emo Undetectable week 5 post treatment despite feeling crap

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6 years 3 months ago #15708

Got test result yesterday. Despite having a week of feeling just like having the illness - headaches, fatigue, mild nausea for days, that endless hangover feeling - the viral load test came back "Undetectable" :) :) :)

I hope this can give some encouragement to others who feel like crap after treatment. The really scary thing for me was that from a few days after finishing treatment to a month later I felt good - really more energy, even went to a gym. Then 4-5 days of crap. Just as I imagined a relapse would feel. But it wasn't. It just seems my poor body is taking its time recovering from decades of virus and treatments, and that this recovery goes up and down, rather than in a straight line...

So in a nutshell, no matter how you feel after treatment, there is hope, and you're probably doing just fine!

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6 years 3 months ago #15709

Oops. Can someone move this to Patient Stories?

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6 years 3 months ago #15711

I've moved it to SVR. It's important to remember that just because you don't have Hep C you can still get all the variations of flu etc.

As always, if the symptoms persist, see a doctor.


YMMV
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6 years 3 months ago #15712

Fantastic news........hope you feel better soon though....I also put my SVR12 post in the admin section....must be the rush to spread the good news :)


Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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6 years 3 months ago #15714

Thanks Lynne & thanks Dr Freeman. I actually came down with a cold on Friday. Perhaps the liverish feelings I had were the beginnings of that. In between the 5 days of complete crap and getting the cold on Friday was about a week of feeling run down with insomnia (though I think the insomnia was largely worry). I slept well last night :)

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6 years 3 months ago #15715

Feels really good to have joined the SVR section if only in a small way as yet :) :)

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6 years 3 months ago #15717

:woohoo: Congratulations Phoenix! :woohoo:

Great to hear of your SVR5 and hope your cold goes away soon so you can really celebrate. :+1: :cheer:


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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6 years 3 months ago #15719

Great news! Congrats on your first UND! So what are you taking, generic drugs or real Harvoni?


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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6 years 3 months ago #15720

Thanks Gaj & Fretboard :)

Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it's good stuff :)

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6 years 3 months ago #15722

Congrats Phoenix on your SVR, hope your cold takes a hike soon :+1:


GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
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6 years 3 months ago #15727

Phoenix wrote:


Actually my third UND. Was UND at weeks 4 and 8 during treatment. This is my first UND post-treatment.

I took generic drugs from Mesochem through FixHepC. 12 weeks Sof/Dac, and the proof seems to be there so far that it's good stuff :)

Great news! Always glad to hear about a Mesochem success story!!

Attachments:

G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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6 years 3 months ago #15728

Feeling like crap too

Liverish

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6 years 3 months ago #15729

Hi again Phoenix I had insomnia all the way through my treatment but I really did get used to it after a while because my energy levels were so much better throughout the day.....all back to normal now!! Went to sleep okay but around 4am - 5am, boing eyes wide open! :) :)


Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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6 years 3 months ago #15732

Thanks CC2B.

Hang in there Tweakmax! I have SO discovered that liverish does not necessarily equal virus. The crap feeling will almost certainly pass.

Lynne I really relate to a strange new energy/insomnia thing. It feels sometimes like I might just need less sleep now, like my biorhythms are being reset in a good way, but it still takes a bit of getting used to. Though when I feel crap it feels like the same old crap! I think I'm getting easier with the idea that the road to recovery will still have twists and turns.

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6 years 3 months ago #15736

Thankyou Phoenix for being honest and posting this. I had a little smile at your turn of phase for the title as that would be my sentiments exactly! ( apart from the UND as haven't had the test yet.) I find your post quite reassuring.
I am going for a liver function test next week as I asked my gp for one and won't get a VL test until 12 weeks post EOT, as per NHS standard.
Cheers, and really glad you remain undetected. Congratulations! :) :+1: :lol: #duck #flower


Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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