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TOPIC: Should I start treatment

Should I start treatment 5 years 3 months ago #18835

  • JamesF
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I got my medication and was keen to start treatment this weekend.
My Consultant said that I should stay close by in the UK in case of any adverse reactions.
The problem is that I would be on holiday in Spain (on a boat) on the second week of treatment if I start now.
Should i wait until I get back?

I felt at least being on holiday while on treatment would mean I could rest if need be.
2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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Should I start treatment 5 years 3 months ago #18836

  • Matt-Kenney-google
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I Don't feel qualified to answer your questions. But rest assured, help is on the way JF :+1:
Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Should I start treatment 5 years 3 months ago #18837

  • mgalbrai
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I don't know what meds you will be taking, but most people tolerate the DAAs with few, if any, issues. I was concerned that the drugs weren't working due to the lack of side effects.
I would go.
m
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Should I start treatment 5 years 3 months ago #18838

  • JamesF
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thanks for the replies.

the meds are Harvoni
2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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Should I start treatment 5 years 3 months ago #18839

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my consultant advised staying local in the UK for 2 weeks
if nothing happens in the first two weeks then she would be less worried
she did say that as the don't prescribe much Harvoni on the NHS they are still not familiar will a broad range of side effects, etc
2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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Should I start treatment 5 years 3 months ago #18840

  • Matt-Kenney-google
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That's what I'm currently on. I'm 1/2 way through tx JF, and nothing of any significance to report on sdfx. Mike and are the average here. I can confirm what he says about most people's toleration of DAA's side effects.
Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
Last Edit: 5 years 3 months ago by Matt-Kenney-google.
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Should I start treatment 5 years 3 months ago #18842

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Go raibh maith agat! (Thanks in Gaelic)
Hmmm, I've read about the side effects and was worried that everyone had some.
It's good to hear there may be none. Could I be so lucky too?
2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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Should I start treatment 5 years 3 months ago #18843

  • mgalbrai
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I had a mild headache the first three days with Harvoni...
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Should I start treatment 5 years 3 months ago #18844

  • Matt-Kenney-google
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Sláinte JF! (Cheers) to u Galbraith :lol:
Glad you're here and extremely happy you're starting treatment. It's up to you of course brother, but I, personally could not wait to start slaying this beast! B) and Spain is beautiful this time of year ... just sayin' ...
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
Last Edit: 5 years 3 months ago by Matt-Kenney-google.
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Should I start treatment 5 years 3 months ago #18846

  • MtGoat
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I would go. I was worried about sides before I started. I did get some headaches the first week but when I started drinking extra water, thanks to advice from people on this forum, they went away. I was very active during treatment.
Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
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Should I start treatment 5 years 3 months ago #18847

  • Chapel
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Well I would go on the Spanish holiday but delay starting the harvoni till I got back. I took it and had few side effects but you will naturally attribute every upset tummy/illness to the harvoni, if you take it while in Spain. Imagine if you get bad upset stomach or intense headaches and face a decision of stopping the harvoni even temporarily, what a dilemma and the specialist is far away.
(I am assuming you are in reasonable health.)
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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Should I start treatment 5 years 3 months ago #18848

Hi I took generic form Sof/Led. Had a bit of insomnia and a few headaches here and there but drinking water soon got rid of the headaches and the insomnia didn't bother me at all because my energy levels were very good once I started taking the meds. It ultimately is up to you whether you go on your trip or postpone however the side effects I had were very mild.

Enjoy your holiday :cheer:
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Should I start treatment 5 years 3 months ago #18849

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Yeah, I started June 1st and although my vision got a bit blurry at times it was really nada. An occasional headache but that was nothing as well. The only sx that I really felt was the first two days, I felt pain in my legs, like I had been hiking all day the day before I started. It was noticeable but I just felt like it was the Harvoni attacking my viral load. It worked out great, my feet and ankles used to swell up daily, haven't had any of that since the day I started. If you're gonna be taking a vacation, go for it! That's what I'd do.
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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Should I start treatment 5 years 3 months ago #18855

  • klhilde
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My two cents .... I traveled to get the meds and started as soon as I got them. No problems for me.

Many people, myself included, have reported an energy bump early in treatment ... seems to be roughly the second through fourth or fifth week. Imagine being on vacation while you're experiencing an energy boost!

There is, however, a very frequent reporting, again myself included, of various forms of insomnia about that same time frame. For most it is a tendency to wake early (like BOOM ... I'm wide awake!) and not be able to get back to sleep again until evening.

Personally, I'd go!
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Should I start treatment 5 years 3 months ago #18861

  • JamesF
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thanks, everyone.
I am keen to get started although a little apprehensive of side effects.
The energy boost sounds great, especially waking up awake. Currently, I feel groggy in the morning.
2 wk: VL UND, ALT 30
37K RNA, ALT 486
Tx begin 20 July 2016
Tx naive
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