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NZ News 5 years 11 months ago #26354

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Hi all,
Good day for me here with this page going live, had some wonderful support to get this rolling:
seedthechange.nz/hepc-action/
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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NZ News 5 years 11 months ago #26356

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Excellent project and really great effort on your part Hazel. The site is also nice and well organized, the only thing you should look at is that one of the main menu pages (impact) gives an error. Best of luck in this endeavour :+1: :+1:
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NZ News 5 years 10 months ago #26608

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Thanks Mar, tidied up now I think, but it is a work in progress.

I have made it into the news here again on the subject of drug pricing, US and NZ. This reporter has been great; it never says quite what I want , there is always something but it is all traction of some sort. She did these 2 stories a day apart.
In the first, one of my main motivators to study law finally was the prof in this story, with me and Trump, :ohmy: :ohmy: so glad about that.
In the second, I get a couple of different messages and I like that I am backing up what the former head of Pharmac says about exorbitant pricing. The third one, this is a really mainstream commentator railing against the global drug pricing situation and pointing the finger. For enthusiasts only! :lol:
www.stuff.co.nz/national/health/10385027...d-to-pay-for-it?rm=m
www.stuff.co.nz/national/health/10385765...of-New-Zealand-drugs

www.stuff.co.nz/national/health/10385127...is-big-pharma-donors
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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NZ News 5 years 10 months ago #26610

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Great job Hazel exposing the reality of global pharma companies, and helping achieve the goal stated at the end of the third article "New Zealand will not be bullied". Hopefully no country will be, including the United States.
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NZ News 5 years 7 months ago #26957

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We finally have a plan to have Maviret for all (some clinical exceptions) here in NZ from October.
Quite a bit in the news with World Hep Day
www.odt.co.nz/news/dunedin/health/propos...c-treatment-welcomed

www.radionz.co.nz/national/programmes/su...uss-hepatitis-c-cure





And we have had these posters up all around the country this week
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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NZ News 5 years 7 months ago #26958

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Great effort Hazel. It’s good to see some non accusatory, why should I bother messaging about why get tested for Hep C.

With the tools shortly to be to hand I can see NZ rapidly catching and overtaking Australia in your elimination efforts.

It is bad enough being beaten in the rugby. With a 2 1/2 year headstart weshould be so much further ahead here.
YMMV
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NZ News 5 years 7 months ago #26959

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That was my motivator that got a laugh in a talk I did here on Friday,- come on! Great chance to beat Australia, even with a head start!
Must say though, Australians helped, more than a bit. Here is how good they look huge, also great as a handout size
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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NZ News 5 years 7 months ago #26961

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Congratulations Hazel, your hard work and all the other volunteers finally paid off :cheer: :cheer: Congratulations to New Zealand, looks like it's one of the very few countries destined to eradicate the disease in the short term.
P.S. The FixHepC designed poster looks awesome too :)
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NZ News 5 years 7 months ago #26963

Great work Hazel, so many great people in this community it really warms my heart. I was talking to my girlfriend about Dr James just the other day, i was telling her how he gets people medication so they can be cured and also has a forum where he answers people questions and worries and does this at no personal gain other than the fact he has helped people have a longer life, she was quite astonished. A selfless man and community #love
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NZ News 5 years 7 months ago #26965

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That's not a poster, this is a poster...

YMMV
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NZ News 5 years 7 months ago #26967

Well said James_ mc85.

S
Diagnosed: 2001 GT1a , HCV since mid-70's.
Biopsy 2010 F1
Fibroscan and Fibrosure 2018 F2

Treated in trial 2010 with Dac/Peg/ Riba and Relapsed.

Resistance test 2017. Have Ns5a Rav Q30r/H58d enhanced from doing Dac.

Start Tx. Jan 18th/18 w/ Vosevi /Riba 12wks. plus 6 wks.Viekira Pak +Sof/Riba(From Dr Freeman @GP2U)

VL start: 1.6mill.ALT 125 AST 88
Wk. 4 Det @LLOQ <15.
VL Wk.8 UND Alt &Ast 22
Wk. 12 UND
EOT:UND

EOT+12 >>>UND (SVR12)! ALT11 AST13
Nov6/18 SVR 24!
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NZ News 5 years 7 months ago #26972

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More...
www.stuff.co.nz/national/health/10587475...-Hepatitis-C-by-2030
And look! Anywhere, anyone could do this, or posters, would love to see in other countries, ask
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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NZ News 5 years 7 months ago #26973

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Very catchy and artistic, great job :+1:
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NZ News 5 years 7 months ago #27014

Great job Hazel! You should be proud of your tremendous achievements! :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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NZ News 5 years 3 months ago #27424

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Dr James helping make noise for us here . Still unequal treatment, only vpak for geno 1 !'s

If it wasn't for FixhepC, I don't know what this country would have done. So many of us have been saved this way.
www.newsroom.co.nz/2018/12/12/359182/the...liminate-hepatitis-c
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The following user(s) said Thank You: DrJames, coral, Iain, hanknassi, Mar
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