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TOPIC: HCV New Drugs Blogspot

HCV New Drugs Blogspot 5 years 10 months ago #3844

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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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HCV New Drugs Blogspot 5 years 10 months ago #3873

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Dang, we will be mainstream before we know it!
YMMV
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HCV New Drugs Blogspot 5 years 10 months ago #3910

  • LondonGirl
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Some of the people of this forum have brought me to tears with their kindness. Thank-you (you know who you are ).
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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HCV New Drugs Blogspot 5 years 10 months ago #3923

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Well, this will bring a different sort of tears....

hepatitiscnewdrugs.blogspot.com/2015/12/...n-finds-revenue.html

Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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HCV New Drugs Blogspot 5 years 10 months ago #3932

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WOW!

It is so good to hear American senators Wyden and Grassley really taking this thing seriously.

All credit to Mike for posting this SEISMIC story. I just want to add the following link so it is officially on the fixHepC site:

Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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HCV New Drugs Blogspot 5 years 10 months ago #3933

  • LondonGirl
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Yes, just reading all the reports coming in on Twitter - Great to see the concerns being raised.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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HCV New Drugs Blogspot 5 years 10 months ago #3934

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....and the ripples start to form into wavelets

may the winds blow stronger!

G
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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HCV New Drugs Blogspot 5 years 10 months ago #3935

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This is good news and certainly needed, but really...18 months to confirm what everybody already knew and what was as completely obvious as anything could be? Gilead never provided any viable or beievable rationale for those prices.

Now the good senators should calculate how many people died as a result of not getting access due to those high prices and Order reparations to the families of Gileads' victims, but I would not bet on that ever happening. Perhaps a class action lawsuit might work, but that will bring no real comfort to those who have lost loved ones that could have been saved--at best maybe will send a message to any other unscrupulous profiteers.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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HCV New Drugs Blogspot 5 years 10 months ago #3942

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Ouch!

"Report Includes Landmark Release of Medicaid Data: In 2014, More than $1 Billion Spent by Medicaid Programs on Sovaldi Treated Less than 2.4 Percent of Enrolled Patients with Hepatitis C"


What staggering numbers left untreated. And to think it didn't need to be this way, but for unfettered predatory pricing...
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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HCV New Drugs Blogspot 5 years 10 months ago #4005

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Well Here's more!!

hepatitiscnewdrugs.blogspot.com/2015/12/...ug-for-veterans.html


Diplomacy: Learning to say "good, doggy, doggy", until you can find a big rock.
-Will Rogers

We need to find a big rock for Gilead, instead of trying to make deals with them.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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HCV New Drugs Blogspot 5 years 10 months ago #4118

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Hi Everyone

I'm starting to see fixhepc among most of my 'hepatitis c' searches on google. Haven't tested on the .com only .com.au but would be interested to see how this goes.

Not sure if this has been mentioned before here but could committed forum members take the time to comment on our blogs on the front page, I think in terms of google analytics these get spread and are more responsive than postings inside the forum. I don't pretend to understand this stuff (analystics) but have a strong sense that we should be seen to be active and it's great for first appearances, at the very least. Thanks peeps, F I X H E P C R E V O L U T I O N!!!!!!! Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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HCV New Drugs Blogspot 5 years 10 months ago #4151

  • Vororo
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emilio wrote:
Hi Everyone

I'm starting to see fixhepc among most of my 'hepatitis c' searches on google. Haven't tested on the .com only .com.au but would be interested to see how this goes.

Hi,

I just tried searching for "hepatitis C" on Google USA with no country-re-direct (www.google.com/ncr) and sadly FixHepC did not appear in the first 37 pages offered. However, Pamela Anderson got two hits (hmm, crude joke brewing there?).

On the other hand, in the UK, the report by senators Wysley and Grassley on Gilead's greed came up on the first page of results:

fortune.com/2015/12/02/senate-gilead-medicaid/

and Pamela Anderson got another hit (it's true!), but sadly still no fixHepC in the top 37 pages.

Maybe fixHepC should consider investing in a sponsored link on Google on the basis of "if you can't beat 'em join 'em"?

I have no idea about the cost, but I'd be happy to contribute to that personally!
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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HCV New Drugs Blogspot 5 years 10 months ago #4918

  • mgalbrai
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This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 5 years 10 months ago by mgalbrai. Reason: addition
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HCV New Drugs Blogspot 5 years 10 months ago #4953

  • CJ
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So does this sort of mean they may be able to help already cirrhotic livers or prevent them becoming cirrhotic?

Like if the livers already cirrhotic, can they fix those veins?
Is that the gist of it?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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HCV New Drugs Blogspot 5 years 10 months ago #4954

  • Paul-Jarman-facebook
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It seems to be saying they may be able to reverse the process somewhat which would be good if true and available.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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