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We are moving the awareness needle 7 years 11 months ago #16243
YMMV The following user(s) said Thank You: tweakmax, LondonGirl, coral, Vororo, mgalbrai, Paul-Jarman-facebook, Price, Ariel, Gaj, Lynne-Francis-facebook, beaches, IRMA88, isaing4, Hazel, CC2B, MtGoat, Greedfighter, Matt-Kenney-google, Meg, GT2 and 1 other people also said thanks. | |
We are moving the awareness needle 7 years 11 months ago #16638
| Ive had a thought how we can spread awareness without being subject to outright BS from the likes of people and associated organisations who stand to loose a shitload of money from the manufacture and distribution of generic's. How about the idea of a Fix hep C bumper sticker - for example - "Got Hep C? Fix Hep C email address here SVR 24 The following user(s) said Thank You: coral, Vororo, mgalbrai, Paul-Jarman-facebook, Price, Ariel, Lynne-Francis-facebook, beaches, IRMA88, Hieupham, splitdog, Hazel, MtGoat, fretboard, rohcvfighter, Meg, GT2, fitz, cowboyjavajoe |
We are moving the awareness needle 7 years 11 months ago #16977
| I've been monitoring in the last weeks several online articles in Romania about the new interferon-free Hep C treatment and I noticed couple of interesting phenomenons: - the number of recommendations given by the visitors about generic medication for Hep C increased by compare with March 2016; - a change in the way people are asking questions about the Hep C medication: the old question was "I have Hep C, how can I get treated?". The new question I've started to see more often is: "How can I get the generic medication?". This would indicate that people are being more and more informed that there exist affordable medication, so now their major concern is how to prevent buying fake medication. P.S. and yes, I've seen also some F...K words addressed to politicians, government and/or the national healthcare system for not doing too much for the patients. Cheers, RHF In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”. HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic. By sharing this Youtube video you might save someone’s life! My TX: HEPCVIR-L[generic Harvoni]-India SVR52 achieved |
We are moving the awareness needle 7 years 11 months ago #17009
I just noted a moment ago that there were 9 members, and 1327 guests on the site Welcome! Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! | |
We are moving the awareness needle 7 years 11 months ago #17077
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And 5681824 hits Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV |
We are moving the awareness needle 7 years 11 months ago #17084
| Sometimes I get upset because doctors, teachers, politicians think way tooooo much before deciding to take action in cases where there is news about revolutionary things, like generic HCV medication. I wonder sometimes what are the students from the medicine universities thinking, when they become aware about such solutions and despite that they see their teachers or master doctors adopting a passive or critical position? How would the students react if they would see this information on their forums and not on the official university newspaper? In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”. HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic. By sharing this Youtube video you might save someone’s life! My TX: HEPCVIR-L[generic Harvoni]-India SVR52 achieved |
We are moving the awareness needle 7 years 11 months ago #17155
That's a great point, rohcvfighter. Raising awareness among medical students, and on university campuses! While the establishment press is beholden to big pharma for advertising revenues - campus newspapers, student forums, and free press outlets are not. As for establishment docs who tow the party line, I wonder what they would do if they were in our shoes and THEY were denied timely, state of the art treatment until they were "sick enough". I rather suspect that not a few doctors follow this forum with a great deal of interest. Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! | |
We are moving the awareness needle 7 years 11 months ago #17166
Fabulous idea Tina with lots of thankyous means people agree with your idea which I can support (I am sure lots of people can also support but just offering anyway) I'm able to have stickers produced excellent quality waterproof high gloss and it's what I do (I have a range of surf decals and car stickers I own) my producer is local to me and extremely reasonable. If this is a go I am willing to assist. Regards Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: Price, Gaj, Tina-Hill-facebook, Hazel, rohcvfighter, GT2, fitz | |
We are moving the awareness needle 7 years 11 months ago #17184
Yeah, I really like that idea a lot. Stickers or T-Shirts, I'll buy and wear proudly!! G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!! Started tx 6/1/16 with Harvoni. 12 Month Labs= UND | |
We are moving the awareness needle 7 years 11 months ago #17210
| The word "exponential" comes to mind when I see the sharp upturn at the and of the graph. I don't think there is any stopping it now. The word is getting out. Thank you Dr. Freeman and Greg Jefferys for making it all happen. Thank you for coexisting peacefully, because it took both of you to make a believer out of a very skeptical me. - Jeff's simple blog to make me say "Hey this guy really did this and he got well", and to Dr. Freeman for educating and providing a way that we could have actually obtained the meds. (Happily, in our case, the Harvoni appeal was finally approved, but I'll have to say a very tiny part of me wishes Joe was taking the generic just so I could be more believable when I spread the word, as I know he would have gotten well either way) Many others are going to jump in to try to get a piece of the pie now that you two have blazed a path....some will have motives very different than yours - there is lots of money to be made here, even at generic prices - but no matter what their motives are, at least more people will get well. Sadly, you will probably never get the worldwide recognition you deserve. -- MsJoe ***edited to add - I just saw fritz mentioned the exponential upturn in the graph on another thread - stated much more eloquently than here.....It would be awesome if the word would spread as fast as the virus replicates!*** GT 1b Diagnosed 2014 tx naive alt 309 ast 174 fibrotest 0.73 (f3/f4) acti test 0.93 A3 VL 14,660,000+ (Jan 2016) Started Harvoni 5/16/16 5/31/16 VL 239 |
We are moving the awareness needle 7 years 11 months ago #17220
Fitz, I offered to have all the nursing students visit my dept so they can see what we do. So I get them two at a time for a whole shift and I have their undivided attention. I've also been talking to the doctors. I tell them that there are now generics of the expensive meds for hep c and they are backed up by the International Liver conference and hand them a handwritten card with the FixHepC link. P. | |
We are moving the awareness needle 7 years 11 months ago #17221
Awesome, Price! ETA: Figured out the private chat function. It's so simple its embarrassing! Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016 2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! | |
We are moving the awareness needle 7 years 11 months ago #17222
| Great stuff. And just to think that none of this would be possible without the internet. Doesn't bear thinking about. 45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1); Null responder interferon/ribavirin 2008; 4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but... 6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4. |
We are moving the awareness needle 7 years 11 months ago #17395
New plan with comments sections on stories I come across. Instead of just stories that focus on hepc , hit the big popular ones on any health or corporate greed topic. Left one today on a John Oliver story, tenuous connection but has attracted more likes quicker than any other. As the saying goes, everyone knows someone and the bigger the audience the more likely it is someone will see it. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |