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TOPIC: mapCrowd: online HCV data collection platform

mapCrowd: online HCV data collection platform 3 years 1 week ago #10854

  • Joy
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This looks interesting, anyone can contribute.
www.treatmentactiongroup.org/hcv/mapcrow...atitis-c-information

Médecins du Monde (MdM) and Treatment Action Group (TAG) are pleased to announce the launch of mapCrowd (www.mapCrowd.org), an innovative online resource and data collection platform for gathering and sharing hepatitis C information. Following a successful trial period in which we obtained data from 23 countries, we are now making mapCrowd publicly available so that experts and advocates from other countries can help scale up this vital informational resource. mapCrowd is designed for people with HCV, activists, clinicians, researchers, and the wider international health community. Currently, it is available in English and French, and will be expanded in the coming weeks to include Arabic, Chinese, Spanish, and Russian.

We have also just published our first Key Findings Report, which details six key conclusions that we have drawn from our preliminary analysis of the mapCrowd data.

We encourage you to visit mapCrowd.org, download and read the Key Findings Report, and share these resources among your network. If you or someone you know is interested in participating as a voluntary mapCrowd data contributor, please visit mapcrowd.org/en/inscription. With your help, mapCrowd will be able to shed even more light on national hepatitis C conditions, to inform advocacy and ultimately break down barriers to diagnostic and treatment access around the world.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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