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TOPIC: Being monitored

Being monitored 1 year 11 months ago #22538

Hi,

Have decided to pay for my treatment via this site but the main thing I am worried about is being monitored whilst on them. Just got off the phone with my liver specialist and they have told me in no uncertain terms that they would not monitor me if i was to go down this route.

So lost right now
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Being monitored 1 year 11 months ago #22541

  • Sirchinenge
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All is not lost and you have options.

If you're in the UK your local trust has a duty of care to look after you regardless of you buying
treatment yourself.

The simplest solution is to have your local GP monitor treatment is that a possibility for you?
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
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Being monitored 1 year 11 months ago #22545

  • LondonGirl
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Hi Ben,

My first consultant told me this too, but I did get monitored in the end, one way and another .

If you are in the UK, please don't hesitate to contact me by PM, I may be able to help.

Don't give up, ask around.

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Being monitored 1 year 11 months ago #22570

  • Gaj
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Hi Ben,

Many of the members here have been in the same situation with their doctors initially and often those same doctors have come around when they see results. Also depending on your current liver status the monitoring may only require running and checking tests, to the extent that for example the new Australian rules allow and encourage prescribing and monitoring of non cirrhotics to be done via local GP's. As this site has an international audience perhaps let us know a bit more about your liver health and where you are located as someone from your own country may have been in a similar position and be able to advise the best options. In the meantime to allay your specialist or GP's concerns perhaps you should give them printouts or downloads of the following:

hepatitiscnewdrugs.blogspot.com.au/2016/...ivirals-for.html?m=1

Which includes the following quote from the Secretary General of EASL:
""There is a clear role for generic treatments such as these for people with Hepatitis C across the world. The implications of increased availability of these drugs could be enormous, presenting more people with the possibility of a 'cure' for what is often a debilitating condition," said Professor Laurent Castera, EASL Secretary General."


fixhepc.com/blog/item/65-internationa-li...2016-dr-freeman.html


fixhepc.com/forum/forum-gp-cheat-sheet.html
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 1 year 11 months ago by Gaj.
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Being monitored 1 year 11 months ago #22575

  • mgalbrai
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Hi Ben,
If you are in the US, email me at This email address is being protected from spambots. You need JavaScript enabled to view it..
I'm pretty sure we can find someone in your area to order the needed tests at the required times.
Good luck,
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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