×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me

TOPIC:

worser and worser...should be a scandal 8 years 3 months ago #4361

"There is coming a tipping point when the Civil Unrest caused by the rationing and deprivation of these life-enhancing medical developments will become such that the whole house will be brought down and the trough with it. That event will be good for nobody."

I need to contradict myself on what I previously wrote above. On thinking about it, that was a naive statment. Of course it would suit the purposes of some factions to have runaway Civil Unrest. Duh! Especially if Martial Law were to be declared, thus removing the last civil rights of the citizens. Therefore it is more essential than ever for the citizens, the ordinary members of the public, to get the situation defused before it comes to that. We urgently need to get the checks and balances identified and into place. There is a lot more at stake than just the immediate situation with Gilead.

dt

worser and worser...should be a scandal 8 years 3 months ago #4363

mgalbrai wrote: P J!!!!!!!!
My Man!!!!!
We can script a lively, informative narrative over there.

Thank you.
Mike


I better get my post count up a bit first.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The following user(s) said Thank You: mgalbrai

worser and worser...should be a scandal 8 years 3 months ago #4379

Could it really be starting already???

www.bidnessetc.com/58797-gilead-sciences...clining-hcv-scripts/


One can only hope.
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

worser and worser...should be a scandal 8 years 3 months ago #4381

They are still making money but the US insurers are bleeding and can't afford the meds. I would think that they and not congress or anyone else will be the ones who force bigpharma to drop their prices I think.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
The following user(s) said Thank You: mgalbrai

worser and worser...should be a scandal 8 years 3 months ago #4386

Good point. Insurers should be filling airplanes with people going abroad to get treatment.
50 people a day x 365 x $100,000 = $1,825,000,000 that Gilead will never see. Even with their discounts, that would still save the insurance companies almost a billion dollars.
Math is not my strong point, so someone needs to check my figures.
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

worser and worser...should be a scandal 8 years 3 months ago #4387

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

worser and worser...should be a scandal 8 years 3 months ago #4502

" Insurers should be filling airplanes with people going abroad to get treatment."

So the question is - why is this not happening?
Is there some law in the US which prevents insurers from doing it, ie. could they legally do it if they wanted to?
Or could they legally fund the insuree to go abroad via a Medical Tourism operator who manages the trip details?

I'd like to know specifically which US law(s) would be broken if this were to be done?

dt
The following user(s) said Thank You: mgalbrai

worser and worser...should be a scandal 8 years 3 months ago #4505

Good question DT,
My health coverage is through the state. Every state and public school employee is on this plan. It has over 70,000 members. If I get sick abroad, my insurance will cover me, but it will not cover medication if I travel abroad to get it. I forced them to cover 8 weeks of Harvoni under the external review provision of the Affordable Care Act after an 18 month battle. During this protracted process, I asked them to give me the medicine at 100% co pay. That would have been nothing out of their pocket and $39,000 out of mine. Their answer: "We don't negotiate."
If overall infection percentages are applied to my group, around 700 have HCV. At $58,000 for a 12 week treatment (their price), it would cost $40,600,000. If they paid airfare, medical and medicine costs to send us to Australia, it would cost around $2.8 million to cure us all. This makes no sense.
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

worser and worser...should be a scandal 8 years 3 months ago #4558

Thanks for that explanation Mike.

I can see that the State coverage is not the place to look for innovation, but I am still wondering if there is no health insurer in the USA who can do the math and realize the potential in front of them. Because it is so huge, I think that this is an idea well worth pursuing. Here's one article that gets it:
www.corporatewellnessmagazine.com/editor...urism-market-update/

HepC treatment is ideally suited to medical tourism. For the people who just need to get their meds there are no onerous medical procedures to undergo or long stays in hospital, so the risks are no greater than going on an organized foreign package holiday. I think it could take off. We just need the first large US employer to go for it. The rest will follow. And what the US does, the rest of the world will do.

This could be the way in that changes the game. Just need to get the figures out there and let them speak for themselves. If we can't remove greed from the equation then let's get it working FOR us.

dt
The following user(s) said Thank You: mgalbrai

worser and worser...should be a scandal 8 years 3 months ago #4627

  • Vororo
  • Vororo's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 334
  • Karma: 15
  • Thank you received: 1047
Well, mail order should be ideally suited for HepC treatment. Already this is not a problem for the USA, UK, NZ...

The only problem at the moment is the price. Very few people would want to risk having a shipment worth $1000 confiscated. But if it was reliably available for say $100 per month (or whatever is your cost/risk threshold), just order it on-line. For other countries, who cares if one or two packages get stopped? Customs services can't check every package.
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
The following user(s) said Thank You: mgalbrai

worser and worser...should be a scandal 8 years 3 months ago #4629

You are right V,
We just need someone that will ship to the U.S. This would provide access to a large number of people who simply don't have the time or money to travel halfway around the world. If U.S. Customs detains a package, they have to notify you and give you 30 days to get it "undetained". The amount of hell I could raise in 30 days........
The head of Customs would be begging me to take it off their hands and shut up...
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

worser and worser...should be a scandal 8 years 3 months ago #4631

Mail order or medical tourism, I don't care. The point I want to make is that the price wouldn't be a problem if your medical insurance was footing the bill, as it should do. Maybe they just need a little more 'encouragement' to see that they could save a whole lot of money and satisfy a lot more of their customers by finding a way to legally fund the generics. The money saved has surely got to be greater than the amount in bribes that even Gilead can come up with.

dt

worser and worser...should be a scandal 8 years 3 months ago #4632

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
,Yes, I reckon we need the Pharma's Market trusted suppliers to nominate which countries they are able to ship to and then a section where different countries customs rules/access/risk of seizure can be posted.
Then people without Australian delivery address and who can't travel can look at both and work out whether their customs will allow meds through and then find a supplier prepared to ship to their country. Or a country next to theirs that they can reach easily or have rels in.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

worser and worser...should be a scandal 8 years 3 months ago #4633

The Insurers wouldn't dare risk upsetting drug companies they are in the same business, making money.

The monthly meds seems like a good idea though, may have to add a few more bucks for handling cost's $20 maybe but losing the odd one wouldn't hurt too much for many. hmmm
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

worser and worser...should be a scandal 8 years 3 months ago #4634

Insurance companies like to save money, but are so damn structured they can't even imagine there is a box to think out of.
As far as pleasing customers. They consider the importance customer satisfaction like I rate the enjoyability of prostate exams-not very high
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Time to create page: 0.082 seconds

Copyright © 2015-2020 FixHepC

Back to Top