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Been away too long!!!! 6 years 4 months ago #23607
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Hi all you lovely people!!!
 Much has happened since I was on here last and just about recouperating now!!I decided to take another 8 weeks of HepCevir guess I just wanted to be sure I was hitting that monster hard!!! Unfortunately on top the of the Hep C have had AF where my heart decided to beat erratically and caused me to be super breathless just walking down the road and real tired all the time. Had an op called an ablation a month ago which left me feeling shite and a week after it got gout which I thought did not exist in our day and age! My ignorance and fuck is it painful!!! During all this time have popped in and had the odd read of what was happening to everyone but found it hard to write anything sorry!  Went for my first blood test last week, about 4 weeks after EOT and still undetected ALT 23 and AST 28  am real hopeful this is all a good sign. Will add to profile if I can remember how its been so long since I added anything haha. Enough about me anyway. Hope everyone is doing well and that those who are going through another lot of treatment are on their way to recovery. Hope we can all look forward to better times. My wish for everyone  Nadia Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder
 ( Meds stopped after 4 or 5 months.Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. )OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! |
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Been away too long!!!! 6 years 4 months ago #23609
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Good for you!!!
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Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James |
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Been away too long!!!! 6 years 4 months ago #23610
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Thanks Splitdog
I am really really hoping the drugs you are waiting on will not be too long in coming. Good luck to you and love your positivity! much love Nadia xxxx Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. )OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! |
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Been away too long!!!! 6 years 4 months ago #23614
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Hi Nadia,
Great to hear from you but sorry you've had a bit of a rough time health wise. I've known people who've had gout and apparently it's incredibly painful. I hope you are coming out the other end of it all now. Those blood results are looking good Nadia. I am nearly at the end of my second round of treatment. It will be twice the anxiety coming off the medication but the virus cleared quickly this time so I am hopeful that it's second time lucky; Take care Nadia and I look forward to seeing your next results  G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
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Been away too long!!!! 6 years 4 months ago #23616
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Hi Coral,
so glad to hear the second treatment looks like it is hitting that bastard hard and I so hope this time around you will be able to waive it goodbye. You are such a positive lady and that will see you through, along with the great support on here Thank you so much for your lovely words of encouragement. I am thinking a lot of my problems at the moment are coming from the drugs that cardio docs are putting me on. Gout is now gone as have the diuretics that were the suspects! Fuck it is all such a battle Coral but we will beat it all!!!!!!  You take good care of yourself I will be keeping an eye out for your results. Lots and lots of hugs Nadia xxxxxxx Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. )OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! |
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Been away too long!!!! 6 years 4 months ago #23631
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Hi Nads & Coral, I'm also trying to catch up with all your news and have been thinking of you all. (Have had alot on my plate and no time, haven't forgotten everyone).
Ouch Nads - Sorry to hear you have had to deal with some other painful stuff on top of treatment - I do hope this resolves itself soon? Sending get well wishes. Post 4 bloods looking good I'm also looking to hearing good news about your SVR12 and sending my very best wishes for your improving health in every direction Dear Coral, I am also awaiting good news from you my friend and send big Splitdog - Hello mate, I do hope you are not waiting too long now and hope you're not feeling to unwell and doing ok as can be expected? When I think back to how ill I felt just over a year ago and how much better I feel now I can truly offer you hope. I was a slow responder to the meds, one of a small % but am now clear and can only say that you are in the very best place you could possibly be here with Dr Freeman and Monkmed to to get fixed - like I did. (but I expect you know that!) - The very best wishes for your next treatment. GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Been away too long!!!! 6 years 4 months ago #23632
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Thank you.
 This email address is being protected from spambots. You need JavaScript enabled to view it.
Genotype 3 VL 4,100,000 ALT 101 AST 71 Treatment Naive Started Sof/Dac Jan 12, 2016 VL= <15 4 weeks in. AST/ALT normal. VL=UNDETECTED 8 weeks in. SVR4= Virus back. 3,300,000 Started generic Epclusa Sep. 23, 2017 4 weeks in <15 *Detected. 12 weeks in <15 *Not Detected. 16 weeks in <15 *Not Detected. Finished 24 weeks treatment 3-17-18 SVR5 <15 Not Detected. SVR 20 <15 Not Detected. SVR 44 <15 Not Detected. Thank you Jesus. Thank you Dr. James |
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