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power of 3 7 years 10 months ago #8688

  • Hazel
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www.stuff.co.nz/national/health/75979256...ian-drug-buyers-club
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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power of 3 7 years 10 months ago #8690

SVR 24
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power of 3 7 years 10 months ago #8724

hazelriannon wrote: www.stuff.co.nz/national/health/75979256...ian-drug-buyers-club


Good article Hazel now we are going to be swamped by even more East Islanders. :)
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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power of 3 7 years 10 months ago #8777

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Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board. Em
Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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power of 3 7 years 10 months ago #8781

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Great article Hazel, you girls are agitating real well over the ditch. Tell em all.to come over. The supply chain looks solid so no need really if doctors are willing to prescribe. Hopefully this article will convince more to come on board


Hi Emlio,

It's been quietly happening for a while, baby steps but gathering momentum...

Hi James

Yes some good news for all Australian Hep C patients.

We have written scripts for 4 patients here before Christmas, but I don’t know how many have gone through with signing up to the buyers club etc.

We have a compounding pharmacy in Auckland who has compounded a few other buyers clubs meds as prescribed by a local gp.

Hopefully NZ government will also get such a good price, I haven’t heard any news as to when this might be reconsidered. If its gradually introduced ie cirrhotics first Im sure there will still be ongoing interest in buying.

Thanks for the trial link. We have another one this afternoon who wants to buy so will discuss Redemption etc.

Cheers

Dr at major NZ referral hospital
YMMV
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power of 3 7 years 10 months ago #8812

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Phew, just did an NZ Radio Live interview. 6 mins. got fixhepc and Greg in 3x.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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power of 3 7 years 10 months ago #8818

No No No!

I'm speechless WTF!!!!

www.stuff.co.nz/national/health/76025797...ice-gets-funding-cut
SVR 24

power of 3 7 years 10 months ago #8837

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Don't expect you all to listen to this but here is today's Radio Live interview- live. I had 15 mins warning for it.
www.radiolive.co.nz/Dallas-Buyers-Club-t.../111604/Default.aspx
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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power of 3 7 years 10 months ago #8838

#woohoo!

Go get em girlfriend!!!!!
SVR 24

power of 3 7 years 10 months ago #8839

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Good reporting Hazel - you definitely outshone the interviewer. :P
I thought you sounded very natural and sincere, a really good advertisement for generic DAAs.
Probably better that it was spontaneous, less time to get nervous.

Go girls, 50,000 Kiwis to be cured. :woohoo:
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.

power of 3 7 years 10 months ago #8846

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Congratulations Hazel, I have just listened to your radio interview.
I hope that you are able to inspire more people like us to take action.
The very fact you have got to the radio and the media is incredible activism, I also really like the way you held the interviewer on point.
I love visiting New Zealand. I have friends there in my global surfing community.
What an opportunity to be able to speak out and get the message across.
HUGE PROPS from across the Tasman from Ariel #love #love #love
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18

power of 3 7 years 10 months ago #8850

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Good job Hazel! That's the way to get the word out. :+1:
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22

power of 3 7 years 10 months ago #8852

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WOW you really packed a lot of information into 6 minutes
Great job

Great video also
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc

power of 3 7 years 10 months ago #8853

TV 3 News

Featuring James Freeman & Hazel :+1:

www.3news.co.nz/nznews/sick-kiwis-crossi...012017#axzz3xlJdLpLv
SVR 24
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power of 3 7 years 10 months ago #8854

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Fantastic interview Hazel!. :+1: :+1: :+1:


Edit: and just watched the news clip too! Way to get the information out there.

#woohoo!
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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