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TOPIC: Hepatitis Australia

Hepatitis Australia 5 years 10 months ago #5584

  • berrinice
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I just read Hep Australia website which is now listing the buyers club on their website as a place to go to get generics. Thankyou Helen Tyrell.
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Hepatitis Australia 5 years 10 months ago #5585

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YMMV
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Hepatitis Australia 5 years 10 months ago #5596

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I'm not going to dwell on how long this has taken but just say well done Hepatitis Australia.

That's big getting the word out from somewhere a lot of people are likely to look for information and that is permanently available. Rather than media stories which are transitory and can be easily missed if you don't see it the day it is published or aired.

Big props to Helen Tyrell and HA. She can also be assured that when the drugs are listed on the PBS a lot of people unable to afford the generics will be able to get treated because of those who have paid for their own meds.
Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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Hepatitis Australia 5 years 10 months ago #5598

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Well done to Hep Aust.

I don't doubt that the personal experiences/postings by Em and others from this forum have helped sway their formerly unequivocal stance. As you say Chester, the word about achievable cures should get out to a whole wider audience now. Great stuff!
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
Last Edit: 5 years 10 months ago by zhuk.
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Hepatitis Australia 5 years 10 months ago #5601

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A big thank you to the Hepatitis Australia team. :)

G
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Hepatitis Australia 5 years 10 months ago #5606

Just saw my story on the "Speak Out" forum with Hep Australia which I posted on 8/12. Glad they approved and posted it........I made it short and sweet but to the point. It's great to see that word is "getting out there". It was the first site I visited when I found out I had the virus. :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Hepatitis Australia 5 years 10 months ago #5624

This link has found its way onto The Hepatitis Foundation of New Zealand's page, lets hope it spurs them into action - its been very quiet on the generic front from them.
SVR 24
Last Edit: 5 years 10 months ago by Tina-Hill-facebook.
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Hepatitis Australia 5 years 10 months ago #5631

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I see HA cover their arse with a legal disclaimer. It's great they posted the info though.
M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
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Hepatitis Australia 5 years 10 months ago #5632

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In recent years their page has been my go to for updates on the progress of treatments. I'd just check in every now and then to get an update. I checked their website just recently after discovering fixhepc and found not a mention which I was really disappointed about. I felt ripped off as though the news I'd been depending on had be skewed all this time. So I am very pleased to see this! It is wonderful news :)
3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx - ALT 71 AST 40 V/L 9 million
Day 11 - ALT 12 AST 15
4 week - LFTs normal - detected (same sample sent for v/l showed undetected) :/
6 week - UND
12 week EOT - UND
SVR4
SVR12
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