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TOPIC: US Patient with balls as big as Sean, Tina and Hazel required

US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14243

  • DrJames
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Dr Andrew Hill is a well known and well connected actor on the HIV/HCV "scene". He is also a co-author of our generics paper for EASL.

To help stimulated interest in the US media patients with the correct accent are required.

If you're up for talking to the media (paper, radio and/or TV) please contact Andrew or I directly.

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From: Andy <This email address is being protected from spambots. You need JavaScript enabled to view it.>
Date: 12 April 2016 at 00:25
Subject: US person to talk with Washington Post?
To: James <This email address is being protected from spambots. You need JavaScript enabled to view it.>


Hi James,

Please could we have a treated US person on the FixHepC programme to give a comment to Washington Post? Just had the request

Thanks,

Andrew
YMMV
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14256

  • Greedfighter
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I wish I could do this for you! But my job is about to be outsourced, and I am aggressively seeking a new one. I can't afford the stigma associated with this disease. If I can do it with my identity being hidden, I will do it.
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
Last Edit: 3 years 7 months ago by Greedfighter.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14258

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Hi GF,

If you could send an email to Andrew that would be great.

Although I'm sure we will need someone stateside to put a face to it, even putting an anonymous voice to it - with a familiar accent - should help draw the US media in, so it would be great if you could speak anonymously about it.
YMMV
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14260

  • mgalbrai
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Doc,
You know I would do that in a hearbeat, but I finished on the factory stuff. Still, the story is a pretty good one.
I may not be "generic patient '0'" in the U.S., but I have to be close.
But, for your purpose, I am "tainted" goods.
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
Last Edit: 3 years 7 months ago by mgalbrai.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14261

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Hey Doc,

I sent him an email
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14271

  • klhilde
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I'm out of the country right now. I expect to be back first week of May. If he still needs somebody at that time I'll do it.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14275

  • re_roll
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mgalbrai wrote:
southern drawl all over it.

Put in your LA voice instead. There is a reason why most
newscasters speak like they are from Cal.

giphy.com/gifs/dance-kJlKrFUbCwgKs
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil.
biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND
56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND
139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT
SVR24
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14279

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Go for it Mike, you are a generics importation representative for sure with the blessing of all, no matter what packet you got them out of. I am dreaming of fixhepc, the screenplay. We already have the cast of characters, you write your own dialogue! and we need a young Don Adams to star as you. But until then, tell them about it. You too GF, on your own terms.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14286

  • splitdog
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:)
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Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
Last Edit: 3 years 7 months ago by splitdog.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14792

  • Price
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We have a nurse on treatment. I'll pass the message to her and to Alex (who's making the video on treating with generics). She would be perfect. She likes cameras and interviews.

P.
Last Edit: 3 years 7 months ago by Price.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14793

  • Price
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Mike, that would be conflict of interest, sort of.

P.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14816

  • mgalbrai
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P,
I think I agree with you, but I'm conflicted.. sort of.
:silly:
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 7 months ago #14822

  • Price
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Then do it under one of your other personalities :silly:

P.
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US Patient with balls as big as Sean, Tina and Hazel required 3 years 6 months ago #14848

  • DrJames
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It's turned out to be academic.

The Washington Post, New York Times and Boston Globe have all decided NOT to run the story.

While one view would be the evil hand of Big Pharma suppressed the story it's probably a bit more pragmatic.

If we had FAILED that would have been news, but given the lack of failure....

The problem is that the story was effectively communicated as "Cheaper versions of already proven American drugs have been proven to work by people who are not Americans, treating people who not Americans, reporting to people who are not Americans somewhere which is not in America called Spain, at some conference which is not American called the EASL ILC 2016"

Getting this story to float in the mainstream media in the USA is going to take work, and quite possibly a blonde hair, big boobs and uber fame celebrity endorsement.

Sad as it may be if Pamela Anderson had said "I had Hep C, took generics, and got cured" then the US media would be all over it.
YMMV
Last Edit: 3 years 6 months ago by DrJames.
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