything i can to help it work

This has all happened very quickly and quite out of the blue after reading the SMH article
I've ignored my hep for a long time mainly because there has been nothing i can do other than try and look after myself
Nothing makes me feel sicker than hanging around doctors surgeries, hospitals, and blood labs with worry inducing results

Thanks to all of you here, and particularly Dr Freeman, who can think outside the box and give the finger to the rich and ruthless
i taped Dallas Buyers Club on the telly the other night and will be watching it for the first time this week :P

Edit: Sorry for the thread hijack, Em but not worth starting my own thread yet and wanted to get my thoughts on a thread i follow
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263

Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected

2004 biopsy F3
Fibroscan appt Jan 11 2016.
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Last edit: by Bloot. Reason: Apologise for talking about myself on another persons tx thread

Emilio's Place 7 years 1 month ago #1166

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Good luck Bloot. You've made the first, most important move. It gets easier from there.
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Emilio's Place 7 years 1 month ago #1167

Well done bloot
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Last edit: by LondonGirl.

Emilio's Place 7 years 1 month ago #1171

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Hey Bloot, all good I don't mind a bit of open discussion at Em's place. Emi
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Emilio's Place 7 years 1 month ago #1576

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Hi everyone, I've been away with my work this week so haven't been on-site much. Day 17 and no sides or events to speak of. Hope everyone else on tx are sides free or manageable. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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Emilio's Place 7 years 1 month ago #1577

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Hi everyone, I've been away with my work this week so haven't been on-site much. Day 17 and no sides or events to speak of. Hope everyone else on tx are sides free or manageable. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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Emilio's Place 7 years 1 month ago #1579

Lucky you emilio. I have mouth and throat ulcers for the past 2 weeks. Apparently a side effect from sofosobuvir. Been drinking coconut water hoping its an electrolyte problem. Apart from that there hasn't been anything else. kindly

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Emilio's Place 7 years 1 month ago #1580

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Thats aweful B, i hope it clears up and you become sx free. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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