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My Viet. Vet. on tx at last!
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My Viet. Vet. on tx at last! 7 years 5 months ago #14115

  • CJ
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Hi everyone,

Some of you will remember me talking about a Vietnam Vet friend who is on his second liver transplant & seemed to have been forgotten about by his Liver specialists , neglected.
My hubby & I went with him to his last specialists appointment & stuck up for him, & pushed a little.
Dr James said he'd help him with Generics, but his specialist kind of freaked out, worry about his rejection drugs interacting with the orals.

But now I'm so happy to say, he's been given the orals, :cheer: and he started a week ago.
He's on Sof/ Dac for 24 weeks.
He said he's feeling good although he's been a bit tired.

He's stopped his reflux drugs & feels ok.

I'm so happy for him. It's about time they helped him with this virus.
He's such a lovely guy & all he did wrong was serve his country in a nightmare war & still suffers from that fact mentally.

I'm surprised though that they're not keeping a closer eye on his bloods, he doesn't have bloods done until 4 weeks into tx.

We are watching him though, talking to him every day, & he seems a lot happier.
We make sure he's eating properly & drinking lots of water etc.

SO excited that he's at last getting treatment :)

My J ( J the Dragon Slayer) is doing well, 2 & half weeks to go for 12 wks post tx bloods :)
He now has a girlfriend !! his very first. Being virus free has changed his life :cheer:

Good luck to all.

Love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Joy, LondonGirl, mgalbrai, sabrecat, Ariel, Gaj, IRMA88, Hazel, jay kim

My Viet. Vet. on tx at last! 7 years 5 months ago #14120

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Hi Cindi,

Fantastic news about your friend. :cheer: And good on you and your husband for advocating for him. :+1:
First tests at 4 weeks is standard for most not prescribed Riba, but I'm sure your watchful eye on him will avoid the very small possibility of any issues. I'm sure that within a few weeks the meds will give him a new lease on life.

And young J.....wow, time has flown. Sounds like he is getting on with life :woohoo: as someone his age should. :+1:

Best wishes for both J and your friend. :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: CJ

My Viet. Vet. on tx at last! 7 years 5 months ago #14125

Hi Cindi That's great news for your friend......glad to hear he is now on treatment and kudos for yourself and your husband for getting him this far.

What awesome news about J....and a girlfriend too.......he couldn't go wrong with a Mum like you that's for sure!!

I'm having my blood test for SVR12 done in three weeks......so not far behind J. Here's to undetected!!
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
The following user(s) said Thank You: CJ

My Viet. Vet. on tx at last! 7 years 5 months ago #14155

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Hi Gaj,
Thanks, yes it's wonderful to see that his specialists are finally taking notice of him.
He's been hanging around on the side lines being ignored for so long.

He already feels some benefits, he's stopped taking his reflux tablets as he doesn't need them now.

It so good to see him getting better & better. :cheer:

xo
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Gaj, Lynne-Francis-facebook

My Viet. Vet. on tx at last! 7 years 5 months ago #14156

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Thanks Lynne, and I have fingers crossed for you.
Its quite exciting !! :) #love
xo
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Lynne-Francis-facebook

My Viet. Vet. on tx at last! 7 years 5 months ago #14158

Good stuff!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20

My Viet. Vet. on tx at last! 7 years 5 months ago #14182

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Hi CJ,
That's great to hear that your friend is finally receiving treatment. What a relief for him and for you and your husband who have been advocating on his behalf. It does make you worry about those that don't have someone in their corner to battle through the medical minefield.

Wonderful news about J. Life is good.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24

My Viet. Vet. on tx at last! 7 years 5 months ago #14190

Thats good news Cindi please keep us informed of how he's doing.

cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

My Viet. Vet. on tx at last! 7 years 5 months ago #14225

Great news Cindi. Happy for you and yours and your friend.
M
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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