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TOPIC: Any efforts to start buyers' clubs in the USA?

Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6086

  • mistyc
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Hi lovelies,

Does anyone know of any public efforts to create a buyers' club in the USA? Also, I'm thinking that while the FDA is federal (under executive jurisdiction), given our complex interstate commerce laws, this may become a "states" issue...does anyone with some legal know-how have comments on this? I am particularly interested in California law. Thank you.

PS: You are all fucking amazing.
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Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6135

  • 2b
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Hi MistyC, I don't know of any at this point. Australia is a bit more of a free-wheeling place than here I think. Plus, you would need a US Doctor like Dr. Freeman to stick their neck out, and Gilead and the big insurance companies and/or the FDA and AMA either have their boots on the necks or a golden string on a lot of our doctors around here--Dr. Freeman seems to be one of a kind, so far in the whole world.

Tasmania---who woulda thunk it???

Ever look at videos of Tasmanian Devils? wouldn't want one of them to wander in my tent at night!
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6159

  • mgalbrai
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Yes,
We would have to have a doctor, but I think a doctor would not be able to prescribe drugs produced by non-FDA approved companies. It looks like, and I have done some looking, that the Vietnamese strategy of the "tiger and the elephant" is going to have to suffice for now. That or the Mexican drug cartels need to put some DAA's in their catalogs.
The big problem, in my opinion, is that most people in the U.S. don't care and the people who do-those affected by HCV-won't speak out in a manner that will cause change.
The people with money-those in power- can afford the drugs.
The poor can get them paid for by various assistance programs if they know how to access them.
The people in the middle need to be resourceful, willing to take risks and bend a few regulations. Then, they too can access treatment.
Sadly, many people are lacking one or more of these qualities.
Onward through the fog...
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 5 years 10 months ago by mgalbrai. Reason: Typo
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Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6175

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The only other way I was thinking about is if there were established safe shipment points and pickup places just outside the border, such as one in mexico, one in the bahamas, maybe one in canada, where people close to those areas could travel to fairly easily, grab their stuff, and then carry it back in. That would require at least a few people in those 3 countries to be like Greg Jefferys in Tasmania to devote some time and energy to taking delivery of meds and holding them for pickup for the various people coming through.

I thought I read somewhere that Honduras was going to be allowed to manufacture under the agreement with Gilead but who know when if ever that would happen down there? I think that place is too messed up these days for that to happen.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6208

  • mgalbrai
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Reputable companys will ship quality generics into the U.S. without a prescription. Customs and the FDA don't appear to be an issue. If a person's meds get detained, an online script from GP2U and a letter of need to the FDA should get them undetained. I am not a doctor or a lawyer, but it appears we have access to affordable treatment in the U.S.
We simply need doctors who will monitor treatment. Maybe Dr. James could twist some arms from afar.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Any efforts to start buyers' clubs in the USA? 5 years 10 months ago #6218

  • Wayne
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Shot in the Dark and any American Doctors who work with Doctors without Borders.
Genotype 1b 42 years.
2007 48 Weeks Interferon + Ribavirin Relapsed.
2015 6 Weeks same as above + Sempivir Too many sides stopped.
7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy.
VL Before tx 3 million.
1st bloods 8 weeks undetected
.
Last Edit: 5 years 10 months ago by Wayne. Reason: Spelling
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