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TOPIC: Daily Mail UK

Daily Mail UK 5 years 11 months ago #16941

Hazel
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Great story here congratulations Kim Crisell
www.dailymail.co.uk/health/article-36167...warn-s-big-risk.html

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

Last Edit: 5 years 11 months ago by Hazel.

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Daily Mail UK 5 years 11 months ago #16942

Ariel
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Cured, SVR 24
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Thank you Hazel
Fantastic
I have to send this article on to a few people in the UK it's fantastic ty ty
Ariel

Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

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Daily Mail UK 5 years 11 months ago #16944

Gaj Offline Moderator Optimist :-) Posts: 1436 Thank you received: 3082 Karma: 32	Congratulations to Kim and David on a great article. And good to see there are also consultants in the UK prepared to go public about monitoring patients.
	G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND Last Edit: 5 years 11 months ago by Gaj. The administrator has disabled public write access. The following user(s) said Thank You: Debs, Ariel, Meg, GT2, fitz

Daily Mail UK 5 years 11 months ago #16951

Hazel Offline Platinum Member Posts: 414 Thank you received: 1699 Karma: 39	Yes, thanks Gaj, I have been itching to get out of lectures and back to computer to correct that. So,thanks too to David Ritchie in that article and great to see redemption co-author Dr Andrew Hill
	Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The administrator has disabled public write access. The following user(s) said Thank You: Vororo, Tricia, Meg, GT2, fitz

Daily Mail UK 5 years 11 months ago #16953

emilio Offline Moderator In the field of opportunity its ploughing time Posts: 382 Thank you received: 475 Karma: 8	Awesome stuff, thanks for sharing Hazel. Great advertisement for generics also. Em
	Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. The administrator has disabled public write access. The following user(s) said Thank You: Gaj, Meg, GT2, fitz

Daily Mail UK 5 years 11 months ago #16955

Vororo
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Thanks, Hazel. Great to see the message is starting to seep through. And thanks also for your own great efforts.

But I must say, the Gilead response was a bit thin.

"A spokeswoman for Gilead said the company would negotiate on price if asked. 'We remain ready and willing to continue discussions with the government and NHS England in the public interest and in a constructive manner,' she told Good Health."

Still, this is a big step forward from the usual "not available for comment", and it almost seems like Gilead is accepting that the ball is now in the NHS court.

Dear NHS, what are you waiting for? Don't you read the news in France?

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).

Last Edit: 5 years 11 months ago by Vororo.

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Daily Mail UK 5 years 11 months ago #16956

Hazel Offline Platinum Member Posts: 414 Thank you received: 1699 Karma: 39	I had some fun in the comments section, and Kim says there is a Times interview pending.
	Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The administrator has disabled public write access. The following user(s) said Thank You: Vororo, Gaj, Tricia, GT2, fitz

Daily Mail UK 5 years 11 months ago #16961

DrJames
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But I must say, the Gilead response was a bit thin.

"A spokeswoman for Gilead said the company would negotiate on price if asked. 'We remain ready and willing to continue discussions with the government and NHS England in the public interest and in a constructive manner,' she told Good Health."

This is a significant change in attitude. Prior to this the Gilead party line was:

Gilead defended the price. “We believe the price of Harvoni reflects the value of the medicine,” it said in a statement. “Unlike long-term or indefinite treatments for other chronic diseases, Harvoni offers a cure at a price that will significantly reduce hepatitis C treatment costs now and deliver significant health care savings to the health care system over the long term.”

www.nytimes.com/2014/10/11/business/harv...a-approval.html?_r=0

YMMV

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Daily Mail UK 5 years 11 months ago #16966

GT2
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Thanks Hazel

A very well written and balanced article presenting the facts as they stand today ... let's hope there'll be more journalists and medicos willing to stand up and draw attention to the gross injustice of one company buying the rights to a life saving medicine and then extorting governments, insurance companies, and patients for access to it.

The tide is turning ...

1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected

, FBG 11.9

17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72

(Accu-Chek Mobile & Omron Auto BP Monitor)

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Daily Mail UK 5 years 11 months ago #17012

Tina-Hill-facebook Offline Platinum Member Posts: 733 Thank you received: 1602 Karma: 8	Fantastic story guys!
	SVR 24 The administrator has disabled public write access.

Daily Mail UK 5 years 11 months ago #17286

LondonGirl
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Lots of heroes in that article; Dr Freeman, UK Drs Andrew Hill and Graham Cooke - Extra bravery award goes to the patient Kim

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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