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TOPIC: Project Butterfly

Project Butterfly 4 months 1 week ago #27311

  • Hazel
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Hello,
It is our goal, intention, to get this butterfly symbol widespread recognition as equalling Hep C .
The World Hepatitis Alliance, No Hep has given me a place to talk about it this month- anyone you can think of that might help get it put there, please share.

www.nohep.org/story/nohep-supporter-spotlight-hazel-heal/
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Project Butterfly 4 months 4 days ago #27344

  • Hazel
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Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Last Edit: 4 months 4 days ago by Hazel.
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Project Butterfly 4 months 3 days ago #27346

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Great work Hazel, very very nice :+1:
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Project Butterfly 4 months 3 days ago #27347

  • Greedfighter
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Hi Hazel,

I'd love to see this message and the Butterfly spread throughout the USA. It's so ironic that the country where all these cures originate from, is the place where patients have almost no access to treatment unless they are in an advanced stage of cirrhosis.

My interpretation of the situation is that an organization would have to be based abroad, and then advertise the message in the media here via the New York Times or Washington Post. Any US citizen, under the current government, could face prosecution for somehow trying to profit, or to undermine the patents here. In the USA, a company can sue you and bankrupt you with legal fees. Or worse, have you found guilty of some kind of crime. America has become a fascist state. American patients need to know about generic medications!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
Last Edit: 4 months 3 days ago by Greedfighter.
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Project Butterfly 1 month 3 weeks ago #27600

  • Hazel
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We have had a great boost for Project Butterfly this week, as first featured story in the World Hepatitis Alliance Hep Voice news.
www.worldhepatitisalliance.org/sites/def...e_january_2019_0.pdf

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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