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TOPIC: New Zealand reacts to Medsafe

New Zealand reacts to Medsafe 5 years 4 months ago #18075

  • Hazel
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Really happy with this for coverage, if not the situation, great job Naomi Wickens fronting so there could be a story, and good to see some different doctors putting their names out.
www.stuff.co.nz/national/health/81054298...p-battle-hepatitis-c
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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New Zealand reacts to Medsafe 5 years 4 months ago #18076

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Thanks for posting that Hazel. Great article! :+1:

Press coverage like that would be a dream here in the US.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Last Edit: 5 years 4 months ago by fitz.
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New Zealand reacts to Medsafe 5 years 4 months ago #18077

Thanks for posting Hazel and being the driving force for firing up Cate Broughten who by the way has written a splendid article.

Kia Kaha Naomi! Thank you for having the courage to share your story, Im also REALLY happy that we have doctors here that are putting their name to the cause.

Yipee. :+1:
SVR 24
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New Zealand reacts to Medsafe 5 years 3 months ago #18832

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Here is Allison from our local hep C resource centre, which has had its funding cut. This was done at very short notice, (she has missed some genotypes, lol) but good job!. She has been doing this for years on virtually minimum wage, she used to get invited to the higher level strategy meetings but asking questions like- hello- what about daclatisvir- (which is virtually unheard of here)- and other inconvenient things, she has only about 3 months left until closure.

And an update on the Medsafe story in this article: Allison, Tina and I have been talking direct to some doctors here and although the wording of the accompanying letter is off putting, they seem happy to sign the necessary letter, that is specific to Redemption. There are only 2 versions; that one and one for all other suppliers and in fact any other medicine. The Redemption one gives them confidence about their patients using their prescription for this supplier only, which is what most doctors obviously prefer. Great job FixHepC getting this set up as we can point to it as a pretty strong endorsement of this supply chain.

www.dunedintv.co.nz/news/hepatitis-c-drug-funding-applauded
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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