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NZ News 6 years 2 months ago #26354
Hi all, Good day for me here with this page going live, had some wonderful support to get this rolling: seedthechange.nz/hepc-action/ Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The following user(s) said Thank You: DrJames, coral, Vororo, Greedfighter, Iain, Mnem, hanknassi, Mar, Cristine123 | |
NZ News 6 years 2 months ago #26356
Excellent project and really great effort on your part Hazel. The site is also nice and well organized, the only thing you should look at is that one of the main menu pages (impact) gives an error. Best of luck in this endeavour | |
NZ News 6 years 2 months ago #26608
Thanks Mar, tidied up now I think, but it is a work in progress. I have made it into the news here again on the subject of drug pricing, US and NZ. This reporter has been great; it never says quite what I want , there is always something but it is all traction of some sort. She did these 2 stories a day apart. In the first, one of my main motivators to study law finally was the prof in this story, with me and Trump, In the second, I get a couple of different messages and I like that I am backing up what the former head of Pharmac says about exorbitant pricing. The third one, this is a really mainstream commentator railing against the global drug pricing situation and pointing the finger. For enthusiasts only! www.stuff.co.nz/national/health/10385027...d-to-pay-for-it?rm=m www.stuff.co.nz/national/health/10385765...of-New-Zealand-drugs www.stuff.co.nz/national/health/10385127...is-big-pharma-donors Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
NZ News 6 years 2 months ago #26610
Great job Hazel exposing the reality of global pharma companies, and helping achieve the goal stated at the end of the third article "New Zealand will not be bullied". Hopefully no country will be, including the United States. | |
NZ News 5 years 11 months ago #26957
We finally have a plan to have Maviret for all (some clinical exceptions) here in NZ from October. Quite a bit in the news with World Hep Day www.odt.co.nz/news/dunedin/health/propos...c-treatment-welcomed www.radionz.co.nz/national/programmes/su...uss-hepatitis-c-cure And we have had these posters up all around the country this week Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The following user(s) said Thank You: DrJames, coral, Greedfighter, hanknassi, Mar, Jessica-Copeland-google | |
NZ News 5 years 11 months ago #26958
Great effort Hazel. It’s good to see some non accusatory, why should I bother messaging about why get tested for Hep C. With the tools shortly to be to hand I can see NZ rapidly catching and overtaking Australia in your elimination efforts. It is bad enough being beaten in the rugby. With a 2 1/2 year headstart weshould be so much further ahead here. YMMV | |
NZ News 5 years 11 months ago #26959
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
NZ News 5 years 11 months ago #26961
Congratulations Hazel, your hard work and all the other volunteers finally paid off P.S. The FixHepC designed poster looks awesome too | |
NZ News 5 years 11 months ago #26963
| Great work Hazel, so many great people in this community it really warms my heart. I was talking to my girlfriend about Dr James just the other day, i was telling her how he gets people medication so they can be cured and also has a forum where he answers people questions and worries and does this at no personal gain other than the fact he has helped people have a longer life, she was quite astonished. A selfless man and community |
NZ News 5 years 11 months ago #26967
Well said James_ mc85. S Diagnosed: 2001 GT1a , HCV since mid-70's. Biopsy 2010 F1 Fibroscan and Fibrosure 2018 F2 Treated in trial 2010 with Dac/Peg/ Riba and Relapsed. Resistance test 2017. Have Ns5a Rav Q30r/H58d enhanced from doing Dac. Start Tx. Jan 18th/18 w/ Vosevi /Riba 12wks. plus 6 wks.Viekira Pak +Sof/Riba(From Dr Freeman @GP2U) VL start: 1.6mill.ALT 125 AST 88 Wk. 4 Det @LLOQ <15. VL Wk.8 UND Alt &Ast 22 Wk. 12 UND EOT:UND EOT+12 >>>UND (SVR12)! ALT11 AST13 Nov6/18 SVR 24! | |
NZ News 5 years 11 months ago #26972
More... www.stuff.co.nz/national/health/10587475...-Hepatitis-C-by-2030 And look! Anywhere, anyone could do this, or posters, would love to see in other countries, ask Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
NZ News 5 years 11 months ago #27014
| Great job Hazel! You should be proud of your tremendous achievements! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
NZ News 5 years 7 months ago #27424
Dr James helping make noise for us here . Still unequal treatment, only vpak for geno 1 !'s If it wasn't for FixhepC, I don't know what this country would have done. So many of us have been saved this way. www.newsroom.co.nz/2018/12/12/359182/the...liminate-hepatitis-c Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
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