New member to the board, hoping I can learn more about the possibilities of treatment as they arise. Have been HCV positive since 1988 with Gen 1a and treatment naive, largely due to a significant history of depression & other mental illness aspects, which my Dr sees as pretty much contraindicating 12 months of the pegintf/rib combo.
I'm also fortunate enough to have a F0 fibrosis score (2.9 fibroscan) and a VL only in the couple of hundred 1000s - not the most urgent candidate for treatment anyway, I know.
However I do suffer from the sudden crushing exhaustion, dizziness, buzzing sensations, brain fog and general out of body detached feelings others have described here. Plus I have a significant chronic neurological pain condition of 14 years standing which flares up to the point that functioning can be difficult somtimes...and I think that there may be symptoms I've attributed to that which might really be due to Hep C (joint and muscle pain particularly)
My doc (specialist at a major Sydney hospital) put me off the whole idea of accessing overseas meds at an appointment today, saying that the Govt will very likely allow the new DDA's in from early next year - I have absolutely nil confidence that this will happen. In the meantime, I know that while not badly affected it is the back of my mind that the longer you have this disease (coming up on 30 years) the possibility that things could go south at any time. I am also mindful of the Govt/TGA finding some way of legally thwarting operations like the Buyer's Club so none of us will have any recourse at all...I can't see any of the treatments being passed by Federal Cabinet with a collective $3bn price tag.
Apologies for the length of my post; having only found out the OS supply of meds recently its something in the back of my mind regularly now.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED