Hi all!
An update from me and where Im at with the treatment so far. On the 18th of Dec I will have 3 weeks left to go of the 16 weeks taking Maviret and Sofosbuvir. Things are still a bit rocky mentally and the headaches still occur, but Im almost there. I've lost a lot of weight (close to 10kgs) which is connected, I believe, to the depression and its associated disinterest to food, insomnia etc.
I have another general meeting with my specialist next week but I havent had a blood test for this one.
I know I have to wait 3 months after the last dose to get a verdict, but should I have a test done at the end of the treatment i.e day after finishing or thereabouts (for a general overview of functions etc) or just finish it and then do the 3 month purgatory ending bloods?
I usually have to remind them of things so should I be asking for an ultrasound sometime between now and the final blood test and if so, when would you recommend is an appropriate slot along the time frame between now and mid April?
The 3 month wait feels like its gonna be intense, so does anyone have any suggestions or tactics to get through it or is it basically strap yourself in and count off the days?
Of course the result could go either way come mid April 2020, so Im wondering whether there is an existing thread, website, book or other resource available that would be informative and helpful in guiding someone through the stages, steps or realities of being left with Hep C and Cirrhosis? Something that addresses the changes in health that will occur and useful strategies to cope with the progression of the illness? Would it also be useful to yourselves and general research to create a diary of thoughts, observations and test results should that be the outcome? Remember I am a pessimist and have to prepare for any outcome as a rule of thumb, but you generously opened the door for me to try once more and have supported me through this and I would like to give back some of that energy if I can.
Anyway, I hope you all have an enjoyable and relaxing Christmas if I don't get the chance to post again before then. Have fun with your loved ones and don't take things too seriously!
Respect to you all
g