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Seriously worried that I may have relapsed
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Seriously worried that I may have relapsed 7 years 3 months ago #24565

  • rightsaidfred
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Hello All,

I'm a very worried man. You'll see from my profile below that I finished 24 weeks of treatment with Sof/Dac in February this year for G3. I had SVR 12 and 24 but about 10 days ago I began to get symptoms I associate with hepc again: Tiredness and nausea. I saw my GP who prescribed omeprazole which has helped and last weekend I allowed myself 2 glasses of red wine. The result was a terrible hangover. I thought it might be that it was a particular response to red and last night drank 2 glasses of white. Got a bad hangover again though not so extreme.

I had a blood test this morning , including LFT's and will get the result next week but I think I know there's a problem.

Gloom.

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: coral

Seriously worried that I may have relapsed 7 years 3 months ago #24566

  • Hazel
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LFT's come back quickly and should reassure you. SVR 24 is secure. It is way, way more probable to be something else than relapse. All the best RSF.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Seriously worried that I may have relapsed 7 years 3 months ago #24569

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Hi rightsaidfred, As the others say, at this stage it's virtually certain to be something other than HVC that is taking you low. Hope you can get your results back soon.
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
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Seriously worried that I may have relapsed 7 years 3 months ago #24570

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Hi RSF,

Hopefully it's not, but if it is we will just have to fix it won't we?
YMMV
The following user(s) said Thank You: mgalbrai, Gaj, Lynne-Francis-facebook, rightsaidfred, Sven, Donna, Mnem

Seriously worried that I may have relapsed 7 years 3 months ago #24573

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Thanks James, Mnem and Hazel for your reassurance. I'll get the results next week and we'll see....

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: mgalbrai, Gaj

Seriously worried that I may have relapsed 7 years 3 months ago #24586

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RSF i'm not a gambler but if I was I would take the odds and 10 grand that you do not have a relapse.
I bet you're feeling better already!
In good health to you.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: DrJames, mgalbrai, Gaj, rightsaidfred

Seriously worried that I may have relapsed 7 years 3 months ago #24589

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Hi RSF. SVR24 is pretty solid but I can understand your anxiety. Waiting with you for those results #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Seriously worried that I may have relapsed 7 years 3 months ago #24593

  • rightsaidfred
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Hi Sven and Coral,

I am actually not feeling very well - pains around the lower ribs on the right and waking with slight nausea - I suppose it could all relate to anxiety and certainly hope so but I'll get the LFT results next week and all will be revealed.

Thanks both for your support and good wishes,

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: DrJames, coral, mgalbrai, Gaj, Sven

Seriously worried that I may have relapsed 7 years 3 months ago #24618

  • rightsaidfred
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Hello all,

False alarm! Got my LFT's back today and they're fine. I still don't understand the hangovers but suppose the rest was attributable to anxiety.

Mightily relieved and thankful for all the support and encouragement.

In my next incarnation I WILL NOT BE A DRAMA QUEEN.

RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: DrJames, LondonGirl, coral, mgalbrai, Paul-Jarman-facebook, Gaj, Lynne-Francis-facebook, darbara, splitdog, Mnem

Seriously worried that I may have relapsed 7 years 3 months ago #24626

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What a frigging relief RSH! Don't worry - I'm sure we've all had our drama queen moments - I know I have!

Hope you feel better soon - whatever it is. :cheer:
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: DrJames, LondonGirl, Gaj, Lynne-Francis-facebook, splitdog, rightsaidfred

Seriously worried that I may have relapsed 7 years 3 months ago #24652

  • gypsy
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Great news rightsaidfred. It is ok to be a drama queen. Those of us who have had it understand. Thanks for your posts.
The following user(s) said Thank You: DrJames, LondonGirl, Gaj, Lynne-Francis-facebook, rightsaidfred

Seriously worried that I may have relapsed 7 years 3 months ago #24665

Hey RSF - Any digestive pain or tiredness etc etc can bring us back to the fear we lived with before and you are not alone in these fears. So glad all is well, but are you drinking the right wine? #flower ;) #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: coral, Lynne-Francis-facebook, rightsaidfred, Iain

Seriously worried that I may have relapsed 7 years 3 months ago #24674

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My anxiety played havoc with me as well, I too thought about relapse. Now seeing it from the outside in I see what others saw, like us with you.
Told ya!
In good health my friend, don't sweat it your done!
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: DrJames, Lynne-Francis-facebook, rightsaidfred, Iain

Seriously worried that I may have relapsed 7 years 3 months ago #24692

Great news Fred!!!
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: DrJames, rightsaidfred, Sven

Seriously worried that I may have relapsed 7 years 3 months ago #24781

  • rightsaidfred
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Hello All,
Well now I'm not so sure and neither is my GP: Tried 2 glasses of wine again about 10 days ago - result was a nasty hangover. This is how it all started for me a couple of years ago - made me aware that I had a problem.
Anyway, I had a viral load test last Wednesday and the results are not back yet. They usually take 10 days to 2 weeks. So it is an anxious time again.
Thanks to you all for all the good wishes.
RSF
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
The following user(s) said Thank You: coral, mgalbrai, Mnem
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