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Tina in latest NZHF magazine 8 years 6 months ago #13904

  • Hazel
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Check out my buddy Tina p11 in this latest issue of Talking Hep C magazine :cheer:
Dr J on p10.
www.hepatitisfoundation.org.nz/files/4014/5980/2980/final.pdf
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The following user(s) said Thank You: DrJames, emilio, Chapel, Joy, LondonGirl, 2b, pat1, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Tina-Hill-facebook, IRMA88, Thyme, jay kim

Tina in latest NZHF magazine 8 years 6 months ago #13905

Yay Tina and Dr. Freeman! Helping so many to act towards treatment! BIG Karma!! :cheer: :+1:
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Tina in latest NZHF magazine 8 years 6 months ago #13916

Interesting, especially the amino acid thing regarding muscle loss / malnutrition...
Lovely photo of your friend Tina, Hazel .
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Latest NZHF Magazine (Generics validity discussion) 8 years 6 months ago #13919

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She is all our friend Tina (Hill) on this forum LG! I'm just lucky to live nearby. Cute dog too.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Latest NZHF Magazine (Generics validity discussion) 8 years 6 months ago #13922

Ooh it's 'our' Tina - Wow Tina girl, you're looking fantastic ! Lovely :-)
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Latest NZHF Magazine (Generics validity discussion) 8 years 6 months ago #13926

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A touching story and honest insight into our situation
Beautiful stuff
Thankyou Tina for representing us all so bravely
Xxxxxxxxxx
Awesome
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1, Gaj, Tina-Hill-facebook, beaches

Latest NZHF Magazine (Generics validity discussion) 8 years 6 months ago #13929

Way to goTina!!
Stepping up and out and looking good while you're at it.
You too, James.
So last year at this time, FHC was just a "gleam" in the Doc's eye?? Did a lot in a short time

Thank you both!
(The pretty pooch too)
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Latest NZHF Magazine (Generics validity discussion) 8 years 6 months ago #13935

Awwww thank you my Fix Hep C Whanau (that means family in Maori)

about Ed Ganes comments my response is this......

Hope you have a large pipe Doc Gane cause you can stick my SVR 4 in it and smoke it! Must say i'm looking forward to when Doc Freeman & Greg present their report in Barcelona. Let the facts ignite that pipe and hope you have an appetite for some good ole humble pie and some Twinvir to help wash it down. :evil:

SVR 24
Attachments:
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Latest NZHF Magazine (Generics validity discussion) 8 years 5 months ago #14058

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Yes, great article Tina! :cheer:

Thank you for your affirmative story about your life and experiences with HCV and positives of the treatment process. :+1: #flower
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Tina in latest NZHF magazine 8 years 5 months ago #14131

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This interview of Tina's was done quite a while ago, and it was major part of what got the ball rolling here in the New Zealand media. I'd done the first newspaper story, and was at her place listening while Tina was doing this one... the journalist was just stunned to silence and 30 mins later posted that other article on the NZHF website, and there was heaps of interest from that point on. Tina did an epic rant on Gilead which of course got left out but was fairly motivational! :lol: And the other bit left out which I think is probably unique among our experiences, is immediately after being diagnosed, she had to go into the operating theatre and assist as they drained the liver of a Hep c patient in their last few days of life. She has actually seen those livers I hate to imagine! And she has also been in the unique position at times over her career of hearing the 'esteem' we hep c patients are held in when under anaesthetic and can' t hear. So bloody good on you again girl for having the guts, to spill your guts, when you have seen the guts! #flower
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Tina in latest NZHF magazine 8 years 5 months ago #14133

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Hazel and Tina, I think you are both so amazing, brave and awesome. Inspiring. You are absolutely fearless warriors. Yep you definitely have guts! I salute you #flower #flower #flower #flower #flower #flower #love #love
I applaud everyone's efforts to support and highlight the availability of affordable meds on this forum and elsewhere :+1:
#respect
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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