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TOPIC: Darvoni story

Darvoni story 5 years 4 months ago #17156

  • Hazel
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Excuse cross postings of these, but this was news to me, and a great story. Further evidence if you need it of the impact Dr J is having on the world: www.hepmag.com/blog/italian-job-good-news
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Darvoni story 5 years 4 months ago #17161

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Doctor James is a hero and is being treated as a petty criminal by the Australian thugs who call themselves a government
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Darvoni story 5 years 4 months ago #17162

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Hazel wrote:
Excuse cross postings of these, but this was news to me, and a great story. Further evidence if you need it of the impact Dr J is having on the world: www.hepmag.com/blog/italian-job-good-news

And just for completeness, Beacon have made an absolutely superb web site specifically for Darvoni:

www.darvoni.com
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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Darvoni story 5 years 4 months ago #17177

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And the best part....Darvoni is unlicensed!
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Darvoni story 5 years 4 months ago #17178

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Looking at their site it seems you can just fill in a form and order the meds. Is that right?
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Darvoni story 5 years 4 months ago #17235

  • tweakmax
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Is it true doc James gave the name darvoni
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Darvoni story 5 years 4 months ago #17242

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It was one of the names I suggested back in October last year when I was asking companies in Bangladesh take advantage of their ability to produce it, but the notion of Sofosbuvir+Daclatasvir as the single pill pangenotypic cure for the world belongs to Dr Andrew Hill.

Both Beacon (Darvoni) and Incepta (Corevigen) had the foresight to produce this product and it would be great to see it widely deployed.

Forwarded message
From: GP2U Telehealth <This email address is being protected from spambots. You need JavaScript enabled to view it.>
Date: 1 October 2015 at 21:44
Subject: Re: sofosbuvir
To: Tamal <This email address is being protected from spambots. You need JavaScript enabled to view it.>

Thanks Tamal,

Can I make suggestion.

Make a combined tablet called Darvoni or Daclovir or Diclovir or >>>>> Duovir <<<<< I like this name

Sofosbuvir 400 + Daclatasvir 60

This product will be market leader in 1 year. This single tablet is the product the world needs.

I would like box to contain 28 tablets (not 6 like Twinvir - that is silly number 14 boxes for 1 course of treatment!)

2 boxes == 8 weeks treatment
3 boxes == standard 12 weeks treatment

Kind Regards

James
YMMV
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Darvoni story 5 years 4 months ago #17243

  • Woobia 22
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If the product is not licenced does that mean you dont need a prescription to import drugs to Australia. Cost is reasonable.

I paid $ 2700 usd for 12 months supply from Natco India so not having to fly over and get 48 weeks for $ 2800 usd seems ok.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

Barry Ashton
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Darvoni story 5 years 4 months ago #17244

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The prescription requirement in most countries relates to the fact that possession of a scheduled prescription only medicine is an offence without a prescription. So if you look at Australia it's legal to bring it in, but you become a felon taking possession (without a prescription).

In New Zealand transiting customs requires that a local NZ prescription exists so the rules vary from country to country.
YMMV
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Darvoni story 5 years 4 months ago #17245

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So I can import it into Australia as long as I have an Australian prescription.

I just thought when it said Darvoni wasn't licenced it would be legal in Australia without one.

Customs told me that with the sof / dac I only needed any Doctors Script as I thought I needed a Specialist. I ended up getting a Specialist to write it and they put on it to take 2 morning and night and the Liver Surgeon in India had no problems getting that amount through him for me. It was ordered 11am and delivered to my hotel at 7pm that night by the rep.

It looks like I better check customs again as 2 different times I was told the above.

Thanks for the reply Doc.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

Barry Ashton
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Darvoni story 5 years 4 months ago #17252

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I ended up getting a Specialist to write it and they put on it to take 2 morning and night

There are no DAAs where the prescription is take 2 in the morning and 2 at night other than Ribavirin where that would make sense.

What genotype are you, level of fibrosis, and what have you been prescribed?
YMMV
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Darvoni story 5 years 4 months ago #17255

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Sorry Doc I think I better stop posting as I dont seem to make sense.

I only take 1 per day and my Doc/ Spec just wrote the script so i could get 12 months supply as the majority of custom officers wouldn't really know the real dose.

Not 100% on what fibrosis etc as I get confused with the number and will check it.

Regards Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

Barry Ashton
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Darvoni story 5 years 4 months ago #17319

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I have emailed Beacon Industries and am waiting to see if I can get Darvoni without a prescription in USA.
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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Darvoni story 5 years 4 months ago #17342

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They told me I am hep c genotype 1a Cirrosis.

Pretty easy mob Darvoni to get answers from as emailed them yesterday and answers within 5 min all good.

Just need an australian script to get it through customs legally.

Regards Barry
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

Barry Ashton
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Darvoni story 5 years 4 months ago #17371

  • beahavan
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Md Shahariar Tamal Selim gave me the email address of someone who supposedly got the Darvoni in the USA. I emailed but am not sure if he was saying that he actually got the drug? Very vague response. Not too helpful. One does need a prescription in the USA. Does anyone know of a real world success?
G4
F0-F1
diagnosed in 2006
Tx naive
Treatment started 8/12/16, Ledipasvir/ Sofosbuvir (Harvoni) supplied by Monkmed
8/1/16 ALT 36 AST 40
1/4/17 ALT 17 AST 21
7/13/17 ALT 17 AST 25
12/28/17 ALT 22 AST26
2/22/18 ALT 19 AST 25
7/10/18 ALT 26 AST 32
1/8/19 ALT 16 AST 28
7/2/19 ALT 16 AST 26
Hcv Rna, Quantitative Real Time Pcr <15 NOT DETECTED (IU/mL) NOT DETECTED
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