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TOPIC: Hello from Oregon

Hello from Oregon 2 years 9 months ago #20478

  • whaemmel
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New participant sending out hello to everyone. Been living with the C for over 27 years(officially), now experiencing the viral load upsurge. Have much to learn and hopefully pass on. Looking optimistically at tackling this monster and feeling really fortunate at this website and
opportunity to learn , heal and pass on whatever I can to others. Greetings and good luck to all!
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Hello from Oregon 2 years 9 months ago #20483

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Welcome to the forum Whaemmel!

We've got a couple of other guys from the Pacific Northwest here as well. I'm sure Sven and Matt will be along to introduce themselves when they see your post. :)

Look forward to hearing more from you!

Fitz
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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Hello from Oregon 2 years 9 months ago #20484

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Hi there Whaemell
Good luck with everything this is definitely the place to be if you want to get rid of the business for good. I'm now 19 weeks past End Of Treatment and took Sof/led for 12 weeks that I bought here. Thank goodness that this amazing opportunity exists for us all around the world and wishing you a warm welcome
Looking forward to hearing your tx story
Splashes from Ariel #flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Hello from Oregon 2 years 9 months ago #20485

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Hi Whaemell and Welcome,

You've definitely come to the right place for the most up to date information and loads of genuine support.
Everyone has a different story and experience but the aim is the same. We look forward to hearing yours.

Coral #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Hello from Oregon 2 years 9 months ago #20488

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Hey hello whaemmel
I wish you all the best for Tx
:+1: you are not alone on this journey for life and living #flower #love
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
Last Edit: 2 years 9 months ago by pat1.
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Hello from Oregon 2 years 9 months ago #20516

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Hi whaemmel,
Glad to see another US based resident! I'm from Cali, welcome to the forum. Read around, you won't find better support anywhere. Good luck with your journey!!
G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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Hello from Oregon 2 years 9 months ago #20519

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Wharmmel Greetings,
Welcome! This is the place to be, you'll be cured by Thanksgiving if you rock this now. No reason not to just start, I do 4 week labs Thursady and feel much better, only a few side effects nothing to vicious that us Pacific Northwesterners can't handle!
Don't look back I did GP2U,it is almost flawless.
Good luck!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
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Hello from Oregon 2 years 9 months ago #20525

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Hi Whaemel,

Welcome to the forum. As you'll see Fixhepc offer a great service and if you start the process now you'll have the drugs in about 2 weeks. If you haven't already done it, you need to line up a doctor locally to monitor you while you're on the meds although a gastroenterologist from Monkmeds will continue to be available throughout your treatment for advice and any questions you have.

Best of luck,
R
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
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Hello from Oregon 2 years 9 months ago #20635

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Thanks, Just moved up from CA 15 months ago. My Dr. is @UCSF. He's been my Dr. 27 years. and is awesome (head of internal medicine.
Just had my virals go to medium for first time. Due for Genotype test, just had scan 1 month ago. Take Care, Regards, Will
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Hello from Oregon 2 years 9 months ago #20636

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Hey. Just waiting for lab order to get genotyped. Then looks like I need US Dr. to write script. Just had scan, will get onboard asap after test. Really new top most of the lab lingo, just went medium on viral load after 27+ years of no activity. My good Dr lit a fire under me July 29th.
Got a lot to take in. Regards, Will
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Hello from Oregon 2 years 9 months ago #20640

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Welcome to FHC whaemmel,
A great PCP who will support you is critical and it sounds like you have one.
How about insurance? Its a lot easier to get coverage for the HCV meds than it was a year ago. That's where the PCP comes in. Mine helped force my insurer to pay for my treatment in the external review process guaranteed under the Affordable Care Act. I've never heard of anyone being denied coverage who got it out of their insurer's hands and before the review board. I'm sure there are cases I'm not aware of, but HCV tx coverage is generally found to be a "medical necessity".
Imagine that....
Good Luck!
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Hello from Oregon 2 years 9 months ago #20644

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Hi, Thanks. I have hospitalization only Anthem and fall above Obamacare income wise. It won't pay for Dr. visit or lab work at all. I pay out of pocket but have enough funds to pay for generics, airtravel or if I can get my Dr. to write a generic script. I seem to make just enough to not qualify. I am selling an rv i don't use and that will cover generic cost and a round trip to Aus. or India minus stay. My Dr. is gone til next week
and I am also due for a vacation(9 years). I will combine the 2 or figure something out. I still need to be genotyped. Cant afford 95k in US so
I'll go else where. I will make it work someway.Regards, Will
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Hello from Oregon 2 years 9 months ago #20645

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Hi Whaemmel,
I live in Oregon also. Great to have another "webfoot" on board :lol:
I have some experience that may be of assistance in getting your dr. To write a script for you. Happy to PM you with it.

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Hello from Oregon 2 years 9 months ago #20646

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Hey Matt,
I like the webfoot. I am waiting for My Dr. at UCSF to get back next week-already sent him 3 messages. I think once I am geno typed I can
make treatment plans. I have insurance($303) that covers hospital only. I will be going generic for sure. If I can't get US script I am traveling
to get generic. I had been symptom and viral low until now. Naively thought I might make it to medicare. I have been with my intrnal med. Dr
27 years. He will support my decision and do anything he can legally. It will be cheaper to just pay out of pocket for generic then get big
insurance increase. This is all new. I am hammering out a victorian 5/2 with 2 cottages. I have another foreclosure to move to. I feel really fortunate to have access and support. I will be in touch about script. Just been in OR 15 months. Always kept my Dr for this. He is back
MON.-8 hrs away, have lab 15 miles from here. Thanks, Will
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Hello from Oregon 2 years 9 months ago #20648

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Hey Will! Nice to meet you
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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