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TOPIC: So we made it into The Times-UK

So we made it into The Times-UK 5 years 4 months ago #17783

  • Hieupham
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Patients set up buyers’ clubs for drugs not available on NHS
www.thetimes.co.uk/article/patients-set-...8e9a8bd81f4a550017c1
Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
Last Edit: 5 years 4 months ago by Hieupham.
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So we made it into The Times-UK 5 years 4 months ago #17799

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Gives all the right reasons for going generic. Same curtsy to Gilead at the end. Allowing them the final "smart arse" word. As if they're saying, "Kiss my diamond studded, 24c gold ring, you ungrateful wretches for allowing you the privilege to go bankrupt paying for MY meds. YES I say MINE. Afterall, I paid for them out MY OWN pocket, with the "blood money" I myself squeezed out of other unfortunates like yourself. So don't you dare to raise your jaundiced eyes toward me in hope or in defiance ... Just go on as long as you can :evil: living your poor meaningless life."
:sick:
MK
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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So we made it into The Times-UK 5 years 4 months ago #17803

  • rohcvfighter
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Great news, however I cannot understand Gilead's "joke" at the end:

A spokesman for Gilead said that price was not a limiting factor in patient access because Nice had deemed the treatment cost-effective and the drugs were “offered to the NHS with substantial discounts”.

On what planet is he/she living?
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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So we made it into The Times-UK 5 years 4 months ago #17811

  • Hazel
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rohcvfighter wrote:
Great news, however I cannot understand Gilead's "joke" at the end:


On what planet is he/she living?

On the same planet that thinks it is OK in this day and age for poor Lynne, at 65, to have to do interferon and ribavirin, even though she could have got her own DAA's, because her health system refused to treat her if she took them.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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So we made it into The Times-UK 5 years 4 months ago #17816

  • LondonGirl
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From what I understand Dr Ryder, who is extremely pro-active at highlighting the plight of English HepC patients, says that if NHS England had agreed to treat 5,000 more patients, Gilead would have reduced the price even more. Quite rightly he doesn't understand why they haven't done this. I wonder why. (Note, no ?).

Portugal eg agreed to treat ALL and have done so, in fairness to Gilead, they got the drugs at a highly reduced price and apparently 96% Portuguese HepC patients are now cured.

NHS England is now full of highly paid managerial suits with privatisation and business interests at heart, not patients (some corruption cases recently brought to light) , if we leave Europe I reckon we can wave goodbye to free healthcare. Some great NHS staff who are treated badly under this government know it, one told me 'The NHS are bastards'. eg they just got a 'payrise' of 1% a friend told me with the current rise in National Insurance (originally set up to pay for free NHS treatment ha ha) his wage packet was actually less than before his pay rise. Meanwhile our Gvt (most who have shares & interested in private medical companies & big pharma and something like 90% who were born millionaires) recently awarded themselves a 14% payrise while trying to cut junior Dr pay causing the first NHS strike in decades.

NHS Scotland however are on a mighty path to eliminate HepC and are way ahead.

The HepC Trust are raising funds for a judicial review to question the legailty.

Sadly, It's a corrupt mess and it would take a mighty force to untangle it.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
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Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 5 years 4 months ago by LondonGirl.
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So we made it into The Times-UK 5 years 4 months ago #17820

  • mgalbrai
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Planet: Profit
Star: Corruption
Galaxy: Greedy Way
Primary Language: Money
Government: Hedge Fund
Religion: Extortionism
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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So we made it into The Times-UK 5 years 4 months ago #17821

  • Gaj
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Portugal eg agreed to treat ALL and have done so, in fairness to Gilead, they got the drugs at a highly reduced price and apparently 96% Portuguese HepC patients are now cured.

Err, not quite. Though I can see how the headlines may lead to that assumption.

The 96% is actually the SVR rate among those who have been treated. As at April 2016 at the Barcelona conference it was announced that 7,011 patients had been treated out ot approximately 13 thousand who were registered as hep c patients with their hospital clinics and therefore funded at the time that the government promised universal access. I've been unable to find the size of the Portuguese HCV population but assuming it is somewhere in line with other European countries then 1% of the population seems a reasonable estimate which would mean approx. 100,000 potential patients.

m.digitaljournal.com/life/health/portuga...-free/article/425590

Certainly a good news story in that their government has promised to treat everyone at some point in the future but not quite there yet.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 5 years 4 months ago by Gaj.
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So we made it into The Times-UK 5 years 4 months ago #17822

  • LondonGirl
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Ah thx Gaj, I must have read an iffy article.
Either way, as you say, the Portuguese Gvt have done a deal to treat all and have therefore reduced drug prices - The WILL to treat people is there; Here, the will is not.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 5 years 4 months ago by LondonGirl.
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