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TOPIC: Médecines du Monde Campaign & Petition

Médecines du Monde Campaign & Petition 5 years 3 months ago #18222

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Médecines du Monde have launched a petition and advertising campaign aimed at French Health Minister Marisol Touraine:

www.medecinsdumonde.org/

MDM also planned to launch a massive bill-board advertising campaign around Paris, but it was denounced by the Leem (French pharmaceutical industry) as "false propaganda"

www.leem.org/actualite/16-06/leem-denonc...de-medecins-du-monde

and the campaign has been "censured" by the French advertising standards agency (ARPP).

Here is a report (in French) on the campaign from Le Figaro

sante.lefigaro.fr/actualite/2016/06/13/2...tre-prix-medicaments

Nonetheless, MDM is continuing its campaign through advertising in the national newspapers and on-line

www.facebook.com/fr.mdm

In about one week since the launch on 13 June 2016, the petition has reached over 190,000 signatures.

leprixdelavie.medecinsdumonde.org/fr/la-petition

Here is an interview (in French) with Olivier Maguet, the campaign organiser

www.capital.fr/a-la-une/actualites/hepat...-afghanistan-1138665

According to Olivier Maguet (in the article in Le Figaro), "this is the first time that MDM has ever been censured."
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 5 years 3 months ago by Vororo. Reason: fixed first link
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18229

Big pharma leaning on politicians blimin gut turning :sick:
SVR 24
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18233

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Hi Tina,

Yeah, its quite possible that the someone whispered in someone's ear before someone from the "Leep" complained to the ARRP.

But according to this article, the efforts to suppress the Médicines du Monde campaign have largely back-fired, because the publicity around the censure caused a massive wave of interest, and MDM got 120,000 signatures in the first 48 hours.

multinationales.org/Une-campagne-de-Mede...s-facher-l-industrie

From what I can see today, they are still getting about 600 signatures per hour (now at 193,593).

Oops, now at 193,622, which another 29 in the time it took me to write this post :)
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 5 years 3 months ago by Vororo.
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18245

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Here is an English translation of the Médicines du Monde petition. Anyone from any country can sign up:

leprixdelavie.medecinsdumonde.org/fr/la-petition

Dear Minister of Health,

We are not teaching you anything by saying that the prices of medicines are constantly rising.

That such prices are absolutely unjustified.

That pharmaceutical companies are making outrageously colossal margins from treating the sick.

That the Social Security system is not able to pay for these treatments.

So we are teaching you nothing by saying that our Health System, and therefore our health, is in real danger.

So we would like to ask you a simple question:

When it comes to health, does the market make the law, or is it the State?

We therefore ask you to use all the legal and political means in your power to drastically lower the prices of innovative medicines.

Our health depends on it.

(194,232 signatures)
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 5 years 3 months ago by Vororo.
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18246

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Bonjour Vororo,

Merci beaucoup pour cette information, je l'ai signé :).
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18247

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Succinct, eloquent and elegant.


YMMV
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18252

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Simples :cheer:


G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18272

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fini et je vous remercie V :+1:


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18336

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So.... the threshold of 200 000 signatures has been reached !!! :+1:
It is heading now towards the goal of 250 000 signatures.
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
Last Edit: 5 years 3 months ago by rohcvfighter.
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18339

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My English translation of the article in Le Figaro:

sante.lefigaro.fr/actualite/2016/06/13/2...tre-prix-medicaments

Médecins du Monde launches a shock campaign against the price of medicines

Key words: Médecins du Monde, Sovaldi, innovative drugs, generic drugs, pharmaceutical industry
By Thomas Delozier – 13/06/2016

Médecins du Monde's “The Price of Life" campaign starts today, despite being censured by advertising companies.

“In France, cancer earns 2.4 billion euros per year"… "an outbreak of flu in December gives a year-end bonus" … "with 1 billion euros in profit from hepatitis C, we're doing very well.” … These shocking and cynical phrases are not lost to Médecines du Monde. In their latest poster campaign, "The Price of Life", the NGO takes on the very high drug prices charged by the pharmaceutical industry and calls for a petition to be signed.

