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TOPIC: Buyers Club Story NZ

Buyers Club Story NZ 6 years 2 months ago #13181

If you are in New Zealand bookmark 7 pm tomorrow night TV1 Sunday program where there is a story of NZ patients accessing generic drugs to treat Hep C

Here is the teaser link enjoy.

www.facebook.com/SundayTVNZ/videos/1203674709642705/
SVR 24
Last Edit: 6 years 2 months ago by Tina-Hill-facebook. Reason: Correct mistake
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Buyers Club Story NZ 6 years 2 months ago #13234

Thanks, I will watch that.
I think the Sunday program starts at 7:00pm - tvnz.co.nz/tv-guide
GT1 F4 compensated, I/F non-responder 1997
@2015-11-06 VL 3.5 x 10^6, started Twinvir
@2015-12-31 VL:UND
@2016-01-29 started 2nd 12 weeks of Twinvir
@2016-03-01 ALT=42 AST=42, other LFT in normal range
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Buyers Club Story NZ 6 years 2 months ago #13259

Cheers Tim
Yeah it is 7 :)
SVR 24
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Buyers Club Story NZ 6 years 2 months ago #13275

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This was great tonight, no link yet will put it up soon.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Buyers Club Story NZ 6 years 2 months ago #13277

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Here's a link. Once this file moves, we will have to register to watch it.
tvnz.co.nz/sunday-news
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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Buyers Club Story NZ 6 years 2 months ago #13283

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Here is a direct link to it:

tvnz-a.akamaihd.net/963482464001/201603/...ideoId=4808799956001
YMMV
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Buyers Club Story NZ 6 years 2 months ago #13284

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Awesome job.....well done to everyone who participated I think that's one of the most
balanced piece of reporting on Hep C thus far.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
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Buyers Club Story NZ 6 years 2 months ago #13286

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There is another thing happening in NZ. Tina mentioned that.....

In NZ we have a popular soap (much like Neighbours - Home and Away) called Shortland Street. 2 days ago they have introduced a Hep C story line where one of the core characters ( a surgeon) gets a needlestick injury from transferring blood into vacutainers. From the looks of things it's going to be a big story line and Shortland Street does a good job of educating about medical conditions.
YMMV
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Buyers Club Story NZ 6 years 2 months ago #13308

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Sirchinenge wrote:
Awesome job.....well done to everyone who participated I think that's one of the most
balanced piece of reporting on Hep C thus far.

Thanks Sir, i have copied your comment to share to Chris Heazlewood, the local guy in the story.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Buyers Club Story NZ 6 years 2 months ago #13310

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You're welcome Hazel!

I sincerely hope the NZ legislators watch it and decide to take some action on making the drugs available
I moan about Ireland a Lot, at least they provided access too sick patients like Chris.

Its fantastic we now have access and I for one am in awe of what Greg put in motion same for James
taking the steps too set up the the Buyers Club when everyone else looked on and did nothing.

Anyways, we're getting there we know Australia has taken note the rest of the world will follow..........

PS; you looked pretty cool on the bike James.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.
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Buyers Club Story NZ 6 years 2 months ago #13320

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Great piece of reporting, compassionate and detailed.

Absolutely with you Sir, here's hoping the NZ legislators see the need to really get on this as a matter of urgency, considering what Aust has accomplished.
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Buyers Club Story NZ 6 years 2 months ago #13322

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I am sure I don't speak for the majority but actually I don't want our government to do a deal with Gilead. I want them to say 'we will do business with an ethical provider". The whole world needs to do that. At best NZ Pharmac will only negotiate a deal that still only does say F4 (which would have included me, anytime in the past 17 years), unless it can get an uncapped deal like Australia, but we are too small to front up with a nice tempting billion. So we are still left with tens of thousands of people who could improve their lives dramatically who won't be in the queue. At this point I would prefer NZ health system to monitor us in the hospitals so we don't have to go private, have some trials going for free access, prescribe, and lets crowd fund for those who can't afford generics. Because otherwise, health system is spending whatever big dollars, (to a company whose conduct is unacceptable to me) for the meds when as private citizens we can get so much cheaper.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Last Edit: 6 years 2 months ago by Hazel. Reason: spell
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Buyers Club Story NZ 6 years 2 months ago #13343

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I have posted the link to the story on several sites in the U.S. Will the link stay "good" or does the piece need to be uploaded to YouTube?
Too good to lose...
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Buyers Club Story NZ 6 years 2 months ago #13357

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I'd say that would get great exposure on YouTube. Some generic title like "Hep C Buyer's Club" You'd have the whole world watching it :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Buyers Club Story NZ 6 years 2 months ago #13358

Good idea GF
Agent 86 can you post the story on you tube?
SVR 24
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