emo Untold stories of HepC in Canada

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5 years 9 months ago #21333

I came across this video. Thought of sharing with friends here. #flower #flower


Nishkama Karma
Cùng nhau loại bỏ Viêm gan C trên khắp thế giới!
Last Edit: 5 years 9 months ago by Hieupham.
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  • Vindecat de HCV cu med. generice. Cured with generics HCV drugs.
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5 years 9 months ago #21351

Hi Hieu,

a very interesting video and also very emotional. I had to stop seeing it after 10 minutes, however will try to watch it entirely this week-end.
It left me .... NO COMMENT and reflecting on the real size of what HCV means today on a worldwide level!

Cheers,
RHF


In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: Ariel, beaches, Hieupham, fitz

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5 years 9 months ago #21364

Thank you Hieu
Re how the video starts off;
I had no idea what HepC was when I was told that I had it. Nobody is stupid or bigoted or idiots just because they hadn't heard of it (now I'm crying) It doesn't mean we are bad or wrong we just never heard about it. It's the world media at fault and lack of funding for doctors and education and resources and lack of openness and honesty, they're at fault.
(I also learned about stigma a crash course.)

This video for me highlights why I wound up on old tx with no protocols no education and a VL of 420,000 only
I had no idea. No Fibroscan prior, no scans at all, how would I know of such a thing when I wasn't told of them, and yet after the failure my new specialist did one and I am f0

It was a whole new world to me; everything.

Now I'm out the other side and I hope I can help others who are lonely and in shock too that's all I want to do now.
A


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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5 years 9 months ago #21369

I've just beeen able to see the full video. There were quite some things that were told there which I also experienced.

The video is in my view part of an awareness program. The ending of the video left me .... outraged. Again and again and again it was mentioned that there is a cure, but it was not specified how that cure look like and how to access it. A major problem that is not so much approached is that HCV is constantly associated with a very expensive cost. So I felt again like before getting treated with generics: dissapointed that somewhere there is miraculous treatment which will not be provided to me and for which I should continue to wait and hope.

Things about HCV should be explained in a much simple way so that people can gain trust.

Let's take the example of a 150 KM ride:
- accessing the current branded treatment is like asking the patient to run these 150 KM. Are you fit enough (i.e. have enough money)? Then start running? Or sick enough (qualify for treatment via the healthcare system)? If yes, we (healthcare system) can get you treated.
- accessing the generic treatment is like paying the bus ticket, take the bus, drive 3-6 hours (where 1 hour = 1 month of treatment) and here you go, you made the 150 KM trip.

Since many of the 200 millions HCV patients are not sick enough (yet), running 150 KM sounds like mission impossible, however buying the bus ticket should be very convenient. They would just need to know that there is a bus and from where to take the ticket.

Cheers,
RHF


In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: DrJames, Ariel, beaches, Hieupham

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