At stake are the exorbitant prices of drugs which lead to rationing, according to the NGO. Let's take Sovaldi. Today, this innovative treatment against hepatitis C costs € 40,000 per patient. With about 230,000 people infected by this virus, treating every infected patient would cost more than 9 billion euros. “At these prices, the social security system cannot afford to cover the cost for everyone,” explains Olivier Maguet, who is in charge of the "Medicine Prices and the Health System" campaign, of which "The Price of Life" is a component. He adds "we find ourselves in the same situation as Mozambique or Zambia: we cannot treat people because we don't have enough money. We have to make people aware of this crazy situation.”

However, don't expect to see campaign posters for "The Price of Life" in all the metro stations or bus stops. They will be visible only through fly-posters, social networks, and the press. The three companies engaged by Médecins du Monde to advertise "The Price of Life" have refused to do it.

Media Transport justifies its decision in two ways: "there is a risk that the pharmaceutical industry could be negatively concerned by these posters", and, "the reference to serious diseases could be perceived as offensive by people suffering from those diseases." JCDecaux shares the second reason and adds “a lack of sources”. These two companies say they must follow the recommendations of the Professional Advertising Regulation Authority (ARPP), which delivers more than 15,000 recommendations annually to the media. The third company, Insert, could not be contacted.

Meanwhile, pharmaceutical companies are denouncing “a deceitful propaganda campaign” from Médecins du Monde and that its slogans "are not only damaging to industry, they are particularly shocking and disrespectful to the millions of people who fight daily against disease.”

Industry is not the main target of the campaign

“This is the first time Médecins du Monde has ever been censured,” said Olivier Maguet. “This clearly shows that we are pressing where it hurts. However, this is quite ironic because we do not mention any drug or laboratory names in the posters. We have nothing against the pharmaceutical industry, we need their medication, and we respect their profit motive. They are not our main target, it is the State! Because the State leaves them to it."

To alleviate the exorbitant price of Sovaldi, Marisol Touraine last month announced universal access to treatment, and not just critically ill patients. She also promised that the Economic Committee of Health Products (CEPS) was going to negotiate a lower price. Olivier Maguet's response is that "we welcome the intention, but at the moment these are just promises. The CEPS remains quite opaque and allows little transparency. It's a shame to follow that route, especially since there is another more radical way: the compulsory licence.”

The compulsory licence, permitted by article L613-615 of national law, allows the creation of a generic from a patented medicine if “it is made available to the public in insufficient quantity or quality or at abnormally high prices". These conditions make Sovaldi eligible. A compulsory licence greatly reduces a drug's price while providing royalties to the company that created the product so that it benefits financially.

Why has Marisol Touraine has not chosen this solution? “We asked her two years ago and she still has not replied yet,” regrets Olivier Maguet. “The only response we have is that she considers it to be a 'weak legal instrument'. This is wrong!” Despite its low use – only a few times since the 1950s - the method is terribly effective. To refuse, a laboratory must engage in a legal battle which is very costly in terms of both money and image.

In 2001, 39 pharmaceutical companies filed a lawsuit against the Government of South Africa when it tried to promote the production of generic AIDS medications. The procedure stopped mid-way, and prices tumbled. "Unfortunately, this legal tool is not known to the general public,” says Olivier Maguet. "With this campaign, we want to go further than the simple status quo. We want to create a public discussion so that this situation might change."
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 5 years 3 months ago by Vororo.
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The following user(s) said Thank You: Ariel, fitz

Médecines du Monde Campaign & Petition 5 years 3 months ago #18342

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I can't sign. US is not on the list.

Passing it to Brazil
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18343

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Price wrote:
I can't sign. US is not on the list.

Passing it to Brazil
Salut Price,

Vous ne connaissez pas que vous habitez aux Etats - Uni !?!?

Notre Guillaume :)
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
Last Edit: 5 years 3 months ago by Vororo. Reason: Hi -> Salut :-)
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18344

  • Ariel
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Alors!

Look!
The United States you scroll to find and its there. As V said. It's simple. Any US citizens can sign. So can Brazil!!

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18389

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What can I say? In CA we're only required to speak Spanish, not French. :(

Got it Ariel

P
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Médecines du Monde Campaign & Petition 5 years 3 months ago #18390

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Estados Unidos and Etats Unis is reasonably similar, sorry, the smart arse gene is working overtime today
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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