Dr Andrew Hill is a well known and well connected actor on the HIV/HCV "scene". He is also a co-author of our generics paper for EASL.
To help stimulated interest in the US media patients with the correct accent are required.
If you're up for talking to the media (paper, radio and/or TV) please contact Andrew or I directly.
Date: 12 April 2016 at 00:25
Subject: US person to talk with Washington Post?
Please could we have a treated US person on the FixHepC programme to give a comment to Washington Post? Just had the request
I wish I could do this for you! But my job is about to be outsourced, and I am aggressively seeking a new one. I can't afford the stigma associated with this disease. If I can do it with my identity being hidden, I will do it.
If you could send an email to Andrew that would be great.
Although I'm sure we will need someone stateside to put a face to it, even putting an anonymous voice to it - with a familiar accent - should help draw the US media in, so it would be great if you could speak anonymously about it.
You know I would do that in a hearbeat, but I finished on the factory stuff. Still, the story is a pretty good one.
I may not be "generic patient '0'" in the U.S., but I have to be close.
But, for your purpose, I am "tainted" goods.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
Go for it Mike, you are a generics importation representative for sure with the blessing of all, no matter what packet you got them out of. I am dreaming of fixhepc, the screenplay. We already have the cast of characters, you write your own dialogue! and we need a young Don Adams to star as you. But until then, tell them about it. You too GF, on your own terms.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
The Washington Post, New York Times and Boston Globe have all decided NOT to run the story.
While one view would be the evil hand of Big Pharma suppressed the story it's probably a bit more pragmatic.
If we had FAILED that would have been news, but given the lack of failure....
The problem is that the story was effectively communicated as "Cheaper versions of already proven American drugs have been proven to work by people who are not Americans, treating people who not Americans, reporting to people who are not Americans somewhere which is not in America called Spain, at some conference which is not American called the EASL ILC 2016"
Getting this story to float in the mainstream media in the USA is going to take work, and quite possibly a blonde hair, big boobs and uber fame celebrity endorsement.
Sad as it may be if Pamela Anderson had said "I had Hep C, took generics, and got cured" then the US media would be all over it.