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My Viet. Vet. on tx at last! 8 years 3 weeks ago #14115
Hi everyone, Some of you will remember me talking about a Vietnam Vet friend who is on his second liver transplant & seemed to have been forgotten about by his Liver specialists , neglected. My hubby & I went with him to his last specialists appointment & stuck up for him, & pushed a little. Dr James said he'd help him with Generics, but his specialist kind of freaked out, worry about his rejection drugs interacting with the orals. But now I'm so happy to say, he's been given the orals, He's on Sof/ Dac for 24 weeks. He said he's feeling good although he's been a bit tired. He's stopped his reflux drugs & feels ok. I'm so happy for him. It's about time they helped him with this virus. He's such a lovely guy & all he did wrong was serve his country in a nightmare war & still suffers from that fact mentally. I'm surprised though that they're not keeping a closer eye on his bloods, he doesn't have bloods done until 4 weeks into tx. We are watching him though, talking to him every day, & he seems a lot happier. We make sure he's eating properly & drinking lots of water etc. SO excited that he's at last getting treatment My J ( J the Dragon Slayer) is doing well, 2 & half weeks to go for 12 wks post tx bloods He now has a girlfriend !! his very first. Being virus free has changed his life Good luck to all. Love Cindi x J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! | |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14120
Hi Cindi, Fantastic news about your friend. First tests at 4 weeks is standard for most not prescribed Riba, but I'm sure your watchful eye on him will avoid the very small possibility of any issues. I'm sure that within a few weeks the meds will give him a new lease on life. And young J.....wow, time has flown. Sounds like he is getting on with life Best wishes for both J and your friend. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: CJ | |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14125
| Hi Cindi That's great news for your friend......glad to hear he is now on treatment and kudos for yourself and your husband for getting him this far. What awesome news about J....and a girlfriend too.......he couldn't go wrong with a Mum like you that's for sure!! I'm having my blood test for SVR12 done in three weeks......so not far behind J. Here's to undetected!! Lives in Bendigo, Victoria No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal Insomnia the only side effect Undetected at 4 weeks SVR4 - undetected - all bloods good and GP very happy SVR12 bloods to be done at end of April 2016 SVR12 - undetected!!! The following user(s) said Thank You: CJ |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14155
Hi Gaj, Thanks, yes it's wonderful to see that his specialists are finally taking notice of him. He's been hanging around on the side lines being ignored for so long. He already feels some benefits, he's stopped taking his reflux tablets as he doesn't need them now. It so good to see him getting better & better. xo J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Gaj, Lynne-Francis-facebook | |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14156
Thanks Lynne, and I have fingers crossed for you. Its quite exciting !! xo J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Lynne-Francis-facebook | |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14158
| Good stuff! Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14182
Hi CJ, That's great to hear that your friend is finally receiving treatment. What a relief for him and for you and your husband who have been advocating on his behalf. It does make you worry about those that don't have someone in their corner to battle through the medical minefield. Wonderful news about J. Life is good. Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14190
| Thats good news Cindi please keep us informed of how he's doing. cheers Two time relapser. SVR 4 achieved 12/16 at last SVR 12 achieved 22/02/2017 The Bastard has been defeated GT 3 - about 28 yrs with HCV |
My Viet. Vet. on tx at last! 8 years 3 weeks ago #14225
Great news Cindi. Happy for you and yours and your friend. M This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
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