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TOPIC: after treatment ends how long till i feel normal and have energy

after treatment ends how long till i feel normal and have energy 4 weeks 2 days ago #27085

  • tanya_aa
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Hello everyone,

just a quick question please. I took my last pill on Tuesday, today is Sunday and i still feel horrible. I have no energy and feel different in so many ways. I had a hard time on my treatment as I'm super sensitive when it comes to tablets. Does anyone have any tips on feeling better please, and how long will this last?
I had my bloods done and I'm undetected which is great new, Had geno 1B and had hep C roughly 20 odd years, but just feel drained, please help
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after treatment ends how long till i feel normal and have energy 4 weeks 2 days ago #27086

  • Hazel
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Hi Tanya,
Seems common that people at the end of treatment seem to need, and feel better with, some vit D, and B12. I've seen lots of people go through treatment and it really varies- and perhaps depends what meds you took. But, big changes have happened, like you say, had it a long time, and is not uncommon to slowly feel better over 2-3 months afterwards. You might bounce back. Hope so, take it easy, it will happen.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan 40 down to 22 by 29/3/16- now down to 7, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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after treatment ends how long till i feel normal and have energy 4 weeks 2 days ago #27087

  • Songbird
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Hi Tanya

Sorry to hear you still are feeling crappy but nice to see you are Und. at the end of your treatment.

As Hazel mentions everyone will have somewhat different reactions.
My personal experience was I had-fatigue from the virus and fortunately quite quickly into treatment it started to lift and I do feel much better on that regard 3 months afterwards.

Keep in mind your body has been through a lot. You had the virus a long time and then it deals with potent drugs for quite an extended period then has to adjust to it having no virus and then abruptly stopping the meds.

Our poor old body’s must sometimes feel like we are treating it like a “theme park”.

It’s only been a few days.Treat your body well(proper diet, stay well hydrated, try to get sleep at the right time and some exercise)
If in time you don’t start to feel improvements then possibly a full work up by your doctor to look for cause.

Keep in mind , ridding yourself of HepC , is a great step towards our good health, however as we age good health is usually the result of many steps doing what we can to maintain good health.

S
Diagnosed: 2001 GT1a ,had HCV since mid-70's.
Biopsy 2010 F1
Fibroscan and Fibrosure 2018 F2

Treated in trial 2010 with Dac/Peg/ Riba and Relapsed.

Resistance test 2017. Have Ns5a Rav Q30r/H58d enhanced from doing Dac.

Start Tx. Jan 18th/18 with Vosevi /Riba 12wks. plus 6 wks.Viekira Pak /Sof/Riba(From Dr Freeman @GP2U)

VL start: 1.6mill.ALT 125 AST 88
Wk. 4 still Det @LLOQ <15.
VL Wk.8 UND Alt &Ast 22
VL Wk. 12 UND
EOT:WK.16 UND
EOT+12 >>>UND (SVR12)! ALT11 AST13
Last Edit: 4 weeks 2 days ago by Songbird. Reason: Spelling
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after treatment ends how long till i feel normal and have energy 4 weeks 1 day ago #27088

  • tanya_aa
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Thanks Hazel and songbird,

i will get some Vit D plus B12 today. I know its only early days so i will just take it day by day and see what happens in the next few weeks, months. Its mainly by legs and arms are so weak, brain fog is not so bad, and my eye sight worries me as its gone down hill. My tiredness is not to bad now but still early to bed and thats not like me. Just hoping it picks up quick as i need to get back to work, but at least i have got ridden of this horrendous disease after all this time. Thanks for all your help x
Last Edit: 4 weeks 1 day ago by tanya_aa.
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after treatment ends how long till i feel normal and have energy 4 weeks 1 day ago #27089

  • Tigerfan
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I had HCV for 40+ years, commenced Epclusa in February of this year, had my first UND a month later, and expect to have SVR next month.

My physical lifestyle involves swim, bike, run, and I had to stop all of that about one month into treatment because the Epclusa made me so dehydrated. It is only now that I am getting close to the shape that I was in a year ago.

So, my non-medical opinion is that eliminating the virus after 40 years requires months of readjustment simply because your body is dealing with a different metabolism.

L
1970's-Bad behavior as a teenager.
2001- Insurance Company denies coverage due to HCV positive
2002- Another HCV positive reading and referral to liver doctor.
2003-Commence Interferon Combination treatment. VL 205,088 after 3 months. Doctor says stop.
2007-VL 1,045,320.
2017-VL 3,121,174.
2.5.18-Commenced generic Epclusa.
3.7.18- VL Undetected!
3.13.18-US Abdomen Complete scan reflects "Normal echogenicity with no mass detected. No dilated intrahepatic biliary ducts".
8.1.18- VL Undetected!
Last Edit: 3 weeks 6 days ago by Tigerfan.
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after treatment ends how long till i feel normal and have energy 1 week 1 hour ago #27147

  • SHarmon
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It may seem strange but on Harvoni only drinking a lot of water every day fixed that for me.
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after treatment ends how long till i feel normal and have energy 6 days 17 hours ago #27152

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its now been 4 weeks and i"m still pretty much still the same. I have noticed may be a little more energy throughout the day, so thats a start i guess. Morning and night are the hardest, i wake up feeling horrible, no energy, feeling like some thing is wrong with my muscles, and at night I'm in bed at 8 8.30 sound asleep.
I haven't been drinking much water though mainly soft drinks. So as from today I'm just going to drink water and see if that makes a difference, i soon have to get a break, well i praying anyways...
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after treatment ends how long till i feel normal and have energy 6 days 15 hours ago #27153

  • SHarmon
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Please be careful with what you drink. Additives in energy drinks can lower the effectiveness of tx and really make you feel like crap as you drink more while on treatment. Red Bull and Monster are not the only soft drinks that add harmful to tx additives , MANY soft drinks now add this crap to so check the labels of everything and no Seville oranges or grapefruit (juice or the fruit) while on tx.
Last Edit: 6 days 15 hours ago by SHarmon.
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after treatment ends how long till i feel normal and have energy 6 days 11 hours ago #27154

  • tanya_aa
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Thanks for the information SHarmon, but no I'm not drinking Red Bull or Monster drinks, i only drink coke or pepsi, but yes been drinking lots for some reason. I did think maybe it could be that and now I'm cutting it and trying to drink more water, hope it helps i just won't to be normal again..
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after treatment ends how long till i feel normal and have energy 6 days 9 hours ago #27156

  • DrJames
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Hello tanya_aa,

You don't want to go cold turkey on the Coke/Pepsi because you're probably pretty used to being dosed with the caffeine, but the best fluid to drink is water, and the caffeine/sugar mix in Coke and Pepsi is not ideal - you get a brief hit of energy from the caffeine and sugar, then an energy slump as they start to wear off. On can a day is fine, but more than that is less than ideal...
YMMV
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