TOPIC:

Here is a graph of user registrations versus time. If you look at what's been happening over the last week we can see a solid uptick, so people here putting out the word certainly seems to be having an impact! Thanks for the great work to all who have been posting elsewhere.

Ive had a thought how we can spread awareness without being subject to outright BS from the likes of people and associated organisations who stand to loose a shitload of money from the manufacture and distribution of generic's.

How about the idea of a Fix hep C bumper sticker -

for example -

I've been monitoring in the last weeks several online articles in Romania about the new interferon-free Hep C treatment and I noticed couple of interesting phenomenons:
- the number of recommendations given by the visitors about generic medication for Hep C increased by compare with March 2016;
- a change in the way people are asking questions about the Hep C medication: the old question was "I have Hep C, how can I get treated?". The new question I've started to see more often is: "How can I get the generic medication?". This would indicate that people are being more and more informed that there exist affordable medication, so now their major concern is how to prevent buying fake medication.

P.S. and yes, I've seen also some F...K words addressed to politicians, government and/or the national healthcare system for not doing too much for the patients.

Cheers,
RHF

I just noted a moment ago that there were 9 members, and 1327 guests on the site

Welcome!

fitz wrote: I just noted a moment ago that there were 9 members, and 1327 guests on the site

Welcome!

And 5681824 hits

Sometimes I get upset because doctors, teachers, politicians think way tooooo much before deciding to take action in cases where there is news about revolutionary things, like generic HCV medication.

I wonder sometimes what are the students from the medicine universities thinking, when they become aware about such solutions and despite that they see their teachers or master doctors adopting a passive or critical position?

How would the students react if they would see this information on their forums and not on the official university newspaper?

rohcvfighter wrote: Sometimes I get upset because doctors, teachers, politicians think way tooooo much before deciding to take action in cases where there is news about revolutionary things, like generic HCV medication.

I wonder sometimes what are the students from the medicine universities thinking, when they become aware about such solutions and despite that they see their teachers or master doctors adopting a passive or critical position?

How would the students react if they would see this information on their forums and not on the official university newspaper?

That's a great point, rohcvfighter. Raising awareness among medical students, and on university campuses!

While the establishment press is beholden to big pharma for advertising revenues - campus newspapers, student forums, and free press outlets are not.

As for establishment docs who tow the party line, I wonder what they would do if they were in our shoes and THEY were denied timely, state of the art treatment until they were "sick enough".

I rather suspect that not a few doctors follow this forum with a great deal of interest.

Tina-Hill-facebook wrote: Ive had a thought how we can spread awareness without being subject to outright BS from the likes of people and associated organisations who stand to loose a shitload of money from the manufacture and distribution of generic's.

How about the idea of a Fix hep C bumper sticker -

for example -

"Got Hep C?
Fix Hep C
email address here

Fabulous idea Tina with lots of thankyous means people agree with your idea which I can support (I am sure lots of people can also support but just offering anyway)

I'm able to have stickers produced excellent quality waterproof high gloss and it's what I do (I have a range of surf decals and car stickers I own) my producer is local to me and extremely reasonable.
If this is a go I am willing to assist.
Regards
Ariel

Tina-Hill-facebook wrote: Ive had a thought how we can spread awareness without being subject to outright BS from the likes of people and associated organisations who stand to loose a shitload of money from the manufacture and distribution of generic's.

How about the idea of a Fix hep C bumper sticker - for example -

"Got Hep C?
Fix Hep C
email address here

Yeah, I really like that idea a lot. Stickers or T-Shirts, I'll buy and wear proudly!!

The word "exponential" comes to mind when I see the sharp upturn at the and of the graph. I don't think there is any stopping it now. The word is getting out. Thank you Dr. Freeman and Greg Jefferys for making it all happen. Thank you for coexisting peacefully, because it took both of you to make a believer out of a very skeptical me. - Jeff's simple blog to make me say "Hey this guy really did this and he got well", and to Dr. Freeman for educating and providing a way that we could have actually obtained the meds. (Happily, in our case, the Harvoni appeal was finally approved, but I'll have to say a very tiny part of me wishes Joe was taking the generic just so I could be more believable when I spread the word, as I know he would have gotten well either way) Many others are going to jump in to try to get a piece of the pie now that you two have blazed a path....some will have motives very different than yours - there is lots of money to be made here, even at generic prices - but no matter what their motives are, at least more people will get well. Sadly, you will probably never get the worldwide recognition you deserve. -- MsJoe ***edited to add - I just saw fritz mentioned the exponential upturn in the graph on another thread - stated much more eloquently than here.....It would be awesome if the word would spread as fast as the virus replicates!***

Fitz, I offered to have all the nursing students visit my dept so they can see what we do. So I get them two at a time for a whole shift and I have their undivided attention.

I've also been talking to the doctors. I tell them that there are now generics of the expensive meds for hep c and they are backed up by the International Liver conference and hand them a handwritten card with the FixHepC link.



P.

Awesome, Price!

ETA: Figured out the private chat function. It's so simple its embarrassing!

Great stuff. And just to think that none of this would be possible without the internet. Doesn't bear thinking about.

New plan with comments sections on stories I come across. Instead of just stories that focus on hepc , hit the big popular ones on any health or corporate greed topic. Left one today on a John Oliver story, tenuous connection but has attracted more likes quicker than any other. As the saying goes, everyone knows someone and the bigger the audience the more likely it is someone will see it.